CDH Survivors

 

 At CHERUBS, we are one big CDH family. Though we wish you had never heard of CDH, we are glad that you found us and we are here for you and will help as much as we can during your journey. Surviving CDH, however, is not the end of the journey. You may still need additional support, and we hope to provide that support to you. You are also uniquely qualified to provide support to other families still struggling with CDH.

 

Ongoing Support for Survivors

  Though you or your child may have survived CDH, you may still require support and assistance. 

Financial Help
Sources of support to turn to for financial help.  Learn More

CHERUBS Family Assistance Fund
CHERUBS new fund to help families with the financial burdens of CDH.  Learn More

Expecting Again?
  We understand how hard it is to expect another baby after having a cherub and all the emotions and worries that go with a new pregnancy.  Learn More

 

Learn How You Can Help

  You are uniquely qualified to provide emotional and physical support to families still affected by CDH.  Here are some ways that you can get involved.

Join CHERUBS
 Membership is free and includes our forums, conferences, get-togethers, newsletters, and more.  Meet over 3000 families and give and receive support

Join Today


Contribute on the CDH Forums
  Our free message board for CDH families.  Come meet other parents, ask questions, learn about the journeys of others and make friends with people who have walked a mile in your shoes.

CDH Forums


Participate in a Research Study

  There are several current CDH research studies that families can participate in by donating blood work or oral swabs.

Identifying Genes Which Cause CDH

Massachusetts General Hospital
Drs. Patricia Donahoe & Lewis Holmes

Contact: Francis High
(617) 726-0828
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Identifying Genes Which Cause CDH

Baylor College of Medicine
Daryl Scott, M.D., Ph.D., Department of Molecular & Human Genetics

One Baylor Plaza, MS BCM225, Houston, TX, 77030, USA
(713) 203-7242
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Genetic Molecular Basis of CDH

Columbia University Medical Center
Drs. Patricia Donahoe & Lewis Holmes

1150 St. Nicholas Ave, New York, NY, 10032
(212) 305-6987
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www.CDHGenetics.com

Fryn's Syndrome

University of California

Contact: Anne Slavotinek (415)
(713) 203-7242

Identifying Genes Which Cause CDH

Emergen Labs, Salt Lake City, UT

Contact: Mary Meade
This email address is being protected from spambots. You need JavaScript enabled to view it.


Adopt a Hospital
  Help to provide information and resources to CDH families at your cherub's hospital.  

Learn More


Share Your Story
  Email us your story and/or photo and be an inspiration to CDH families everywhere.

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Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

2017 CDH Conference

Our 2017 International CHERUBS CDH Conference was a huge success.

Read more...

University of Texas CDH Reunion

CDHi President, Dawn Ireland, visit the University of Texas

Read more...

Introducing Rachael Eller

We would like to welcome our new Office Manager and Research Database Administrator, Rachael Eller.

Read more...