Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

From the description of her video on YouTube her mom wrote, “Sofia was born with a 10% chance of living. We knew she was a CDH baby after they saw her deformity in her ultrasound photos. She weighed 3lbs 5.6 oz at birth. The doctors kept telling us not to expect her to live because she was so bad off there was no chance. She spent 3 months fed by IV fluids only until she weighed 4lbs which was the requirement for her CDH repair surgery. Congenital Diaphragmatic Hernia meant that she had a hole in her diaphragm. All of her stomach contents were in her chest and would have suffocated her from within if she had been fed prior to her surgery to put everything back in place and held down with a patch on her diaphragm. Her surgeon told us that after her had seen how mangled her insides were, there was no reason medically that she should be alive. He told us that prayers and God were the reasons she was still on Earth with us. After that surgery she had a metal clip placed in her heart to close a valve. She had two eye surgeries to stop the overgrowth of blood vessels from the oxygen she required. Her patch broke around 5 months old because she had grown so fast after they began to tube feed her. It was surgically repaired. After spending a total of 7 months in the NICU she was released to go home on oxygen. She had her gallbladder removed when she was 2 years old because she had a gallstone from the prolonged usage of the hyperal while she was IV fed only. She is currently doing well at this time and is very brilliant, talented, and strong willed.

This video is of Sofia from birth to age 4.  She is currently 11 years and is a talented, beautiful, intelligent and strong willed girl and we have enjoyed watching her grow up over the years.  We sure hope Sofia keeps following her dreams! 

https://youtu.be/-UCNMt9Jxew

 

News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...