CDH Survivors

 

 At CHERUBS, we are one big CDH family. Though we wish you had never heard of CDH, we are glad that you found us and we are here for you and will help as much as we can during your journey. Surviving CDH, however, is not the end of the journey. You may still need additional support, and we hope to provide that support to you. You are also uniquely qualified to provide support to other families still struggling with CDH.

 

Ongoing Support for Survivors

  Though you or your child may have survived CDH, you may still require support and assistance. 

Financial Help
Sources of support to turn to for financial help.  Learn More

CHERUBS Family Assistance Fund
CHERUBS new fund to help families with the financial burdens of CDH.  Learn More

Expecting Again?
  We understand how hard it is to expect another baby after having a cherub and all the emotions and worries that go with a new pregnancy.  Learn More

 

Learn How You Can Help

  You are uniquely qualified to provide emotional and physical support to families still affected by CDH.  Here are some ways that you can get involved.

Join CHERUBS
 Membership is free and includes our forums, conferences, get-togethers, newsletters, and more.  Meet over 3000 families and give and receive support

Join Today


Contribute on the CDH Forums
  Our free message board for CDH families.  Come meet other parents, ask questions, learn about the journeys of others and make friends with people who have walked a mile in your shoes.

CDH Forums


Participate in a Research Study

  There are several current CDH research studies that families can participate in by donating blood work or oral swabs.

Identifying Genes Which Cause CDH

Massachusetts General Hospital
Drs. Patricia Donahoe & Lewis Holmes

Contact: Francis High
(617) 726-0828
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Identifying Genes Which Cause CDH

Baylor College of Medicine
Daryl Scott, M.D., Ph.D., Department of Molecular & Human Genetics

One Baylor Plaza, MS BCM225, Houston, TX, 77030, USA
(713) 203-7242
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Genetic Molecular Basis of CDH

Columbia University Medical Center
Drs. Patricia Donahoe & Lewis Holmes

1150 St. Nicholas Ave, New York, NY, 10032
(212) 305-6987
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www.CDHGenetics.com

Fryn's Syndrome

University of California

Contact: Anne Slavotinek (415)
(713) 203-7242

Identifying Genes Which Cause CDH

Emergen Labs, Salt Lake City, UT

Contact: Mary Meade
This email address is being protected from spambots. You need JavaScript enabled to view it.


Adopt a Hospital
  Help to provide information and resources to CDH families at your cherub's hospital.  

Learn More


Share Your Story
  Email us your story and/or photo and be an inspiration to CDH families everywhere.

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News from CHERUBS

Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

Read more...

Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

Read more...

New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic

 

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

Read more...

Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

Read more...

New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic