Featured Volunteer: Shelly Moore
Featured volunteer of the week is Shelly Moore. Shelly is mother to 3 adult children and 3 grandchildren, the youngest being her Cherub angel grandson, Jayden Gilbert, who lost his battle to CDH and kidney failure due to pulmonary hypertension complications at 23 days old on March 14, 2010.
She is currently serving as the CHERUBS Oregon State Representative as well as sharing CHERUBS Hospital Angel duties with her daughter Alicia Gilbert, mother to Jayden. She also served several years on the CHERUBS Parent Advisory Board (CPAB) and several years on various committees within CHERUBS.
Featured Medical Staff: Cincinnati Children’s Hospital
We want to thank Foong-Yen Lim, MD, Paul S. Kingma, MD, PhD, Melissa Kingma, NP, Emmie (Coordinator) and Courtney Lewicki (RN) of Cincinnati Children’s Hospital for Bringing Hope Around the World to our CDH families.
This medical team was brought to us by Lisa Baxter, mom to 4 year old cherub Lindsey. This is what Lisa had to say about these amazing doctors, nurses and medical professionals, “Cincinnati is one of the hospitals around the country that specializes in CDH cases and sees many cases each year. When Lindsey was diagnosed with CDH along with 2 heart defects that had never been seen combined, they gave us hope when others couldn't. Their team of doctors and specialists were open and honest through our entire journey and always there when we had questions or needed clarification. Dr. Lim and everyone who worked on Lindsey's case are my heroes. I am confident when I say we made the right choice by uprooting our lives and gave Lindsey the best at life.
Facebook Matches Donations on Giving Tuesday
The holiday season has arrived, and we invite you to kick it off with us on GivingTuesday! #GivingTuesday is a global day of giving back. On the Tuesday following Thanksgiving, you’ll have the chance to join people around the world and support a cause close to your heart. Support CDH International as your cause on November 27th, https://www.facebook.com/cdhintl/
Per Facebook at https://www.facebook.com/GivingTuesday
CHERUBS Totebag Program
CHERUBS H.O.P.E. (Helping Other Parents Expecting) Totebag Program assists families expecting babies born with Congenital Diaphragmatic Hernia by providing them with much needed free information and support items through a community project in which all CDH families can participate and honor their children while helping new families affected by Congenital Diaphragmatic Hernia.
Donated items are collected by our members, CDH families and friends and put together into totebags by volunteers. Totebags are then mailed to families who are expecting babies born with CDH or who have newborns still hospitalized and battling Congenital Diaphragmatic Hernia. A totebag will be mailed out if your child is home from the NICU upon joining CHERUBS and it has been 4 months since your child’s birthday. Totebags may include any or some of the donated items listed below. Included with each totebag is CDH information, CDH awareness items and gifts for the baby on the way. To receive a totebag, please join CHERUBS at www.cherubs.org and a totebag will be mailed within 2 weeks of joining CHERUBS.
Featured Cherub: Jeremy Shane Torrence
Featured cherub of the week is Jeremy Shane Torrence, "Shane". Shane was born with left-sided CDH and multiple birth defects and passed away at the age of 6. CHERUBS was created in February 1995 by Dawn M. Ireland. Dawn is the mom of Shane (1/28/93-9/11/99). Immediately after Shane's birth, she searched for a support group, but there were none available that could help her. After spending hundreds of hours in the hospital's medical library and finding support only from parents met at the hospital, Dawn felt a great need for a CDH support group.
With the help of Shane's surgeon, Dr. Lesli Taylor, and the support of Shane's father, Shane's nurses, and friends made at the hospital, CHERUBS was started. CHERUBS is founded in memory of, and named for, Preston Montague and Andrea Jones, two very special CDH babies that were Shane's hospital roommates, and for all CDH babies that do not survive.
It is truly a grassroots organization, created when there was nothing. There was no internet, no other support groups to turn to or model after. They were just CDH parents trying to make the world a better place for families like ours. CHERUBS started out very small with just a typewriter, kitchen table, $100.00 in donations, and 2 members.
Featured Doctor: Dr. David Kays, M.D.
We want to thank Dr. David Kays, M.D., with John Hopkins All Children’s Hospital for Bringing Hope Around the World to our CDH Families.
Deborah Hidalgo, mom to cherub Joseph, had this to say about Dr. Kays: “Our son, Joseph was diagnosed with left sided CDH with liver up, January 18, 2010. We were devastated and told by 3 doctors to terminate the pregnancy; there was no way that was happening. So we started researching everything we could find on this defect we had never heard of. My mother-in-law found Kay's Kids and asked us to look at it. So we read their stories and even contacted some of the parents on the forum. This led us to David Kays in Gainesville, FL. We met with him and conferenced with him for 3 hours. He showed us other children he had helped, he knew them all by name and where they were. Then he personally led us on a tour of the NICU and even missed a dinner date with his wife to continue talking with us. By the end, he gave us an 80% survival rate for Joseph and we decided that was the place to go.
Featured Volunteer: Josh Hensley
Josh Hensley is the father of two CDH babies, both of whom grew their wings. It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.
Featured Volunteer: Alicia Gilbert
Featured volunteer of the week is Alicia Gilbert. Alicia is the mother of CDH angel Jayden Scott Gilbert. Jayden was diagnosed with CDH in the Fall of 2009 at 17 weeks gestation. Alicia fought through a long list of complications and delivered Jayden a month early after which he spent 7 days on ECMO. After coming off ECMO, he had complications due to Pulmonary Hypertension & kidney failure and grew his wings at 23 days old on March 14, 2010.
Featured Cherub: Phoebe Kleensang
Featured cherub of the week is 5 year old Phoebe Kleensang. Phoebe is the daughter of Megan and Aaron Kleensang. Cherub Phoebe is a fighter and such an inspiration to many!
This is Phoebe’s story, written by her mom Megan: