Featured Volunteer: Nicki Young

Nicki Young is the mother of Anderson, born on September 21, 2012.  At her 38 week checkup, 8 days prior to Anderson’s birth, they learned that he had left sided CDH.  This was not detected on his 18-week ultrasound. Anderson spent 28 days in the NICU at Banner Desert Medical Center in Mesa, AZ. During the first few hours of life, Anderson was on “stand by” to be life-flighted to another local hospital and placed on ECMO. Fortunately, they were able to stabilize Anderson.  He had his repair laparoscopically at 3 ½ days old and taken off all breathing machines by 9 days.  Nicki’s oldest brother Riley Kimball Worthen, passed away from CDH in Utah, early in the 70’s, after living only 8 hours. Anderson and his uncle share the same middle name of Kimball. This was planned BEFORE they found out Anderson had CDH.  Anderson still has some complications that stem from being born with CDH.  He loves life and is so happy all the time, despite some medical setbacks.

Nicki is the Arizona State Representative and lives in Mesa, AZ. She is married to her husband, Kevin, and have a blended family of 10 children. Nicki was born and raised in a large family of 11 children (9 living) in a northern suburb of Chicago. Nicki has a Bachelor’s Degree and currently works for a local elementary school, volunteers on the elementary school PTO executive board and volunteers weekly at her church.  Nicki loves meeting and reaching out to other families affected by CDH.

We appreciate Nicki and all she does for CDH families all over the world and there in Arizona.

 

News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

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CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

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Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...