2017 CDH Conference

Our 2017 International CHERUBS CDH Conference was a huge success.

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University of Texas CDH Reunion

CDHi President, Dawn Ireland, visit the University of Texas

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Introducing Rachael Eller

We would like to welcome our new Office Manager and Research Database Administrator, Rachael Eller.

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PRESS RELEASE: New Organization Leads the Way in CDH Research

PRESS RELEASE:
For immediate release

New Organization Leads the Way in CDH Research

20 year old charity expands to raise survival rates for birth defect.

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Finish up the CDH Survey - Get a FREE Hat!

The CDH Research Survey went live on April 1st but in order to take full advantage of all research opportunities, we need ALL families to fill out the complete CDH Research Survey.  

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Have you registered for the 2017 CDH Conference in July in SLC?

Make sure to register to attend the largest annual CDH event and the first conference in the midwest in several years!

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Games for James Fundraiser on June 3, 2017 in Plano, TX

​Join us in Plano, Texas for a great time at the first "Games for James" Softball Tournament in memory of cherub James Ly.

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Carshow Carnival on June 24th in Lewiston, Idaho

Join us on June 24th at Locomotive Park for a fun car show put on by Girl Scout Troop 2601

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Lizzy's Walk For Cherubs - June 17, 2017 in Ontario, Canada

Join us on Saturday, June 17 at 10 AM - 1 PM EST in Chepstow, Ontario, Canada

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News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...