Featured Doctor: Dr. Robert Lyle, MD

We would like to thank Dr. Robert Lyle, MD, at Arkansas Children’s Hospital (UAMS) for Bringing Hope Around the World to our CDH Families!  Dr. Lyle was brought to us by Angel Ray, mom to cherub Kaleb, and this is what she had to say, Dr Robet Lyle at Arkansas Children's Hospital/UAMS in Little Rock, AR, was wonderful through our whole journey from the time I was pregnant and he still loves to see us. My son is 12 now! He was our saving grace! He was always so encouraging and has done everything possible for our child. Here is a pic of my son meeting him again at 11 years old, he hadn't seen him since he was 5.

Read more...

Featured Volunteer: Sean Forney

Featured cherub of the week, is 21 year old, Sean Forney.  Sean is an amazing young man and we have enjoyed watching him grow up.  He is so intelligent, a wonderful photographer and knows so many facts.  If there is something you have a question on, ask Sean, for we are sure he will know the answer or would be happy to find the answer.  Sean’s mom, Heidi Forney, has been a volunteer at CHERUBS various times over those 21 years and helps so much with raising CDH Awareness.  This is her account of their CDH journey over the years, published on the forums at www.cdhboards.org

Read more...

Featured Volunteer: Amanda Dean

Featured volunteer of the week at CHERUBS is Amanda Dean.  Amanda is the International Representative for South Africa.  She not only supports our South Africa families, but is a source of support for our families all over the world.  We are so fortunate to have her on our volunteer team. 

Read more...

Featured Volunteer: Melanie Hensley

Volunteer Melanie Hensley is our volunteer of the week.  Melanie is a member of our Welcoming Committee and volunteers anywhere else we need help with.  We appreciate her so much and are so happy she is a part of our team.  Melanie is the mom to 4 beautiful girls. 

Melanie Hensley is the mother of two CDH babies, both of whom grew their wings.

Read more...

Featured Medical Staff: Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson

We would like to thank Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson with OSF Saint Francis Medical Center in Peoria, Illinois, for Bringing Hope Around the World to our CDH Families! This wonderful doctor and nurses were brought to our attention by Terry King German, mom to cherub Skylar, “we can NEVER thank these angels on earth enough for saving the life of our sweet miracle, Skylar!!!!”

Dr. Macwan was known to many as the “magician of ventilators and the Yoda of CDH.”  CDH families and various OSF Staff recently said goodbye to Dr. Macwan at the CDH Family Picnic in September and celebrated his retirement. 

Read more...

Featured Cherub: Chris Cavalier

Our featured cherub of the week is Chris Cavalier.  Chris is a 32 year old survivor of CDH.  His CDH story can be found on his family’s website at http://ecmosurvivor.com.  A book about him has also been published and is available through Amazon and in stores at Barnes and Noble, the title is "Alive by Grace: A Mother's Story with a Message of Hope from Christopher.”

Here is an excerpt of Christopher’s story, written by his mom, Suzanne Cavalier:

Read more...

Featured Cherub: Jayden Gilbert

Featured Cherub of the week is cherub Jayden Gilbert.  Jayden is the son of Alicia Gilbert, our Oregon Hospital Angel for CHERUBS.  Jayden lived for 23 days here on earth and is forever in our hearts.  Both Alicia and her mom, Shelly Moore, have done so much to raise awareness for CDH and help other families affected by CDH. 

Written by Shelly Moore, our Oregon State Representative for CHERUBS and Jayden’s Grandma: “Every CDH family has their own personal CDH Awareness Day....the day they are told their child with be born with Congenital Diaphragmatic Hernia and will have to battle for their life. 

Read more...

2018 CDH International T-Shirt Design Contest Winner

The winner of the 2018 CDHi T-Shirt Design Contest is Tiffany Gordan!  Tiffany Gordan’s "CDH Lung Design" was voted the best design by CDH families.  Tiffany is the mom to CDH survivor, Holden.

Spread your love and support for CDH awareness wherever you go with this “CDH Lungs Design,” created by Tiffany. 

Read more...

Featured Volunteer: Lisa Baxter

Hi!  My name is Lisa Baxter.  I live in Burke, VA with my husband Jeff, and our CDH survivor Lindsey.  We were diagnosed at 20 weeks with one heart defect, then another at 24 weeks, and finally CDH at 27 weeks.  At the time, we were living in South Carolina. We were referred to Columbia, Charleston and then heard about the team at Cincinnati Children’s Hospital.  Jeff and I relocated to Cincinnati for almost 4 months to give Lindsey the best chance possible after being told she had less than a 50% chance of survival.  Lindsey was born in February 2014 and was in the NICU for 2 ½ months.  Lindsey is an amazing baby and is my hero!  We also have a 4 legged child, Elsa, who loves her sister very much.  I work part time as an independent consultant assisting organizations on their future site selections for upcoming meetings/events. 

Read more...

News from CHERUBS

Featured Volunteer: Kevin Dubray

Featured volunteer of the week is Kevin Dubray. Kevin is our International Canada Representative and dad to angel cherub Lucas.

My name is Kevin Dubray from Thunder Bay, Ontario Canada. I am father of Lucas Emmet born March 5th, 2015 with severe RCDH. Lucas survived a short 24 hours before earning his wings. I also have 3 other children Kaylen, Jessalyn and Jaci, as well as rainbow baby, Jacob Emmet, born Oct 25th, 2016.

Read more...

Featured Cherub: Canyon Ryse Cason

Featured cherub of the week is Canyon Ryse Cason, born April 22, 2018, took a breath and went straight into the arms of the Lord, forever in our hearts.

His parents, Randi and Chris Cason, had this to share about their son:

Read more...

Featured Cherub: Tanner Kelly

Featured cherub of the week is Tanner Kelly, the son of Shaun and Justine Kelly.  Tanner will turn 3 on December 28th.

Read more...

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

Featured Volunteer: Kevin Dubray

Featured volunteer of the week is Kevin Dubray. Kevin is our International Canada Representative and dad to angel cherub Lucas.

My name is Kevin Dubray from Thunder Bay, Ontario Canada. I am father of Lucas Emmet born March 5th, 2015 with severe RCDH. Lucas survived a short 24 hours before earning his wings. I also have 3 other children Kaylen, Jessalyn and Jaci, as well as rainbow baby, Jacob Emmet, born Oct 25th, 2016.

Read more...

Featured Cherub: Canyon Ryse Cason

Featured cherub of the week is Canyon Ryse Cason, born April 22, 2018, took a breath and went straight into the arms of the Lord, forever in our hearts.

His parents, Randi and Chris Cason, had this to share about their son:

Read more...

Featured Cherub: Tanner Kelly

Featured cherub of the week is Tanner Kelly, the son of Shaun and Justine Kelly.  Tanner will turn 3 on December 28th.

Read more...