Featured Volunteer: Shelly Moore

Featured volunteer of the week is Shelly Moore.  Shelly is mother to 3 adult children and 3 grandchildren, the youngest being her Cherub angel grandson, Jayden Gilbert, who lost his battle to CDH and kidney failure due to pulmonary hypertension complications at 23 days old on March 14, 2010.

She is currently serving as the CHERUBS Oregon State Representative as well as sharing CHERUBS Hospital Angel duties with her daughter Alicia Gilbert, mother to Jayden. She also served several years on the CHERUBS Parent Advisory Board (CPAB) and several years on various committees within CHERUBS.

Shelly and Alicia came to CHERUBS in 2010 just before Jayden was born. Despite grieving the loss of their angel they have been an active part of contests and awareness campaigns over the years and have extended support to fellow CDH families all over the globe. She was also co-organizer for 3 "Parade of Cherubs" events in Portland and several other awareness events and get togethers.

Shelly has a background in computer technical support and customer service and has worked primarily in the home computer user market after leaving several years employment in the health care industry. Currently she work for a non-profit organization  providing educational software. 

She also served as a past President of the Oregon Chapter of The Marfan Foundation for 7 years and additional years as a telephone contact. She and her husband have been married for over 25 years and they are avid Oregon Ducks and Portland Trailblazers fans.

 

We appreciate Shelly so much and what she has brings to CHERUBS and what she does daily to raise CDH Awareness.  She is not only a source of support in OR, but all around the globe!  Thank you Shelly!!!

 

News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...