Local Representatives & Hospital Angels

Meet Your Local Congenital Diaphragmatic Hernia Support System

We are so grateful to have so many CDH parents, grandparents and survivors who are willing to give of their time and hearts to help other families affected by Congenital Diaphragmatic Hernia.

Our State Representatives greet new families, organize state get-togethers, give interviews and more. They bring CDH support to the local level.

Our Hospital Angels are on-call to help families are local hospitals, providing an ear and support.

Is your state not represented? Please consider volunteering!

State

Volunteer

Local Pages

Alabama
DeAnn Strother McGilberry (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  Phone: (334) 410-2140 

Teresa Meherg (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (205) 270-1386
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Alaska
 
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Arizona
Nicki Young (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  

Stephanie Tolley (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  
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Arkansas
 
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California
Amy Schlueter (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
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Colorado
Nicolle Colvin (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (720) 870-2518
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Connecticut 
 
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Delaware
 
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Florida
 
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Georgia
 
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Hawaii
 
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Idaho
Heidi Forney (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (208) 895-8741
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Illinois
Kristen Aigner (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.  
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Indiana
 
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Iowa
 
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Kansas
 
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Kentucky
 
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Louisiana
Lisa Thibeau (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (317) 858-5073
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Maine
 
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Maryland
 
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Massachusetts
Marie Marchesseault (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (978) 664-2358
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Michigan
 
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Minnesota
 
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Mississippi
 
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Missouri
Laura Henderson (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
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Montana
 
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Nebraska
 
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Nevada
Jill Gibson (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (702) 267-7441
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New Hampshire
 
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New Jersey
 
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New Mexico
 
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New York
Jennifer Cuomo (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

 Tracy Meyer (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
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North Carolina
Amber Bradley (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (704) 524-9819

 Karla Holt (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (276) 362-5114
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North Dakota
Donna Stolz (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (612) 709-1238
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Ohio
Julie Tunnel (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (614) 519-2292
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Oklahoma
 
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Oregon
Shelly Moore (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (503) 805-7854

Alicia Gilbert (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (503) 430-7854
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Pennsylvania
Felecia Woodruff (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (610) 241-6581

 Jessica Cummings (Hospital Angel) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (724) 316-0725
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Rhode Island
 
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South Carolina
Lynne Brogden (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (864) 906-0886
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South Dakota
Donna Stolz (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (612) 709-1238
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Tennessee
 
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Texas
Cassandra Carter (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (817) 690-0562

Lisa Carter (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (817) 581-2299
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Utah
Josh Hensley (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (801) 953-5622
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Vermont
 
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Virginia
 
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Washington
 
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West Virginia
 
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Wisconsin
 
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Wyoming
Tracy Meats (State Representative) Email: This email address is being protected from spambots. You need JavaScript enabled to view it. Phone: (307) 362-9630
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APO's
 
 
American Somoa
 
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Guam
 
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Northern Mariana Islands
 
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Puerto Rico
 
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U.S. Virgin Islands
 
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Canada
 
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Denmark
 
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UAE
 
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United Kingdom
 
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United Kingdom
 
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United Kingdom
 
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News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...

 
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2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...