Featured Volunteer: Mary Kate Brenner

Featured volunteer of the week is Mary Kate Brenner.  Mary Kate is one of our newest volunteers this year and she joins our team as the Kansas State Representative and is also working on the Awareness and Fundraising Committee.   She is the mom to angel Payton. We appreciate all she has done in Payton’s memory and love that she has joined our volunteer team! 

My name is Mary Kate Brenner and I am the mother of Cherub angel Payton Nicole Brenner. She was born at Children’s Mercy Hospital in Kansas City, MO. She was diagnosed at 17 weeks with LCDH. She was born on July 18, 2018 via repeat c-section. Upon birth we found out she also had a VSD heart defect that was not diagnosed in utero. Within 24 hours she was placed on ECMO, and 24 hours later she had her repair surgery. She was on a roller coaster ECMO ride for 25 days. After a long talk between her doctors we decided that it was time for her to come off because the risks were outweighing the benefits of being on ECMO. She fought hard for another 3 days until her pulmonary hypertension was just too much for her body to handle. She gained her wings on August 16, 2018 surrounded by her family.

I live in Olathe, KS with my husband, Jonathan and living daughter, Payton’s older sister, Chloe (3). I am the Kansas state representative for CHERUBS, on the volunteer, hospital angels, and fundraising committees. I am dedicating my free time to help raise awareness and funding for CDH in Payton’s memory. She touched so many lives in her short 29 days on earth and I want her life to make a big impact in the world.

 

News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...