CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support

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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support


CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support




Throughout the years we have been very busy and we have accomplished A LOT for families affected by Congenital Diaphragmatic Hernia through research, awareness and support!



1995

  • Shane TorrenceCHERUBS is founded with 2 members; Dawn Torrence, mom of Shane Torrence, and Rhonda Montague, mom of Preston Montague
  • CHERUBS files for an Employee Identification Number, the first step to Non-Profit Status
  • CHERUBS is granted an EIN and 501 (c) III Non-Profit Status
  • CHERUBS Board of Directors is formed
  • Our first issue of our newsletter, The Silver Lining, is published
  • CHERUBS Parent Reference Guide was created


1996
  • First newspaper article about CHERUBS is printed
  • CHERUBS attend our first American Pediatric Surgical Associations conference in San Diego, CA


1997
  • CHERUBS first Congenital Diaphragmatic Hernia Research Survey Results are published
  • CHERUBS New Member Packets are created
  • CHERUBS goes on-line
  • CHERUBS web site is created
  • CHERUBS first listserv is started
  • CHERUBS Prayer List is created
CHERUBS

1998
  • We have our first Secretary, volunteer Judi Toth, mom of Christopher Toth
  • CHERUBS Volunteer Coordinator position is created
  • Congenital Diaphragmatic Hernia Research Survey Results are published
  • International & State Representatives are created
  • Cooking with Cherubs is published
  • CHERUBS 1999 Calendars are published
  • CHERUBS first bake sale
  • CHERUBS first raffle held
  • CHERUBS first on-line chats
  • CHERUBS membership grows to over 100 CDH families


1999

  • CHERUBS is contacted by ABC's 20/20 staff for input on a story of a cherub
  • CHERUBS members participate in Noah's Flood ECMO Fundraiser for National Children's Hospital in Washington, DC
  • Our first Grieving Parents Get-Together is held outside of Washington, DC
  • Congenital Diaphragmatic Hernia Research Survey Results are published
  • CHERUBS listservs move to Onelist.com, which becomes Yahoogroups
  • A forum for CDH medical professionals is created
  • New seperate listservs were created for grieving parents and parents of survivors
  • CHERUBS Advisory Committee is created
  • CHERUBS Conference Committee is created
  • CHERUBS Kids Book Committee is created
  • CHERUBS Fundraising Committee is created
  • CHERUBS Research Committee is created
  • CHERUBS Welcoming Committees are created
  • CHERUBS Card Committees are created
  • CHERUBS Grant Committee is Created
  • CHERUBSCHERUBS Welcoming Committees are created
  • CHERUBS Totebag Committee is created
  • CHERUBS Library Committee is created
  • CHERUBS offer parents free web site graphics
  • CHERUBS 2000 Calendars are published
  • CHERUBS first Lock-In Fundraiser
  • CHERUBS first t-shirts and sweatshirts are created
  • CHERUBS first Christmas Fairy fundraiser
  • Newsletter Tribute fundraiser is started
  • CHERUBS membership grows to over 500 CDH families

2000

  • Our first CHERUBS International Member Conference is held in Orlando, Florida
  • Our first Australia National Member Get-together is held
  • Our first Ohio member picnic is held in Columbus, OH
  • Congenital Diaphragmatic Hernia Research Survey Results are published
  • CHERUBS first message boards were created
  • Cooking with Cherubs Volume II is published
  • Our first Ebay Auctions are held
  • Our first Celebrity Auction is held
  • Listservs were created for our various Committees

2001
  • Family Circle magazine contacts CHERUBS for input on a story of a cherub
  • CHERUBS petition for Certification of Ultrasound Technicians is started
  • CHERUBSOur first North Carolina member get-together is held outside of Charlotte, NC
  • Our first member Candlelighting Ceremony is held
  • CHERUBS CDH Video Committee is formed
  • CHERUBS Australia creates it's own national web site
  • Australia National Member Get-together is held
  • Ohio member picnic is held in Columbus, OH
  • CHERUBS reaches 1000 members

2002
  • CHERUBS moves into it's first office
  • Our first Alabama member get-together is held
  • Our first Texas member get-together is held
  • Our first United Kingdom National Member Get-together is held
  • Australia National Member Get-together is held
  • CHERUBS 2nd Celebrity Ebay Auction is held
  • Ohio member picnic is held in Columbus, OH
  • CHERUBS is contacted by Lifetime Televisions "Strong Medicine" for a CDH story line
  • CHERUBS membership grows to over 1000 CDH families


2003
  • Member Ebay Auction fundraiser is held
  • Australia National Member Get-together is held
  • United Kingdom National Member Get-together is held
  • Ohio member picnic is held in Columbus, OH

2008 conference
2004
  • CHERUBS UK is granted Non-Profit Status
  • Heidi Cadwell represents CDH parents at the International CDH Study Group Congress in Texas
  • CHERUBS Listservs were created for each state and country where we have members
  • CHERUBS cafepress store is launched
  • Australia National Member Get-together is held
  • United Kingdom National Member Get-together is held
  • Ohio member picnic is held in Columbus, OH
  • CHERUBS 2005 Calendars are published
  • CHERUBS Adopt A Cherub Link Program was started


2005

  • CHERUBS submits research data for inclusion in the International CDH Study Group Congress in Germany
  • Ohio member picnic is held in Columbus, OH
  • United Kingdom National Member Get-together is held
  • Australia National Member Get-together is held
  • CHERUBS membership grows to over 1500 CDH families

2006
  • "Stories of Cherubs" is published
  • CHERUBS new web site is started
  • Ohio member picnic is held in Columbus, OH
  • Australia National Member Get-together is held
  • United Kingdom National Member Get-together is held


2007
2007 Ohio picnic
  • With several other support groups, CHERUBS founds the Alliance of Congenital Diaphragmatic Hernia Organizations
  • CHERUBS Australia files for Non-Profit Status
  • CHERUBS Board of Directors welcomes 3 new members
  • Angels for CHERUBS is started
  • CHERUBS New Member Coordinator position is created
  • CHERUBS new web site goes live
  • CHERUBS offers parents personal photo albums on-line
  • CHERUBS offers parents personal web blogs
  • CHERUBS offers dads their own forum
  • CHERUBS offers grandparents their own forum
  • CHERUBS Angel Ball Committee is formed
  • CHERUBS Golf Tournament planning begins
  • Ohio member picnic is held in Columbus, OH
  • Australia National Member Get-together is held
  • United Kingdom National Member Get-together is held
  • Michigan get-together is held in Flint, MI
  • CHERUBS Posting Contest Started
  • ATV Rally Planned
  • CDH / NICU Baby Book Committee formed
  • Trick-or-Treat for CHERUBS Fundraiser started
  • CHERUBS begins affiliate relationship with GoodSearch.com
  • First Congenital Diaphragmatic Hernia Information Packet Party held
  • CHERUBS undergoes an NC State Department audit and investigation and passes with flying colors
  • Congenital Diaphragmatic Hernia Awareness Ribbon Created
  • Congenital Diaphragmatic Hernia Awareness Jewelry designing begins
  • CDH Awareness Logo created
  • CHERUBS Myspace Page created
  • CHERUBS Blogger Account created
  • CHERUBS Live Space created
  • CHERUBS Car Wash is held
  • CHERUBS Truffle Sale is held
  • CHERUBS is listed with Wikipedia
  • Children's Holiday Card Drawing Contest
  • Christmas Raffle Idea begun
  • Donation Jar Idea begun
  • Christmas Fundraising Posters for Stores Idea begun
  • Valentine's Day Fundraising Posters for Stores Idea begun
  • CHERUBS membership grows to over 2000 CDH families
  • CHERUB Web Site averages 300,000 hits per MONTH
CDH Awareness Kit


2008
  • CHERUBS name changed to CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
  • 2008 International Member Conference
  • Inaugural Angel Ball
  • Golf Tournament
  • CDH Awareness Video
  • 2008 International Member Conference was a huge success!
  • CDH Street Signs Awareness Program begun
  • CHERUBS On YouTube
  • CHERUBS Facebook CDH Cause
  • CHERUBS Facebook CDH Group
  • CHERUBS Facebook Goodsearch Group
  • CHERUBS on Change.org
  • Fight Against Congenital Diaphragmatic Hernia at Change.org
  • CHERUBS on firstgiving.com
  • CHERUBS is chosen out of 55,000 charities to be goodsearch.com charity of the day
  • Customizable CDH Awareness Ribbon is created
  • Let Me Tell You About CDH Logo is created
  • Ask Me About CDH Logo is created
  • CDH Awareness Keychains
  • CHERUBS on Zazzle.com
  • CHERUBS Random Acts of Kindness Cards
  • New CDH Logo For Teenagers
  • Ohio Member Picnic
  • Michigan Member Get-Together
  • North Carolina Member Get-Together
  • CDH Awareness Bracelets
  • "Take A Stand Against CDH" campaign started
  • Oklahoma City, OK newspaper "The Oklahoman" article
  • Raleigh / Durham / Chapel Hill, NC News 14 television interview
  • Durham, NC "Herald-Sun" newspaper article
  • "CDH Awareness Platform" for Beauty Pageants started
  • ATV Rally
  • Rochester, IN newspaper article
  • National ATV Magazine article
  • Carolina News Wire press release
  • New Volunteer Software Installed
  • 2008 Conference Speech Videos
  • Congenital Diaphragmatic Hernia Educational Items added to cafepress
  • Anatomy of CDH graphics freely distributed
  • Personalized CDH Awareness Ribbons Items added to cafepress
  • Gabe's Bowl-a-Thon
  • Gift Bag Project Started
  • With other organizations and over 6000 people, CHERUBS leads the fight against the trademark on the phrase "Congenital Diaphragmatic Hernia Awareness"
  • CHERUBS CDH Research Fund Started
  • 14 Newspaper Interviews
  • 3 Television Interviews
  • Happy Birthday Jeremiah Car Show
  • Personalized Congenital Diaphragmatic Hernia Awareness Ribbons Begun
  • "Stories of Cherubs" Vol. II published
  • "Cooking With Cherubs" Vol. III published
  • 2009 Photos of Cherubs Calendar published
  • CHERUBS Membership Grows to Over 2500 Families


2009
  • Michigan Bowl-A-Thon
  • Valentine's Day Awareness Fundraisers
  • CHERUBS 2009 UK Conference
  • 1st CDH Celebrity Spokesperson, Patsy Pease
  • CDH Celebrity Spokesperson, Wendy Petty
  • APSA1st CDH Beauty Pageant Platform given by Wendy Petty
  • CDH Celebrity Spokesperson, Jaquetta Taborn
  • CDH Celebrity Spokesperson, Rene Couret
  • CDH Awareness & Education Posters
  • Adopt A Hospital Program Started
  • International Congenital Diaphragmatic Hernia Day of Prayer &; Education
  • "We Own Congenital Diaphragmatic Hernia Awareness" Video featuring 100's of children born with CDH
  • Texas Bake Sale
  • Pennsylvania Get-Together
  • Spanish CDH Brochure
  • German CDH Brochure
  • Dutch CDH Brochure
  • Portuguese CDH Brochure
  • CDH Research Site Begun
  • CHERUBS Represents CDH Families at American Pediatric Surgical Association Conference
  • CHERUBS Begins Research Work With Over 80 Hospitals In The International CDH Study Group
  • Several Interviews for National Media
  • CDH Baby Book
  • CDH Song and Book Project With The Jammies
  • CHERUBS CDH Scholarship Fund Started
  • CHERUBS CDH Family Support Fund Started
  • CHERUBS CDH Family Assistance Fund Started
  • CHERUBS CDH Awareness Fund Started
  • CDH Superhero Items Created
  • CHERUBS Facebook Page Created
  • CHERUBS Twitter Account Created
  • Christmas with Kasey Fundraiser
  • International Children's Memorial Day
  • "Mystery Diagnosis" TV Show
  • CHERUBS Non-Profit Status changed from Private to Public
  • CDH Kid's Song
  • 2009 International Member Conference in San Antonio, Texas
  • Photo by Fernanda ArceChase Giving Contest Participation
  • 2010 CDH Cherubs Calendar
  • CDH Awareness Kits created
  • CDH HOPE Totebag project renamed and began
  • Over 50 totebags sent to new and expectant CDH families
  • 2 Legal Firms sign on pro bono to help fight the CDH Awareness Trademark
  • Collaborated with 4 more hospitals to promote their CDH research studies
  • First CHERUBS HOPE Totebag delivered
  • Over 50 HOPE Totebags sent  to new and expectant CDH Parents
  • CDH Research Site created
  • Began collaboration with International CDH Study Group
  • CDH Kids Song
  • “Never Let You Go” Song recorded for CDH families
  • “Never Let You Go” video created
  • CDH Conference Videos
  • CDH Blog Ring created
  • Free blogger templates created
  • Holiday CDH Awareness Logos Created
  • More CDH Awareness Graphics Created
  • CDH Awareness Ribbon ornaments created and sold
  • Diaper cake fundraiser
  • Caleb’s Birthday Packet Party was held
  • Published preliminary CDH Research Survey Results Published over 100 articles on our blog
  • 3 Daytime Emmy Awards donated
  • Holiday Jewelry Fundraiser
  • Placed in the Top 3 of the 2009 Intel Vote for a Cause contest out of 1000’s of charities
  • Participated in 2009 Chase Community Giving Contest
  • Participated in 2009 Qdoba Contest
  • 7 CDH parents got tattoos of graphics we created to help raise CDH Awareness
  • Created over 100 personalized CDH Awareness Ribbons with over 5000 CDH awareness projects
  • DRG Properties Fundraiser
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  • Passed our first IRS audit
  • Began CHERUBS Member Book Club for parents shut in during winter months
  • Created the first CDH Awareness Profile Stickers for Facebook
  • Created 2 CDH Awareness applications for Facebook
  • Created interactive map of where CDH families live to look at possible clusters
  • Created “CDH Superhero” products
  • New Web Site creation begun
  • First “12 Days of CDH Christmas” news event
  • Became sponsored by Kohl’s Department store
  • “We Own CDH Awareness” Video created
  • Congressional Bill for CDH Research written
  • CDH ticker created to count number of babies born with CDH since 2000
  • First “12 Days of CDH Christmas” news event
  • Became sponsored by Kohl’s Department store
  • New Volunteer Paperwork & Guidelines
  • Membership reaches over 3000


2010:
  • CDH Research Site
  • CHERUBS new web site
  • 2010 International Member Conference in Orlando, Florida
  • 2010 "Save the Cherubs" Campaign
  • CDH Research Congressional Bill
  • CDH Research Congressional Bill video
  • CDH Research Congressional Bill web site
  • CDH Awareness Congressional Bill
  • CDH Awareness Congressional Bill video
  • CDH Awareness Congressional Bill web site
  • Continued Fight Against the Trademark on "Congenital Diaphragmatic Hernia Awareness"
  • CDH Awareness Shop web site
  • CDH Awareness E-cards
  • CDH Fundraisers Site
  • CDH Fundraisers brochures and graphics
  • CDH Volunteers Site
  • CDH Hope Site
  • CDH Ribbons Site
  • Hospital Angel volunteer position created
  • CDH HOpeAngel Ball
  • Golf Tournament
  • Halloween Change for Cherubs Awareness Project
  • Ohio Picnic
  • Pennyslviania Picnic
  • NC Zoo Trip
  • CHERUBS Australia Conference
  • CHERUBS UK Conference
  • Ebay Auctions
  • CHERUBS Car Wash
  • CDH Walk
  • CDH Balloon Release
  • CDH Song released
  • CDH Song Video released




CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
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Copyright © 1995-2009.  CHERUBS.  All rights reserved.   Graphics & text created by CHERUBS may be used freely but we ask for a link back to our site.
CHERUBS is an IRS recognized 501(c)III non-profit organization founded in 1995.
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research Awareness and Support
Mailing Address:  3650  Rogers Rd. #290, Wake Forest, NC 27587, USA
Telephone:  919-610-0129    Fax:  815-425-9155    info@cdhsupport.org

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