Featured Volunteer: Alicia Gilbert

Featured volunteer of the week is Alicia Gilbert. Alicia is the mother of CDH angel Jayden Scott Gilbert. Jayden was diagnosed with CDH in the Fall of 2009 at 17 weeks gestation. Alicia fought through a long list of complications and delivered Jayden a month early after which he spent 7 days on ECMO. After coming off ECMO, he had complications due to Pulmonary Hypertension & kidney failure and grew his wings at 23 days old on March 14, 2010.

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Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

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New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic

 

Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

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Featured Volunteer: Michele Sengsourya

This week’s featured volunteer is Michele Sengsourya. Michele is the mommy of Cherub Einya Elizabeth Sengsourya, who was born on October 23, 2012 and passed away on November 17, 2012. Michele does so much in memory of her baby girl and recently helped us with the CDH International booth at the AAP 2018 conference in Orlando, Florida.

Thank you for all you do, Michele! We appreciate you very much.

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News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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