Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

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Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

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New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic

 

Featured Volunteer: Michele Sengsourya

This week’s featured volunteer is Michele Sengsourya. Michele is the mommy of Cherub Einya Elizabeth Sengsourya, who was born on October 23, 2012 and passed away on November 17, 2012. Michele does so much in memory of her baby girl and recently helped us with the CDH International booth at the AAP 2018 conference in Orlando, Florida.

Thank you for all you do, Michele! We appreciate you very much.

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Featured Doctor: Dr. Wendy Chung, MD, PhD

This week we want to thank Dr Wendy Chung, MD, PhD, with Columbia University and DHREAMS for Bringing Hope Around the World to our CDH Families. She is a superhero in our CDH community and to many other rare disease communities and organizations. She’s a genetics genius, a pediatric surgeon, has helped to establish countless Standards of Care, is revered in many communities, is one of our Medical Advisory Board Members at CDH International, and has always gone above and beyond to help our CDH kids.

On November 1st, Columbia Children’s Health posted to Facebook that pediatric geneticist, Dr. Wendy Chung, received the New York Academy of Medicine Medal for Distinguished Contributions in Biomedical Science for her global leadership in the diagnosis and treatment of rare diseases.  Through her work, she has identified more than 41 new genes for human diseases. Congratulations Dr. Chung!

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Featured Cherub: Liz Plakholm

Featured cherub of the week is Liz Plakholm. Liz is a 16 year old survivor of CDH. On June 18, 2018, Liz held her 6th Annual Walk for CHERUBS.  It was a huge success! She has raised more than $14,525 in total over those 6 years. Liz is the daughter to our Canada Representative, Amanda Plakholm. We appreciate both mom and daughter for all they do for CDH Awareness and volunteering for the charity. 

Amanda Plakholm wrote this about her daughter, Liz:

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Featured Doctor: Dr. Robert Lyle, MD

We would like to thank Dr. Robert Lyle, MD, at Arkansas Children’s Hospital (UAMS) for Bringing Hope Around the World to our CDH Families!  Dr. Lyle was brought to us by Angel Ray, mom to cherub Kaleb, and this is what she had to say, Dr Robet Lyle at Arkansas Children's Hospital/UAMS in Little Rock, AR, was wonderful through our whole journey from the time I was pregnant and he still loves to see us. My son is 12 now! He was our saving grace! He was always so encouraging and has done everything possible for our child. Here is a pic of my son meeting him again at 11 years old, he hadn't seen him since he was 5.

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New Product in Online Store: CDHi’s “Merry Christmas” Angel Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic
 
 

Featured Volunteer: Sean Forney

Featured cherub of the week, is 21 year old, Sean Forney.  Sean is an amazing young man and we have enjoyed watching him grow up.  He is so intelligent, a wonderful photographer and knows so many facts.  If there is something you have a question on, ask Sean, for we are sure he will know the answer or would be happy to find the answer.  Sean’s mom, Heidi Forney, has been a volunteer at CHERUBS various times over those 21 years and helps so much with raising CDH Awareness.  This is her account of their CDH journey over the years, published on the forums at www.cdhboards.org

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News from CHERUBS

Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

Read more...

Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

Read more...

New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic

 

 
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2017 - News from CHERUBS

Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

Read more...

Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

Read more...

New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic