CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
Throughout
the years we have been very busy and we have accomplished A LOT for
families affected by Congenital Diaphragmatic Hernia through research,
awareness and support!
1995
CHERUBS is founded with 2 members; Dawn Torrence, mom of Shane Torrence, and Rhonda Montague, mom of Preston Montague
- CHERUBS files for an Employee Identification Number, the first step to Non-Profit Status
- CHERUBS is granted an EIN and 501 (c) III Non-Profit Status
- CHERUBS Board of Directors is formed
- Our first issue of our newsletter, The Silver Lining, is published
- CHERUBS Parent Reference Guide was created
1996
- First newspaper article about CHERUBS is printed
- CHERUBS attend our first American Pediatric Surgical Associations conference in San Diego, CA
1997
- CHERUBS first Congenital Diaphragmatic Hernia Research Survey Results are published
- CHERUBS New Member Packets are created
- CHERUBS goes on-line
- CHERUBS web site is created
- CHERUBS first listserv is started
- CHERUBS Prayer List is created
1998
- We have our first Secretary, volunteer Judi Toth, mom of Christopher Toth
- CHERUBS Volunteer Coordinator position is created
- Congenital Diaphragmatic Hernia Research Survey Results are published
- International & State Representatives are created
- Cooking with Cherubs is published
- CHERUBS 1999 Calendars are published
- CHERUBS first bake sale
- CHERUBS first raffle held
- CHERUBS first on-line chats
- CHERUBS membership grows to over 100 CDH families
1999
- CHERUBS is contacted by ABC's 20/20 staff for input on a story of a cherub
- CHERUBS members participate in Noah's Flood ECMO Fundraiser for National Children's Hospital in Washington, DC
- Our first Grieving Parents Get-Together is held outside of Washington, DC
- Congenital Diaphragmatic Hernia Research Survey Results are published
- CHERUBS listservs move to Onelist.com, which becomes Yahoogroups
- A forum for CDH medical professionals is created
- New seperate listservs were created for grieving parents and parents of survivors
- CHERUBS Advisory Committee is created
- CHERUBS Conference Committee is created
- CHERUBS Kids Book Committee is created
- CHERUBS Fundraising Committee is created
- CHERUBS Research Committee is created
- CHERUBS Welcoming Committees are created
- CHERUBS Card Committees are created
- CHERUBS Grant Committee is Created
CHERUBS Welcoming Committees are created
- CHERUBS Totebag Committee is created
- CHERUBS Library Committee is created
- CHERUBS offer parents free web site graphics
- CHERUBS 2000 Calendars are published
- CHERUBS first Lock-In Fundraiser
- CHERUBS first t-shirts and sweatshirts are created
- CHERUBS first Christmas Fairy fundraiser
- Newsletter Tribute fundraiser is started
- CHERUBS membership grows to over 500 CDH families
2000
- Our first CHERUBS International Member Conference is held in Orlando, Florida
- Our first Australia National Member Get-together is held
- Our first Ohio member picnic is held in Columbus, OH
- Congenital Diaphragmatic Hernia Research Survey Results are published
- CHERUBS first message boards were created
- Cooking with Cherubs Volume II is published
- Our first Ebay Auctions are held
- Our first Celebrity Auction is held
- Listservs were created for our various Committees
2001
- Family Circle magazine contacts CHERUBS for input on a story of a cherub
- CHERUBS petition for Certification of Ultrasound Technicians is started
Our first North Carolina member get-together is held outside of Charlotte, NC
- Our first member Candlelighting Ceremony is held
- CHERUBS CDH Video Committee is formed
- CHERUBS Australia creates it's own national web site
- Australia National Member Get-together is held
- Ohio member picnic is held in Columbus, OH
- CHERUBS reaches 1000 members
2002
- CHERUBS moves into it's first office
- Our first Alabama member get-together is held
- Our first Texas member get-together is held
- Our first United Kingdom National Member Get-together is held
- Australia National Member Get-together is held
- CHERUBS 2nd Celebrity Ebay Auction is held
- Ohio member picnic is held in Columbus, OH
- CHERUBS is contacted by Lifetime Televisions "Strong Medicine" for a CDH story line
- CHERUBS membership grows to over 1000 CDH families
2003
- Member Ebay Auction fundraiser is held
- Australia National Member Get-together is held
- United Kingdom National Member Get-together is held
- Ohio member picnic is held in Columbus, OH
2004
- CHERUBS UK is granted Non-Profit Status
- Heidi Cadwell represents CDH parents at the International CDH Study Group Congress in Texas
- CHERUBS Listservs were created for each state and country where we have members
- CHERUBS cafepress store is launched
- Australia National Member Get-together is held
- United Kingdom National Member Get-together is held
- Ohio member picnic is held in Columbus, OH
- CHERUBS 2005 Calendars are published
- CHERUBS Adopt A Cherub Link Program was started
2005
- CHERUBS submits research data for inclusion in the International CDH Study Group Congress in Germany
- Ohio member picnic is held in Columbus, OH
- United Kingdom National Member Get-together is held
- Australia National Member Get-together is held
- CHERUBS membership grows to over 1500 CDH families
2006
- "Stories of Cherubs" is published
- CHERUBS new web site is started
- Ohio member picnic is held in Columbus, OH
- Australia National Member Get-together is held
- United Kingdom National Member Get-together is held
2007
- With several other support groups, CHERUBS founds the Alliance of Congenital Diaphragmatic Hernia Organizations
- CHERUBS Australia files for Non-Profit Status
- CHERUBS Board of Directors welcomes 3 new members
- Angels for CHERUBS is started
- CHERUBS New Member Coordinator position is created
- CHERUBS new web site goes live
- CHERUBS offers parents personal photo albums on-line
- CHERUBS offers parents personal web blogs
- CHERUBS offers dads their own forum
- CHERUBS offers grandparents their own forum
- CHERUBS Angel Ball Committee is formed
- CHERUBS Golf Tournament planning begins
- Ohio member picnic is held in Columbus, OH
- Australia National Member Get-together is held
- United Kingdom National Member Get-together is held
- Michigan get-together is held in Flint, MI
- CHERUBS Posting Contest Started
- ATV Rally Planned
- CDH / NICU Baby Book Committee formed
- Trick-or-Treat for CHERUBS Fundraiser started
- CHERUBS begins affiliate relationship with GoodSearch.com
- First Congenital Diaphragmatic Hernia Information Packet Party held
- CHERUBS undergoes an NC State Department audit and investigation and passes with flying colors
- Congenital Diaphragmatic Hernia Awareness Ribbon Created
- Congenital Diaphragmatic Hernia Awareness Jewelry designing begins
- CDH Awareness Logo created
- CHERUBS Myspace Page created
- CHERUBS Blogger Account created
- CHERUBS Live Space created
- CHERUBS Car Wash is held
- CHERUBS Truffle Sale is held
- CHERUBS is listed with Wikipedia
- Children's Holiday Card Drawing Contest
- Christmas Raffle Idea begun
- Donation Jar Idea begun
- Christmas Fundraising Posters for Stores Idea begun
- Valentine's Day Fundraising Posters for Stores Idea begun
- CHERUBS membership grows to over 2000 CDH families
- CHERUB Web Site averages 300,000 hits per MONTH
2008
- CHERUBS name changed to CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
- 2008 International Member Conference
- Inaugural Angel Ball
- Golf Tournament
- CDH Awareness Video
- 2008 International Member Conference was a huge success!
- CDH Street Signs Awareness Program begun
- CHERUBS On YouTube
- CHERUBS Facebook CDH Cause
- CHERUBS Facebook CDH Group
- CHERUBS Facebook Goodsearch Group
- CHERUBS on Change.org
- Fight Against Congenital Diaphragmatic Hernia at Change.org
- CHERUBS on firstgiving.com
- CHERUBS is chosen out of 55,000 charities to be goodsearch.com charity of the day
- Customizable CDH Awareness Ribbon is created
- Let Me Tell You About CDH Logo is created
- Ask Me About CDH Logo is created
- CDH Awareness Keychains
- CHERUBS on Zazzle.com
- CHERUBS Random Acts of Kindness Cards
- New CDH Logo For Teenagers
- Ohio Member Picnic
- Michigan Member Get-Together
- North Carolina Member Get-Together
- CDH Awareness Bracelets
"Take A Stand Against CDH" campaign started
- Oklahoma City, OK newspaper "The Oklahoman" article
- Raleigh / Durham / Chapel Hill, NC News 14 television interview
- Durham, NC "Herald-Sun" newspaper article
- "CDH Awareness Platform" for Beauty Pageants started
- ATV Rally
- Rochester, IN newspaper article
- National ATV Magazine article
- Carolina News Wire press release
- New Volunteer Software Installed
- 2008 Conference Speech Videos
- Congenital Diaphragmatic Hernia Educational Items added to cafepress
- Anatomy of CDH graphics freely distributed
- Personalized CDH Awareness Ribbons Items added to cafepress
- Gabe's Bowl-a-Thon
- Gift Bag Project Started
- With other
organizations and over 6000 people, CHERUBS leads the fight against the
trademark on the phrase "Congenital Diaphragmatic Hernia Awareness"
- CHERUBS CDH Research Fund Started
- 14 Newspaper Interviews
- 3 Television Interviews
- Happy Birthday Jeremiah Car Show
- Personalized Congenital Diaphragmatic Hernia Awareness Ribbons Begun
- "Stories of Cherubs" Vol. II published
- "Cooking With Cherubs" Vol. III published
- 2009 Photos of Cherubs Calendar published
- CHERUBS Membership Grows to Over 2500 Families
2009
- Michigan Bowl-A-Thon
- Valentine's Day Awareness Fundraisers
- CHERUBS 2009 UK Conference
- 1st CDH Celebrity Spokesperson, Patsy Pease
- CDH Celebrity Spokesperson, Wendy Petty
1st CDH Beauty Pageant Platform given by Wendy Petty
- CDH Celebrity Spokesperson, Jaquetta Taborn
- CDH Celebrity Spokesperson, Rene Couret
- CDH Awareness & Education Posters
- Adopt A Hospital Program Started
- International Congenital Diaphragmatic Hernia Day of Prayer &; Education
- "We Own Congenital Diaphragmatic Hernia Awareness" Video featuring 100's of children born with CDH
- Texas Bake Sale
- Pennsylvania Get-Together
- Spanish CDH Brochure
- German CDH Brochure
- Dutch CDH Brochure
- Portuguese CDH Brochure
- CDH Research Site Begun
- CHERUBS Represents CDH Families at American Pediatric Surgical Association Conference
- CHERUBS Begins Research Work With Over 80 Hospitals In The International CDH Study Group
- Several Interviews for National Media
- CDH Baby Book
- CDH Song and Book Project With The Jammies
- CHERUBS CDH Scholarship Fund Started
- CHERUBS CDH Family Support Fund Started
- CHERUBS CDH Family Assistance Fund Started
- CHERUBS CDH Awareness Fund Started
- CDH Superhero Items Created
- CHERUBS Facebook Page Created
- CHERUBS Twitter Account Created
- Christmas with Kasey Fundraiser
- International Children's Memorial Day
- "Mystery Diagnosis" TV Show
- CHERUBS Non-Profit Status changed from Private to Public
- CDH Kid's Song
- 2009 International Member Conference in San Antonio, Texas
Chase Giving Contest Participation
- 2010 CDH Cherubs Calendar
- CDH Awareness Kits created
- CDH HOPE Totebag project renamed and began
- Over 50 totebags sent to new and expectant CDH families
- 2 Legal Firms sign on pro bono to help fight the CDH Awareness Trademark
- Collaborated with 4 more hospitals to promote their CDH research studies
- First CHERUBS HOPE Totebag delivered
- Over 50 HOPE Totebags sent to new and expectant CDH Parents
- CDH Research Site created
- Began collaboration with International CDH Study Group
- CDH Kids Song
- “Never Let You Go” Song recorded for CDH families
- “Never Let You Go” video created
- CDH Conference Videos
- CDH Blog Ring created
- Free blogger templates created
- Holiday CDH Awareness Logos Created
- More CDH Awareness Graphics Created
- CDH Awareness Ribbon ornaments created and sold
- Diaper cake fundraiser
- Caleb’s Birthday Packet Party was held
- Published preliminary CDH Research Survey Results Published over 100 articles on our blog
- 3 Daytime Emmy Awards donated
- Holiday Jewelry Fundraiser
- Placed in the Top 3 of the 2009 Intel Vote for a Cause contest out of 1000’s of charities
- Participated in 2009 Chase Community Giving Contest
- Participated in 2009 Qdoba Contest
- 7 CDH parents got tattoos of graphics we created to help raise CDH Awareness
- Created over 100 personalized CDH Awareness Ribbons with over 5000 CDH awareness projects
DRG Properties Fundraiser
<>>- Passed our first IRS audit
- Began CHERUBS Member Book Club for parents shut in during winter months
- Created the first CDH Awareness Profile Stickers for Facebook
- Created 2 CDH Awareness applications for Facebook
- Created interactive map of where CDH families live to look at possible clusters
- Created “CDH Superhero” products
- New Web Site creation begun
- First “12 Days of CDH Christmas” news event
- Became sponsored by Kohl’s Department store
- “We Own CDH Awareness” Video created
- Congressional Bill for CDH Research written
- CDH ticker created to count number of babies born with CDH since 2000
- First “12 Days of CDH Christmas” news event
- Became sponsored by Kohl’s Department store
- New Volunteer Paperwork & Guidelines
- Membership reaches over 3000
2010:
- CDH Research Site
- CHERUBS new web site
- 2010 International Member Conference in Orlando, Florida
- 2010 "Save the Cherubs" Campaign
- CDH Research Congressional Bill
- CDH Research Congressional Bill video
- CDH Research Congressional Bill web site
- CDH Awareness Congressional Bill
- CDH Awareness Congressional Bill video
- CDH Awareness Congressional Bill web site
- Continued Fight Against the Trademark on "Congenital Diaphragmatic Hernia Awareness"
- CDH Awareness Shop web site
- CDH Awareness E-cards
- CDH Fundraisers Site
- CDH Fundraisers brochures and graphics
- CDH Volunteers Site
- CDH Hope Site
- CDH Ribbons Site
- Hospital Angel volunteer position created
Angel Ball
- Golf Tournament
- Halloween Change for Cherubs Awareness Project
- Ohio Picnic
- Pennyslviania Picnic
- NC Zoo Trip
- CHERUBS Australia Conference
- CHERUBS UK Conference
- Ebay Auctions
- CHERUBS Car Wash
- CDH Walk
- CDH Balloon Release
- CDH Song released
- CDH Song Video released
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