Facebook Matches Donations on Giving Tuesday

The holiday season has arrived, and we invite you to kick it off with us on GivingTuesday! #GivingTuesday is a global day of giving back. On the Tuesday following Thanksgiving, you’ll have the chance to join people around the world and support a cause close to your heart. Support CDH International as your cause on November 27th, https://www.facebook.com/cdhintl/

Per Facebook at https://www.facebook.com/GivingTuesday

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CHERUBS Totebag Program

CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers.  Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia. A totebag will be mailed out if your child is home from the NICU upon joining CHERUBS and it has been 4 months since your child’s birthday. Totebags may include any or some of the donated items listed below. Included with each totebag is CDH information, CDH awareness items and gifts for the baby on the way. To receive a totebag, please join CHERUBS at www.cherubs.org and a totebag will be mailed within 2 weeks of joining CHERUBS.  

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Featured Doctor: Dr. David Kays, M.D.

We want to thank Dr. David Kays, M.D., with John Hopkins All Children’s Hospital for Bringing Hope Around the World to our CDH Families.

Deborah Hidalgo, mom to cherub Joseph, had this to say about Dr. Kays:  “Our son, Joseph was diagnosed with left sided CDH with liver up, January 18, 2010. We were devastated and told by 3 doctors to terminate the pregnancy; there was no way that was happening. So we started researching everything we could find on this defect we had never heard of. My mother-in-law found Kay's Kids and asked us to look at it. So we read their stories and even contacted some of the parents on the forum. This led us to David Kays in Gainesville, FL. We met with him and conferenced with him for 3 hours. He showed us other children he had helped, he knew them all by name and where they were. Then he personally led us on a tour of the NICU and even missed a dinner date with his wife to continue talking with us. By the end, he gave us an 80% survival rate for Joseph and we decided that was the place to go.

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Featured Cherub: Jeremy Shane Torrence

Featured cherub of the week is Jeremy Shane Torrence, "Shane".  Shane was born with left-sided CDH and multiple birth defects and passed away at the age of 6. CHERUBS was created in February 1995 by Dawn M. Ireland.  Dawn is the mom of Shane (1/28/93-9/11/99).  Immediately after Shane's birth, she searched for a support group, but there were none available that could help her.  After spending hundreds of hours in the hospital's medical library and finding support only from parents met at the hospital, Dawn felt a great need for a CDH support group.

With the help of Shane's surgeon, Dr. Lesli Taylor, and the support of Shane's father, Shane's nurses, and friends made at the hospital, CHERUBS was started.  CHERUBS is founded in memory of, and named for, Preston Montague and Andrea Jones, two very special CDH babies that were Shane's hospital roommates, and for all CDH babies that do not survive.

It is truly a grassroots organization, created when there was nothing.   There was no internet, no other support groups to turn to or model after.  They were just CDH parents trying to make the world a better place for families like ours.  CHERUBS started out very small with just a typewriter, kitchen table, $100.00 in donations, and 2 members.

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Featured Volunteer: Alicia Gilbert

Featured volunteer of the week is Alicia Gilbert. Alicia is the mother of CDH angel Jayden Scott Gilbert. Jayden was diagnosed with CDH in the Fall of 2009 at 17 weeks gestation. Alicia fought through a long list of complications and delivered Jayden a month early after which he spent 7 days on ECMO. After coming off ECMO, he had complications due to Pulmonary Hypertension & kidney failure and grew his wings at 23 days old on March 14, 2010.

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News from CHERUBS

Featured Cherub: Canyon Ryse Cason

Featured cherub of the week is Canyon Ryse Cason, born April 22, 2018, took a breath and went straight into the arms of the Lord, forever in our hearts.

His parents, Randi and Chris Cason, had this to share about their son:

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Featured Cherub: Tanner Kelly

Featured cherub of the week is Tanner Kelly, the son of Shaun and Justine Kelly.  Tanner will turn 3 on December 28th.

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Featured Cherub: Joshua Moran Lopez

Featured Cherub of the week is cherub Joshua Moran Lopez.  Joshua is the son of Sam and Jennifer Moran Lopez and has one brother, Jacob.  In honor of Joshua’s 10th birthday back in October, his mom put together a video of his life and to raise CDH Awareness. 

His mom wrote this message about the video she created for his birthday, “10 years ago, at this very time we were headed to Emanuel hospital for the birth of our first child! Something I had always dreamed of. Every parents dream come true! But for us, it was different. We were excited, but there were so many unknowns. I have to say, the second half of my pregnancy was very, very stressful. I cried every day, the fear that the doctors put in me that my son would not make it was very hard to comprehend. I was young, wanted so badly to be a mother, was carrying my first child, yet I didn’t even know if I would even get to bring him home with us. Leading up to this day, every day for four months it was all I could think about. I spent a lot of time on the internet looking up stories about other CDH babies. There were more sad stories than happy endings. I didn’t know what to think. I knew the only thing we could do was continue praying and trusting that God had a plan, in hopes that that plan was what I was hoping and praying it would be. Looking back on that day, even though I had been worrying all day every day, the day of a Joshua’s birth, I felt at peace, like everything was going to be okay. I trusted in God that He had it all under control. Looking back at that day, I really don’t think I ever worried or thought about the fact that he might not make it. I felt at peace that he was going to be okay.

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2017 - News from CHERUBS

Featured Cherub: Canyon Ryse Cason

Featured cherub of the week is Canyon Ryse Cason, born April 22, 2018, took a breath and went straight into the arms of the Lord, forever in our hearts.

His parents, Randi and Chris Cason, had this to share about their son:

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Featured Cherub: Tanner Kelly

Featured cherub of the week is Tanner Kelly, the son of Shaun and Justine Kelly.  Tanner will turn 3 on December 28th.

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Featured Cherub: Joshua Moran Lopez

Featured Cherub of the week is cherub Joshua Moran Lopez.  Joshua is the son of Sam and Jennifer Moran Lopez and has one brother, Jacob.  In honor of Joshua’s 10th birthday back in October, his mom put together a video of his life and to raise CDH Awareness. 

His mom wrote this message about the video she created for his birthday, “10 years ago, at this very time we were headed to Emanuel hospital for the birth of our first child! Something I had always dreamed of. Every parents dream come true! But for us, it was different. We were excited, but there were so many unknowns. I have to say, the second half of my pregnancy was very, very stressful. I cried every day, the fear that the doctors put in me that my son would not make it was very hard to comprehend. I was young, wanted so badly to be a mother, was carrying my first child, yet I didn’t even know if I would even get to bring him home with us. Leading up to this day, every day for four months it was all I could think about. I spent a lot of time on the internet looking up stories about other CDH babies. There were more sad stories than happy endings. I didn’t know what to think. I knew the only thing we could do was continue praying and trusting that God had a plan, in hopes that that plan was what I was hoping and praying it would be. Looking back on that day, even though I had been worrying all day every day, the day of a Joshua’s birth, I felt at peace, like everything was going to be okay. I trusted in God that He had it all under control. Looking back at that day, I really don’t think I ever worried or thought about the fact that he might not make it. I felt at peace that he was going to be okay.

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