Featured Doctor: Dr. David Kays, M.D.

We want to thank Dr. David Kays, M.D., with John Hopkins All Children’s Hospital for Bringing Hope Around the World to our CDH Families.

Deborah Hidalgo, mom to cherub Joseph, had this to say about Dr. Kays:  “Our son, Joseph was diagnosed with left sided CDH with liver up, January 18, 2010. We were devastated and told by 3 doctors to terminate the pregnancy; there was no way that was happening. So we started researching everything we could find on this defect we had never heard of. My mother-in-law found Kay's Kids and asked us to look at it. So we read their stories and even contacted some of the parents on the forum. This led us to David Kays in Gainesville, FL. We met with him and conferenced with him for 3 hours. He showed us other children he had helped, he knew them all by name and where they were. Then he personally led us on a tour of the NICU and even missed a dinner date with his wife to continue talking with us. By the end, he gave us an 80% survival rate for Joseph and we decided that was the place to go.

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Featured Volunteer: Alicia Gilbert

Featured volunteer of the week is Alicia Gilbert. Alicia is the mother of CDH angel Jayden Scott Gilbert. Jayden was diagnosed with CDH in the Fall of 2009 at 17 weeks gestation. Alicia fought through a long list of complications and delivered Jayden a month early after which he spent 7 days on ECMO. After coming off ECMO, he had complications due to Pulmonary Hypertension & kidney failure and grew his wings at 23 days old on March 14, 2010.

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Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

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Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

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New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic

 

Featured Volunteer: Michele Sengsourya

This week’s featured volunteer is Michele Sengsourya. Michele is the mommy of Cherub Einya Elizabeth Sengsourya, who was born on October 23, 2012 and passed away on November 17, 2012. Michele does so much in memory of her baby girl and recently helped us with the CDH International booth at the AAP 2018 conference in Orlando, Florida.

Thank you for all you do, Michele! We appreciate you very much.

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Featured Cherub: Liz Plakholm

Featured cherub of the week is Liz Plakholm. Liz is a 16 year old survivor of CDH. On June 18, 2018, Liz held her 6th Annual Walk for CHERUBS.  It was a huge success! She has raised more than $14,525 in total over those 6 years. Liz is the daughter to our Canada Representative, Amanda Plakholm. We appreciate both mom and daughter for all they do for CDH Awareness and volunteering for the charity. 

Amanda Plakholm wrote this about her daughter, Liz:

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Featured Doctor: Dr. Wendy Chung, MD, PhD

This week we want to thank Dr Wendy Chung, MD, PhD, with Columbia University and DHREAMS for Bringing Hope Around the World to our CDH Families. She is a superhero in our CDH community and to many other rare disease communities and organizations. She’s a genetics genius, a pediatric surgeon, has helped to establish countless Standards of Care, is revered in many communities, is one of our Medical Advisory Board Members at CDH International, and has always gone above and beyond to help our CDH kids.

On November 1st, Columbia Children’s Health posted to Facebook that pediatric geneticist, Dr. Wendy Chung, received the New York Academy of Medicine Medal for Distinguished Contributions in Biomedical Science for her global leadership in the diagnosis and treatment of rare diseases.  Through her work, she has identified more than 41 new genes for human diseases. Congratulations Dr. Chung!

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New Product in Online Store: CDHi’s “Merry Christmas” Angel Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic
 
 

News from CHERUBS

Featured Volunteer: Kevin Dubray

Featured volunteer of the week is Kevin Dubray. Kevin is our International Canada Representative and dad to angel cherub Lucas.

My name is Kevin Dubray from Thunder Bay, Ontario Canada. I am father of Lucas Emmet born March 5th, 2015 with severe RCDH. Lucas survived a short 24 hours before earning his wings. I also have 3 other children Kaylen, Jessalyn and Jaci, as well as rainbow baby, Jacob Emmet, born Oct 25th, 2016.

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Featured Cherub: Canyon Ryse Cason

Featured cherub of the week is Canyon Ryse Cason, born April 22, 2018, took a breath and went straight into the arms of the Lord, forever in our hearts.

His parents, Randi and Chris Cason, had this to share about their son:

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Featured Cherub: Tanner Kelly

Featured cherub of the week is Tanner Kelly, the son of Shaun and Justine Kelly.  Tanner will turn 3 on December 28th.

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2017 - News from CHERUBS

Featured Volunteer: Kevin Dubray

Featured volunteer of the week is Kevin Dubray. Kevin is our International Canada Representative and dad to angel cherub Lucas.

My name is Kevin Dubray from Thunder Bay, Ontario Canada. I am father of Lucas Emmet born March 5th, 2015 with severe RCDH. Lucas survived a short 24 hours before earning his wings. I also have 3 other children Kaylen, Jessalyn and Jaci, as well as rainbow baby, Jacob Emmet, born Oct 25th, 2016.

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Featured Cherub: Canyon Ryse Cason

Featured cherub of the week is Canyon Ryse Cason, born April 22, 2018, took a breath and went straight into the arms of the Lord, forever in our hearts.

His parents, Randi and Chris Cason, had this to share about their son:

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Featured Cherub: Tanner Kelly

Featured cherub of the week is Tanner Kelly, the son of Shaun and Justine Kelly.  Tanner will turn 3 on December 28th.

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