2013 Year In Review

Happy New Year from CHERUBS

Thank you for supporting babies born with CDH and their families in 2013


Your friends at CHERUBS would like to wish you a glorious, rewarding and productive new year and thank you for helping us to reach many incredible goals this year in the fight against Congenital Diaphragmatic Hernia.

As we look back at our Year In Review (below) and look forward to 2014, we hope that you will continue to join us in this journey to raise awareness, fund research and support families affected by CDH. 


 

 

 

  • New Logo
  • New Parent Advisory Board
  • New Medical Advisory Board Members
  • Worked with other CDH organizations and research groups to re-establish the Alliance of Congenital Diaphragmatic Hernia Organizations
  • Senate Resolution S. Res. 85 Introduced and passed unanimously to make April Congenital Diaphragmatic Hernia Awareness month
  • House Resolution H. Res. 133 introduced
  • Joined the Combined Federal Campaign
  • Parade of Cherubs on April 19th in Washington DC to Capitol Hill
  • Members met with the offices of over 25 Senators
  • April 19th CDH Parades of Cherubs in New York City, Dallas, Chicago, Philadelphia, Phoenix, Seattle, Portland, Denver, St. Louis, Peoria, Salt Lake City
  • UK Plane Jump Fundraiser
  • CDH Baseball Night at the Las Vegas 51's
  • Virtual CDH Awareness Parade on April 19th
  • 31 Governors proclaimed April 19th a Day of CDH Awareness
  • 12 Mayors proclaimed April 19th a Day of CDH Awareness
  • CN Tower in Toronoto lit for April 19th
  • Miami Tower lit for April 19th (thanks to the Olivia Faith Foundation)
  • Dublin City Hall lit for April 19th
  • New CDH Mascot "Hope"
  • 2013 CDH Conference in Boston
  • Mass General CDH Genetic Lab Tour
  • New CHERUBS Web Site
  • $10,000 CDH Research Grant contest held in December
  • $10,000 CDH Research Grant awarded to Shands for Kids
  • $10,000 CDH Research Grant awarded to Texas Children's Hospital Fetal Research Center
  • $5000 CDH Research Grant awarded to Mass General CDH Genetic Research Center
  • Additional CDH Research Grants awarded to DHREAMS, Shands, Legacy Emanuel, Lurie Children's and Seattle Children's Hospitals
  • A total of over $50,000 in grants from Congenital Diaphragmatic Hernia Research granted by CHERUBS in 2013
  • Over 250 care packages sent to families through our CDH HOPE Totebag project
  • 2013 CDH Magazine
  • 10 new videos made
  • 2 College Scholarships awarded at $1000 each
  • Financial Assistance to a dozen families
  • CDH families represented at the American Pediatric Surgical Association conference in San Marco, Florida
  • Participated in a meeting of DHREAMS participating research centers
  • Participated in Meet the Experts at the Fetal Research Center at CHOP
  • CDH families represented and speech given at Euro CDH Conference in Holland
  • Our 2012 National Children's Memorial Day tribute honored over 1000 cherubs
  • Texas Get-Together
  • California Get-Together
  • Ohio Picnic
  • UK Get-Together
  • Pennsylvania / NJ / Delaware Picnic
  • Denver Picnic
  • Indiana Get-Together
  • Utah Get-Together
  • Nevada Get-Together
  • Over 600 raffle tickets sold for the 50/50 CDH Research Raffle
  • Over 25,000 Facebook Fans reached
  • Average social media reach of 100,000 people weekly
  • Participated in televised Raleigh Christmas Parade
  • 5th Masquerading Angels Ball
  • UK Formal Charley's Masquerade Ball
  • CDH Awareness Calendar featuring over 1600 CDH patients
  • Save the Cherubs CDH Awareness Calendar
  • Won the Emericon contest on Facebook
  • Groupon Totebag Fundraiser
  • One a WEGO Health Award
  • Participated in marathons in NYC, Baltimore, Blue Ridge of Virginia, Atlantic City, Pittsburg
  • Runs held in Canada, Ohio and North Carolina
  • Participated in a Color Me Rad Run
  • New Holiday Facebook Covers project started
  • Dozens of free CDH Awareness graphics made
  • Over 100 new Save the Cherubs posters created
  • Membership reaches over 4700 families in 60 countries
  • National Children's Memorial Day memorial to over 1200 lost cherubs
  • Monthly medical expert speakers on the forums
  • Became an official #GivingTuesday charity
  • Given a Gold Seal by guidestar.com
  • Given a 5-star rating on greatnonprofits.com
  • Participated in Courture for a Cause fashion show
  • 4 television interviews
  • 1 short film
  • Over 2 dozen newspaper articles
  • 100's of newspaper reprints of our press releases
  • Justcoz.org reach of over 50,000
  • Created first CDH Trolley Tokens
  • First charity to plan a Euro CDH Conference
  • First CDH Window display
  • T-fund T-shirt fundraiser
  • "A Fighter's Lullaby" song fundraiser
  • CDH Jewelry Fundraiser
  • Indiana Car Show
  • Wine and Design Fundraiser
  • Members hold dozens of fundraisers in honor and in memory of cherubs

 

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

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2017 - News from CHERUBS

2017 CDH Conference

Our 2017 International CHERUBS CDH Conference was a huge success.

Read more...

University of Texas CDH Reunion

CDHi President, Dawn Ireland, visit the University of Texas

Read more...

Introducing Rachael Eller

We would like to welcome our new Office Manager and Research Database Administrator, Rachael Eller.

Read more...