Holiday Vendor Event

Shop for a cause this holiday season and support CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support! 20% of all orders from this event/group will be donated to CHERUBS and help families affected by CDH. Interested in becoming a vendor? Contact This email address is being protected from spambots. You need JavaScript enabled to view it. .

CLICK HERE to join our Facebook group to shop!

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2016 Angel Club Member Drive

 

 

Sign up via the form on the right side of every page!

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2016 CDH Research Fundraiser Tickets Are On Sale Now!

Purchase tickets or sell tickets and you could win Roundtrip Airline Tickets!

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Announcing 2016 CHERUBS CDH Scholarship Winners

BREAKING NEWS!!
 
2016 CHERUBS CDH Scholarship Winners

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Senate Passes Sessions-Led Resolution Recognizing April As Congenital Diaphragmatic Hernia Awareness Month

WASHINGTON-U.S Senator Jeff Sessions (R-AL) issued the following statement after the Senate unanimously passed his resolution designation April 2016 as National Congenital Diaphragmatic Hernia (CDH) Awareness Month. Sessions' grandson, Jim Beau, was born with CDH:

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CHERUBS 2015 Year In Review

Thank you all for helping us to accomplish many goals this year!  We look forward to gaining new ground for our cause in 2016!

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2015 CDH Research Contest Winners

And the winner is...

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Cherub Connor with Santa

Now with the holidays basically here, we long to hold our sweet boy even more, dress him in cute Christmas outfits, watch him open his presents from under the tree, and even little things, like taking pictures with “Santa”. This week I was inspired by another picture like this and knew in my heart I had to do it! My husband was very excited too. As parents of an angel, you don’t get to do many “normal parent” things, but this was something we could still do and honor our beautiful son. I won’t lie, it was very emotional and as the tears were streaming down my face, I was so touched by how thoughtful and warm hearted “Santa” and his helpers were. They made this moment even more special for us. Making memories with our son isn’t something I thought we would be able to do after he passed but I was wrong. We include him in our family traditions as much as possible, and speak his name often. We are so proud of him and honoring him in small ways like this, is the least we can do. What an incredible life he served, and the impact he left is still all around us! We love you Connor Michael.

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News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

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Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

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3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

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2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...