2018 Salt Lake City Bees Game for CHERUBS

On Saturday, April 21, 2018, at Smith's Ballpark in Salt Lake City, Utah, CHERUBS held a CDH Awareness Ballgame. This was the 5th annual CDH Awareness ball game for the charity.  The game has been a yearly celebration of CDH Awareness Month. CHERUBS members, family and friends got together for a great night of baseball, meeting other CDH families and raised a ton of CDH Awareness. Abby Rush, 15 year old CDH survivor, got to throw in the 1st pitch of the night and kick off the celebration for the charity.  Wearing her wings, Abby threw the 1st pitch like a pro and raised a ton of CDH Awareness.

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2018 Missouri Get Together for CDH Awareness Month

On April 14, 2018, Missouri CHERUBS members held a CDH Awareness Get Together in Clayton, Missouri, at Shaw Park.  Families were celebrating Congenital Diaphragmatic Hernia Awareness Month.  Despite the rainy and cold weather, families came out to meet other CDH families, speak with the doctors and nurses in attendance and helped raise CDH Awareness.  A big thank you to Cardinal Glennon for providing the pavilion for the day and CHERUBS State Representative, Laura Henderson, for coordinating the event and providing snack food.

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2017 Year In Review

Thank you all for helping us to accomplish many goals this year!   Look at what we accomplished together in 2017:

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National Children's Memorial Day 2017

Our main web site at http://www.cdhi.org has turned black for National Children's Memorial Day in memory of all the cherubs lost to Congenital Diaphragmatic Hernia.

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2017 CDH Conference

Our 2017 International CHERUBS CDH Conference was a huge success.

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University of Texas CDH Reunion

CDHi President, Dawn Ireland, visit the University of Texas

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PRESS RELEASE: New Organization Leads the Way in CDH Research

PRESS RELEASE:
For immediate release

New Organization Leads the Way in CDH Research

20 year old charity expands to raise survival rates for birth defect.

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Introducing Rachael Eller

We would like to welcome our new Office Manager and Research Database Administrator, Rachael Eller.

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Finish up the CDH Survey - Get a FREE Hat!

The CDH Research Survey went live on April 1st but in order to take full advantage of all research opportunities, we need ALL families to fill out the complete CDH Research Survey.  

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News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

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Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

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3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

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2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...