PRESS RELEASE: New Organization Leads the Way in CDH Research

PRESS RELEASE:
For immediate release

New Organization Leads the Way in CDH Research

20 year old charity expands to raise survival rates for birth defect.



WAKE FOREST, N.C. – July 7, 2017: The Association of Congenital Diaphragmatic Hernia Research, Awareness, and Support  - CHERUBS - is undergoing an organizational restructuring and will now be called CDH International  (www.cdhi.org) which will be focused on Congenital Diaphragmatic Hernia (CDH) research, while CHERUBS will continue to provide support to CDH families.

“I am stepping down from my leadership role in CHERUBS and will be leaving it in the very capable hands of Tracy Meats, who has been with the organization for over 10 years” said Dawn Ireland, founder of CHERUBS. “She will manage the parent support efforts that we are known for and CDH Families will continue to receive the same great support they’ve come to count on.”

CDH International will be an umbrella organization providing valuable research, securing NIH funding and grants, and creating an accreditation center for CDH hospital clinics. These new components will help better serve the CDH community worldwide by raising the standards of care and propelling research.

“We hope that the CDH Care Center accreditation program will push hospitals to do radical new things for CDH to raise survival rates,” Ireland stated in her new role as President of CDH International. “It's unacceptable that some hospitals have a 50% survival rate while others have 90% or 100%.  We are very excited to work with the research community to better serve and make a direct contribution in saving more lives of children born with Congenital Diaphragmatic Hernia while bettering the quality of life for survivors.  The future is looking much brighter for the fight against this devastating birth defect” she continued.

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About CDH:

Congenital Diaphragmatic Hernia (CDH) is a birth defect, with an unknown cause, which effects 2,500 babies worldwide and 1,600 babies in the United States each year. Approximately 50% of these babies will die each year. During gestation, the diaphragm fails to fully form often allowing abdominal organs to reach the chest cavity, restricting lung growth.

About CHERUBS:

CHERUBS was created in 1995 to provide information and support services to families affected by Congenital Diaphragmatic Hernia, raise awareness and promote and fund research into the causes and best treatments of CDH.  Learn more at http://www.cherubs.org

About CDH International:

CDH International was created as a global initiative to stop Congenital Diaphragmatic Hernia by working with researchers, other non-profits and families to better utilize, fund and promote research.  Learn more at http://www.cdhi.org

Media Contact:
Dawn Ireland, President
(919) 610-0129
This email address is being protected from spambots. You need JavaScript enabled to view it.


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Featured Cherub: Steven Hilario Lagunas

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The following is shared by cherub Steven's mom:

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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...