occurs when the diaphragm fails to fully form, allowing abdominal
organs into the chest cavity and preventing lung growth.
CDH occurs in 1 of every 2500 births; somewhere in the world, a baby is
with CDH every 10 minutes. 50% of babies diagnosed with CDH
do not survive. The cause is not known. Over a half million
babies have been born with CDH since 2000.
is as common as Spina Bifida and Cystic Fibrosis but there is very
little awareness and even less research. 1600 babies are born
with CDH every year in the United States. Globally, a baby is
born with CDH every 10 minutes.
is working hard to raise more CDH Awareness, and in turn, more
CDH Research, while we continue to support families affected by this
devastating birth defect.