3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

To support “Get Your Shine On” please follow them on Facebook at https://www.facebook.com/groups/767063390140504/ or just search the Group “Get Your Shine On.”  From Rae Ann’s dad, “Although we will never get to watch our little Rae Ann grow up we try and find peace in the fact that her legacy is something that will carry on and we can use our situation to better the lives of others while we host an event that is an unofficial end of summer for us and our friends and family.”

Thank you the Davis Family and the entire Get Your Shine On crew and everybody that took part in the big day and helped raise funds for CDH research and honor the memory of Rae Ann.  Your generosity and kindness is much appreciated.

 

News from CHERUBS

Featured Volunteer: Melanie Hensley

Volunteer Melanie Hensley is our volunteer of the week.  Melanie is a member of our Welcoming Committee and volunteers anywhere else we need help with.  We appreciate her so much and are so happy she is a part of our team.  Melanie is the mom to 4 beautiful girls. 

Melanie Hensley is the mother of two CDH babies, both of whom grew their wings.

Read more...

Featured Medical Staff: Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson

We would like to thank Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson with OSF Saint Francis Medical Center in Peoria, Illinois, for Bringing Hope Around the World to our CDH Families! This wonderful doctor and nurses were brought to our attention by Terry King German, mom to cherub Skylar, “we can NEVER thank these angels on earth enough for saving the life of our sweet miracle, Skylar!!!!”

Dr. Macwan was known to many as the “magician of ventilators and the Yoda of CDH.”  CDH families and various OSF Staff recently said goodbye to Dr. Macwan at the CDH Family Picnic in September and celebrated his retirement. 

Read more...

Featured Cherub: Chris Cavalier

Our featured cherub of the week is Chris Cavalier.  Chris is a 32 year old survivor of CDH.  His CDH story can be found on his family’s website at http://ecmosurvivor.com.  A book about him has also been published and is available through Amazon and in stores at Barnes and Noble, the title is "Alive by Grace: A Mother's Story with a Message of Hope from Christopher.”

Here is an excerpt of Christopher’s story, written by his mom, Suzanne Cavalier:

Read more...

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

Featured Volunteer: Melanie Hensley

Volunteer Melanie Hensley is our volunteer of the week.  Melanie is a member of our Welcoming Committee and volunteers anywhere else we need help with.  We appreciate her so much and are so happy she is a part of our team.  Melanie is the mom to 4 beautiful girls. 

Melanie Hensley is the mother of two CDH babies, both of whom grew their wings.

Read more...

Featured Medical Staff: Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson

We would like to thank Dr. Kamlesh S. Macwan, MD, and RN’s Kristin Aigner and Lora Simonson with OSF Saint Francis Medical Center in Peoria, Illinois, for Bringing Hope Around the World to our CDH Families! This wonderful doctor and nurses were brought to our attention by Terry King German, mom to cherub Skylar, “we can NEVER thank these angels on earth enough for saving the life of our sweet miracle, Skylar!!!!”

Dr. Macwan was known to many as the “magician of ventilators and the Yoda of CDH.”  CDH families and various OSF Staff recently said goodbye to Dr. Macwan at the CDH Family Picnic in September and celebrated his retirement. 

Read more...

Featured Cherub: Chris Cavalier

Our featured cherub of the week is Chris Cavalier.  Chris is a 32 year old survivor of CDH.  His CDH story can be found on his family’s website at http://ecmosurvivor.com.  A book about him has also been published and is available through Amazon and in stores at Barnes and Noble, the title is "Alive by Grace: A Mother's Story with a Message of Hope from Christopher.”

Here is an excerpt of Christopher’s story, written by his mom, Suzanne Cavalier:

Read more...