Pennsylvania Proclaims CDH Awareness Day

The state of Pennsylvania has proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

The towns of Philadelphia, Hanover, Pittsburg and Scranton and the County of Alleghany, Pennsylvania have proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

 

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New Mexico Proclaims CDH Awareness Day

The state of New Mexico has proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

The town of Portales, New Mexico has proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

 

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North Carolina Proclaims CDH Awareness Day

The state of North Carolina has proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

The towns of Charlotte, Clayton, Hickory, Holly Springs, Mebane, North Wilkesboro, Surf City, Taylorsville, Wake Forest, Wilmington and Winston-Salem, NC have proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

 

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New Hampshire Proclaims CDH Awareness Day

The state of New Hampshire has proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

The town of Hollis, New Hampshire has proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

 

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Nebraska Proclaims CDH Awareness Day

The state of Nebraska has proclaimed April 19th a Day of Congenital Diaphragmatic Hernia Awareness.

 

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News from CHERUBS

Featured Volunteer: Melanie Hensley

Volunteer Melanie Hensley is our volunteer of the week.  Melanie is a member of our Welcoming Committee and volunteers anywhere else we need help with.  We appreciate her so much and are so happy she is a part of our team.  Melanie is the mom to 4 beautiful girls. 

Melanie Hensley is the mother of two CDH babies, both of whom grew their wings.

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Featured Medical Staff: Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson

We would like to thank Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson with OSF Saint Francis Medical Center in Peoria, Illinois, for Bringing Hope Around the World to our CDH Families! This wonderful doctor and nurses were brought to our attention by Terry King German, mom to cherub Skylar, “we can NEVER thank these angels on earth enough for saving the life of our sweet miracle, Skylar!!!!”

Dr. Macwan was known to many as the “magician of ventilators and the Yoda of CDH.”  CDH families and various OSF Staff recently said goodbye to Dr. Macwan at the CDH Family Picnic in September and celebrated his retirement. 

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Featured Cherub: Chris Cavalier

Our featured cherub of the week is Chris Cavalier.  Chris is a 32 year old survivor of CDH.  His CDH story can be found on his family’s website at http://ecmosurvivor.com.  A book about him has also been published and is available through Amazon and in stores at Barnes and Noble, the title is "Alive by Grace: A Mother's Story with a Message of Hope from Christopher.”

Here is an excerpt of Christopher’s story, written by his mom, Suzanne Cavalier:

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2017 - News from CHERUBS

Featured Volunteer: Melanie Hensley

Volunteer Melanie Hensley is our volunteer of the week.  Melanie is a member of our Welcoming Committee and volunteers anywhere else we need help with.  We appreciate her so much and are so happy she is a part of our team.  Melanie is the mom to 4 beautiful girls. 

Melanie Hensley is the mother of two CDH babies, both of whom grew their wings.

Read more...

Featured Medical Staff: Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson

We would like to thank Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson with OSF Saint Francis Medical Center in Peoria, Illinois, for Bringing Hope Around the World to our CDH Families! This wonderful doctor and nurses were brought to our attention by Terry King German, mom to cherub Skylar, “we can NEVER thank these angels on earth enough for saving the life of our sweet miracle, Skylar!!!!”

Dr. Macwan was known to many as the “magician of ventilators and the Yoda of CDH.”  CDH families and various OSF Staff recently said goodbye to Dr. Macwan at the CDH Family Picnic in September and celebrated his retirement. 

Read more...

Featured Cherub: Chris Cavalier

Our featured cherub of the week is Chris Cavalier.  Chris is a 32 year old survivor of CDH.  His CDH story can be found on his family’s website at http://ecmosurvivor.com.  A book about him has also been published and is available through Amazon and in stores at Barnes and Noble, the title is "Alive by Grace: A Mother's Story with a Message of Hope from Christopher.”

Here is an excerpt of Christopher’s story, written by his mom, Suzanne Cavalier:

Read more...