CDH Survivors

 

 At CHERUBS, we are one big CDH family. Though we wish you had never heard of CDH, we are glad that you found us and we are here for you and will help as much as we can during your journey. Surviving CDH, however, is not the end of the journey. You may still need additional support, and we hope to provide that support to you. You are also uniquely qualified to provide support to other families still struggling with CDH.

 

Ongoing Support for Survivors

  Though you or your child may have survived CDH, you may still require support and assistance. 

Financial Help
Sources of support to turn to for financial help.  Learn More

CHERUBS Family Assistance Fund
CHERUBS new fund to help families with the financial burdens of CDH.  Learn More

Expecting Again?
  We understand how hard it is to expect another baby after having a cherub and all the emotions and worries that go with a new pregnancy.  Learn More

 

Learn How You Can Help

  You are uniquely qualified to provide emotional and physical support to families still affected by CDH.  Here are some ways that you can get involved.

Join CHERUBS
 Membership is free and includes our forums, conferences, get-togethers, newsletters, and more.  Meet over 3000 families and give and receive support

Join Today


Contribute on the CDH Forums
  Our free message board for CDH families.  Come meet other parents, ask questions, learn about the journeys of others and make friends with people who have walked a mile in your shoes.

CDH Forums


Participate in a Research Study

  There are several current CDH research studies that families can participate in by donating blood work or oral swabs.

Identifying Genes Which Cause CDH

Massachusetts General Hospital
Drs. Patricia Donahoe & Lewis Holmes

Contact: Francis High
(617) 726-0828
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Identifying Genes Which Cause CDH

Baylor College of Medicine
Daryl Scott, M.D., Ph.D., Department of Molecular & Human Genetics

One Baylor Plaza, MS BCM225, Houston, TX, 77030, USA
(713) 203-7242
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Genetic Molecular Basis of CDH

Columbia University Medical Center
Drs. Patricia Donahoe & Lewis Holmes

1150 St. Nicholas Ave, New York, NY, 10032
(212) 305-6987
This email address is being protected from spambots. You need JavaScript enabled to view it.
www.CDHGenetics.com

Fryn's Syndrome

University of California

Contact: Anne Slavotinek (415)
(713) 203-7242

Identifying Genes Which Cause CDH

Emergen Labs, Salt Lake City, UT

Contact: Mary Meade
This email address is being protected from spambots. You need JavaScript enabled to view it.


Adopt a Hospital
  Help to provide information and resources to CDH families at your cherub's hospital.  

Learn More


Share Your Story
  Email us your story and/or photo and be an inspiration to CDH families everywhere.

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News from CHERUBS

2018 Light Ups for CDH Awareness Day

Buildings and Landmarks in the United States and Canada lit up blue, pink and yellow on April 19th for CDH Awareness Day.  The CN Tower will light up on April 28th in Toronto, Canada.

The following locations lit up for CDH Awareness Day in 2018:

Read more...

CDH International Telethon on April 19th

On CDH Awareness Day, April 19th, CDH International interviewed families, researchers, doctors and volunteers as they all shared stories, tears and trials as we raised awareness and money for Congenital Diaphragmatic Hernia via live video on Facebook.  We had guests live from around the globe, truly an international day of CDH Awarneess.  The goal was to reach $50,000 over 15 hours during a live Facebook telethon.  Donors were able to make a donation by calling in, donating on any of the member's Facebook telethon fundraisers or directly on the website.  As the telethon closed, CDH International surpassed the goal bringing in $51,388.  This number is on the rise, where the final total will be announced on April 30th.  Facebook fundraisers for the telethon are still ongoing and the charity waits for any checks arriving by mail.

Read more...

2018 Salt Lake City Bees Game for CHERUBS

On Saturday, April 21, 2018, at Smith's Ballpark in Salt Lake City, Utah, CHERUBS held a CDH Awareness Ballgame. This was the 5th annual CDH Awareness ball game for the charity.  The game has been a yearly celebration of CDH Awareness Month. CHERUBS members, family and friends got together for a great night of baseball, meeting other CDH families and raised a ton of CDH Awareness. Abby Rush, 15 year old CDH survivor, got to throw in the 1st pitch of the night and kick off the celebration for the charity.  Wearing her wings, Abby threw the 1st pitch like a pro and raised a ton of CDH Awareness.

Read more...

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

2018 Light Ups for CDH Awareness Day

Buildings and Landmarks in the United States and Canada lit up blue, pink and yellow on April 19th for CDH Awareness Day.  The CN Tower will light up on April 28th in Toronto, Canada.

The following locations lit up for CDH Awareness Day in 2018:

Read more...

CDH International Telethon on April 19th

On CDH Awareness Day, April 19th, CDH International interviewed families, researchers, doctors and volunteers as they all shared stories, tears and trials as we raised awareness and money for Congenital Diaphragmatic Hernia via live video on Facebook.  We had guests live from around the globe, truly an international day of CDH Awarneess.  The goal was to reach $50,000 over 15 hours during a live Facebook telethon.  Donors were able to make a donation by calling in, donating on any of the member's Facebook telethon fundraisers or directly on the website.  As the telethon closed, CDH International surpassed the goal bringing in $51,388.  This number is on the rise, where the final total will be announced on April 30th.  Facebook fundraisers for the telethon are still ongoing and the charity waits for any checks arriving by mail.

Read more...

2018 Salt Lake City Bees Game for CHERUBS

On Saturday, April 21, 2018, at Smith's Ballpark in Salt Lake City, Utah, CHERUBS held a CDH Awareness Ballgame. This was the 5th annual CDH Awareness ball game for the charity.  The game has been a yearly celebration of CDH Awareness Month. CHERUBS members, family and friends got together for a great night of baseball, meeting other CDH families and raised a ton of CDH Awareness. Abby Rush, 15 year old CDH survivor, got to throw in the 1st pitch of the night and kick off the celebration for the charity.  Wearing her wings, Abby threw the 1st pitch like a pro and raised a ton of CDH Awareness.

Read more...