New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic

 

Featured Volunteer: Michele Sengsourya

This week’s featured volunteer is Michele Sengsourya. Michele is the mommy of Cherub Einya Elizabeth Sengsourya, who was born on October 23, 2012 and passed away on November 17, 2012. Michele does so much in memory of her baby girl and recently helped us with the CDH International booth at the AAP 2018 conference in Orlando, Florida.

Thank you for all you do, Michele! We appreciate you very much.

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Featured Doctor: Dr. Wendy Chung, MD, PhD

This week we want to thank Dr Wendy Chung, MD, PhD, with Columbia University and DHREAMS for Bringing Hope Around the World to our CDH Families. She is a superhero in our CDH community and to many other rare disease communities and organizations. She’s a genetics genius, a pediatric surgeon, has helped to establish countless Standards of Care, is revered in many communities, is one of our Medical Advisory Board Members at CDH International, and has always gone above and beyond to help our CDH kids.

On November 1st, Columbia Children’s Health posted to Facebook that pediatric geneticist, Dr. Wendy Chung, received the New York Academy of Medicine Medal for Distinguished Contributions in Biomedical Science for her global leadership in the diagnosis and treatment of rare diseases.  Through her work, she has identified more than 41 new genes for human diseases. Congratulations Dr. Chung!

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Featured Cherub: Liz Plakholm

Featured cherub of the week is Liz Plakholm. Liz is a 16 year old survivor of CDH. On June 18, 2018, Liz held her 6th Annual Walk for CHERUBS.  It was a huge success! She has raised more than $14,525 in total over those 6 years. Liz is the daughter to our Canada Representative, Amanda Plakholm. We appreciate both mom and daughter for all they do for CDH Awareness and volunteering for the charity. 

Amanda Plakholm wrote this about her daughter, Liz:

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New Product in Online Store: CDHi’s “Merry Christmas” Angel Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic
 
 

Featured Doctor: Dr. Robert Lyle, MD

We would like to thank Dr. Robert Lyle, MD, at Arkansas Children’s Hospital (UAMS) for Bringing Hope Around the World to our CDH Families!  Dr. Lyle was brought to us by Angel Ray, mom to cherub Kaleb, and this is what she had to say, Dr Robet Lyle at Arkansas Children's Hospital/UAMS in Little Rock, AR, was wonderful through our whole journey from the time I was pregnant and he still loves to see us. My son is 12 now! He was our saving grace! He was always so encouraging and has done everything possible for our child. Here is a pic of my son meeting him again at 11 years old, he hadn't seen him since he was 5.

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Featured Volunteer: Amanda Dean

Featured volunteer of the week at CHERUBS is Amanda Dean.  Amanda is the International Representative for South Africa.  She not only supports our South Africa families, but is a source of support for our families all over the world.  We are so fortunate to have her on our volunteer team. 

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Featured Volunteer: Sean Forney

Featured cherub of the week, is 21 year old, Sean Forney.  Sean is an amazing young man and we have enjoyed watching him grow up.  He is so intelligent, a wonderful photographer and knows so many facts.  If there is something you have a question on, ask Sean, for we are sure he will know the answer or would be happy to find the answer.  Sean’s mom, Heidi Forney, has been a volunteer at CHERUBS various times over those 21 years and helps so much with raising CDH Awareness.  This is her account of their CDH journey over the years, published on the forums at www.cdhboards.org

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Featured Volunteer: Melanie Hensley

Volunteer Melanie Hensley is our volunteer of the week.  Melanie is a member of our Welcoming Committee and volunteers anywhere else we need help with.  We appreciate her so much and are so happy she is a part of our team.  Melanie is the mom to 4 beautiful girls. 

Melanie Hensley is the mother of two CDH babies, both of whom grew their wings.

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News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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