Vote Daily in the CDH Research Grant Contest

We are in the midst of our 2014 CDH Research Grant Contest !

Current 10 Top for December 17:

1. Shands at the University of Florida - 1196
2. Cincinnati Children's Hospital and Medical Center - 661
3. The Center for Fetal Diagnosis and Treatment at CHOP - 531
4. DHREAMS Research Study (Congenital Diaphragmatic Hernia) Lab - 530
5. Boston Children's Hospital CDH Clinic - 315
6. St. Louis Fetal Care Institute - 161
7. Scottish Congenital Diaphragmatic Hernia Clinical Network - 87
8. UCSF Fetal Treatment Center - 85
9. The Hospital for Sick Children Toronto - 80
10. Mass General CDH Genetic Research Study - 18

Only the Top 5 will make it to Phase 2 on December 20th, when the vote count resets for the final 10 day showdown! Click here to vote!

Vote daily at http://woobox.com/ab54sc

Right now, our grant prize is just $3000. To increase it, we need donations to our CDH Research Fund and to sell more CDH 50/50 Raffle Tickets.

Make a donation - http://www.cherubs-cdh.org/awareness/2013-07-29-20-06-27…

Purchase raffle tickets - http://www.cherubs-cdh.org/awareness/2013-07-29-20-06-27…

VOTE at http://woobox.com/ab54sc

Check out this video by a past CDH Research Grant recipient - http://youtu.be/i33CQIvGDvI

2014 National Children's Memorial Day

We remembered the following cherubs and their families this National Children's Memorial Day:

Read more...

National Children's Memorial Day 2014

 
Candles will be lit at 7:00 pm in all time zones so that there will be constant light around the world in memory of our children in Heaven.
 
The 2014 National Children's Memorial Day is Sunday, December 14th. At 7:00 pm in each time zone, people will be lighting candles to remember all children lost.

The World Census Bureau estimates that in 2008 over 350,000 babies were born in the world every day = 147 babies will be born with CDH every day. That is OVER 53,000 BABIES BORN EACH YEAR WITH CDH. Over 26,000 do not survive. Help CHERUBS fight CDH.

Over a half million babies have been affected by Congenital Diaphragmatic Hernia since 2000. This means that over a quarter of a million babies have have been lost to this devastating birth defect. Over 800 babies are lost to CDH in the United States alone each year.

Read more...

New Funeral Assistance Fund

We have started a fund to help families bury their cherubs. 

Read more...

2014 CDH Research Grant Contest

 

VOTING HAS BEGUN! Vote once a day, every day until December 30th for your favorite CDH organization to win research grant money!

http://woobox.com/ab54sc

23 CDH Research Centers from around the world in the running to win a Research Grant to the center with the most votes on December 31st.   

Read more...

News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...