Charity Funds Critically Low

CHERUBS' funds are critically low and we are under threat of closing our doors after 22 years. 

 

CDH is incredibly unfunded as compared to most causes (see below). 

 

CHERUBS has worked hard to raise money, awareness, research and provide services to 1000's of families.  But we cannot continue without your help.  Even with an 8% overhead, we still cannot meet the needs of the CDH community and services have been cut.  We have made incredible strides in the fight against Congenital Diaphragmatic Hernia in the past few years.  Please join us this Sunday, April 30, 2017, in our first (and hopefully not last) CHERUBS CDH Telethon on Facebook.

Your donation dollars at work:

* $1 will cover 1 copy of our Parent Reference Guide
* $2 will cover 1 2-pocket folder to hold CDH info
* $3 will cover 2 CDH awareness bracelets and ribbon buttons for a new family
* $5 covers 1 disposable camera
* $10 covers 1 New Member Packet
* $10 covers 1 handprint/footprint kit for a newborn cherub
* $20 covers 1 CDH Baby Book for a new or expectant family
* $25 covers shipping of 1 CDH HOPE Totebag
* $50 covers our annual non-profit state registration fee
* $50 covers our volunteer software subscription for 1 month
* $100 covers staples, paper clips and glue for 1 year
* $125 will covers web site hosting fees for 1 month to bring info to families online
* $150 sponsors 1 hospital with CDH info for 1 year
* $150 covers 1 local get-together
* $200 covers the cost of 1 mascot for events
* $250 will help cover parking fees or food for 1 CDH family in the hospital
* $350 covers envelope costs for 1 year
* $400 covers printing 5000 brochures
* $500 covers outside programming fees for 3 months
* $1000 creates a college scholarship for 1 CDH survivor or sibling
* $1200 covers non-newsletter postage fees for 1 month
* $1200 cover awareness in a televised parade
* $1200 covers the cost of one annual independent audit
* $1500 covers charity insurance for one year
* $3000 covers one professional PSA video for TV
* $7000 covers 1 international member conference
* $8000 covers 1 newsletter printing
* $10,000 cover 1 CDH Research Grant
* $10,000 covers 1 newsletter mailing to families in the US
* $25,000 covers CHERUBS CDH Research programming and security
* $30,000 covers 1 newsletter mailing to all 5800 families globally

It takes a lot to run an international charity. Only 1% of our members are able to give back. Our budget is currently only $200,000 to help 6100 families annually and there are so many services that we need to provide but cannot. Every single dollar helps families directly.

Donate at http://www.cherubs-cdh.org/helpcdh/contribute

Start a fundraising page at https://www.facebook.com/cdhsupport/fundraisers/?ref=page_internal

 

News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...

 
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2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...