Featured Medical Staff: Cincinnati Children’s Hospital

We want to thank Foong-Yen Lim, MD, Paul S. Kingma, MD, PhD, Melissa Kingma, NP, Emmie (Coordinator) and Courtney Lewicki (RN) of Cincinnati Children’s Hospital for Bringing Hope Around the World to our CDH families. 

This medical team was brought to us by Lisa Baxter, mom to 4 year old cherub Lindsey.  This is what Lisa had to say about these amazing doctors, nurses and medical professionals, “Cincinnati is one of the hospitals around the country that specializes in CDH cases and sees many cases each year. When Lindsey was diagnosed with CDH along with 2 heart defects that had never been seen combined, they gave us hope when others couldn't. Their team of doctors and specialists were open and honest through our entire journey and always there when we had questions or needed clarification. Dr. Lim and everyone who worked on Lindsey's case are my heroes. I am confident when I say we made the right choice by uprooting our lives and gave Lindsey the best at life.

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Facebook Matches Donations on Giving Tuesday

The holiday season has arrived, and we invite you to kick it off with us on GivingTuesday! #GivingTuesday is a global day of giving back. On the Tuesday following Thanksgiving, you’ll have the chance to join people around the world and support a cause close to your heart. Support CDH International as your cause on November 27th, https://www.facebook.com/cdhintl/

Per Facebook at https://www.facebook.com/GivingTuesday

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Featured Cherub: Jeremy Shane Torrence

Featured cherub of the week is Jeremy Shane Torrence, "Shane".  Shane was born with left-sided CDH and multiple birth defects and passed away at the age of 6. CHERUBS was created in February 1995 by Dawn M. Ireland.  Dawn is the mom of Shane (1/28/93-9/11/99).  Immediately after Shane's birth, she searched for a support group, but there were none available that could help her.  After spending hundreds of hours in the hospital's medical library and finding support only from parents met at the hospital, Dawn felt a great need for a CDH support group.

With the help of Shane's surgeon, Dr. Lesli Taylor, and the support of Shane's father, Shane's nurses, and friends made at the hospital, CHERUBS was started.  CHERUBS is founded in memory of, and named for, Preston Montague and Andrea Jones, two very special CDH babies that were Shane's hospital roommates, and for all CDH babies that do not survive.

It is truly a grassroots organization, created when there was nothing.   There was no internet, no other support groups to turn to or model after.  They were just CDH parents trying to make the world a better place for families like ours.  CHERUBS started out very small with just a typewriter, kitchen table, $100.00 in donations, and 2 members.

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CHERUBS Totebag Program

CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.

Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers.  Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia. A totebag will be mailed out if your child is home from the NICU upon joining CHERUBS and it has been 4 months since your child’s birthday. Totebags may include any or some of the donated items listed below. Included with each totebag is CDH information, CDH awareness items and gifts for the baby on the way. To receive a totebag, please join CHERUBS at www.cherubs.org and a totebag will be mailed within 2 weeks of joining CHERUBS.  

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Featured Doctor: Dr. David Kays, M.D.

We want to thank Dr. David Kays, M.D., with John Hopkins All Children’s Hospital for Bringing Hope Around the World to our CDH Families.

Deborah Hidalgo, mom to cherub Joseph, had this to say about Dr. Kays:  “Our son, Joseph was diagnosed with left sided CDH with liver up, January 18, 2010. We were devastated and told by 3 doctors to terminate the pregnancy; there was no way that was happening. So we started researching everything we could find on this defect we had never heard of. My mother-in-law found Kay's Kids and asked us to look at it. So we read their stories and even contacted some of the parents on the forum. This led us to David Kays in Gainesville, FL. We met with him and conferenced with him for 3 hours. He showed us other children he had helped, he knew them all by name and where they were. Then he personally led us on a tour of the NICU and even missed a dinner date with his wife to continue talking with us. By the end, he gave us an 80% survival rate for Joseph and we decided that was the place to go.

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News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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