PRESS RELEASE: Senators, Governors, Mayors and Families Raise Congenital Diaphragmatic Hernia Awareness on April 19th

PRESS RELEASE: Senators, Governors, Mayors and Families Raise Congenital Diaphragmatic Hernia Awareness on April 19th

FOR IMMEDIATE RELEASE

Media Contact:
Dawn Williamson
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40 States and the U.S. Senate proclaim awareness for little known birth defect that strikes 100’s of babies each year in the United States.

WAKE FOREST, NC (April 15, 2014) – It’s been a whirlwind few years for grassroots charity, CHERUBS, in their quest to raise awareness of Congenital Diaphragmatic Hernia.

Since the first small event on April 19th, a parade in Raleigh, North Carolina in 2011, the organization’s efforts have grown exponentially with other charity members of the Alliance of Congenital Diaphragmatic Hernia Organizations (ACDHO).   In 2012 and 2013, families descended upon Capitol Hill to meet with Senator Jeff Sessions (R-AL), who along with Senator Ben Cardin (D-MD), have sponsored Resolutions to make April “Congenital Diaphragmatic Hernia Awareness Month”.   On April 7, 2014, once again the Senate unanimously approved a Resolution for CDH Awareness with the passing of S. Res. 144.

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Dare Me For Charity Contest

CHERUBS is officially a participating charity of the television charity contest show "Dare Me For Charity" with teams in 15 cities so far.   We are competing for $1 Million in prize money by bravely jumping large heights, raising donations and gathering votes - along with other, top-secret contests. 

We need YOUR help!  Are you brave?  Ready to raise CDH Awareness and funds on television?   Want to do something incredible in honor or in memory of your cherub?  Join us!

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CDH Angel Club - Cherubs Who Are Being Honored and Remembered

 

Join a prestigious group of philanthropists by becoming a part of the Angel Club.  Click here to sign up.

The following cherubs are being honored with Angel Club Memberships by family and friends.  Each heart beside their name represents 1 person who joined in their honor/memory.

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2014 CDH Awareness Day Shirts

Get an official 2014 CDH Awareness Day shirt!
http://www.tfund.com/cdhawareness

Just $20.00 each. Kids sizes available. Proceeds go to help CDH families!

Order by March 28th!

CDH Awareness Day Event - Baseball Night with the Las Vegas 51's

Join us at the Las Vegas 51's Baseball on CDH Awareness Night to raise money and awareness for babies born with Congenital Diaphragmatic Hernia.

 

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CDH Awareness Day Event - Baseball Night with the Salt Lake City Bees

Join us at the Salt Lake City Bees Baseball on CDH Awareness Night to raise money and awareness for babies born with Congenital Diaphragmatic Hernia.

 

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CDH Awareness Night at Applebee's - Fresno, CA

Join us at Applebee's on CDH Awareness Night to raise money and awareness for babies born with Congenital Diaphragmatic Hernia.

 

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2014 CDH Scholarship Application

Announcing the second year CHERUBS will be awarding a CDH College Scholarship to a graduating high school senior!!!

A $1,000 scholarship will be awarded this June!

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News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

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Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

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3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

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Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

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2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...