CHERUBS Telethon on April 30th

Dear CHERUBS Members and Friends,


This is going to a long, very honest letter....

CHERUBS is in trouble. Our 22 year old charity will not be able to keep our doors open much longer. Maybe 2 months.

A lot of money goes out... even with an 8% overhead. Totebags, financial grants, research grants, information to families and hospitals, the web site programming, research programming, conferences, printing, shipping, etc. We average $10,000 in expenses each month.

Last year over half of our donations were allocated... meaning they came in and went straight out to research. Which is wonderful for much needed research. But it's hard to keep our doors open.

Only 2% of the families we help give back. That's the nature of CDH. It's financially devastating to families. Those with the means to really help tend to give to their hospitals or start their own projects, and again, that's great for the cause. But not so easy on the charity that helps the families directly. If our community doesn't fund our work... no one will. We receive no government or grant funding. $0. We are solely funded by donations and fundraisers and a whole lot of prayer and hope.

It takes $200,000 a year to fund all that we do. That's a drop in the bucket compared to other charities our size and we all know that other causes with the same occurrence rate receive billions. Right now, our main fund has $1500 in it. Yes, you read that correctly.

We've cut expenses, we've cut services, we've put Jason on part time and I now work an average of 70 hours a week right now (I am not hourly). And still, we are doing more now for CDH than ever. We have started as many new projects as we can that come without costs, the research database is live, we are working with 2 huge CDH research collaborations, we were published last year, I am giving TV interviews once a month, we are stalking President Trump for his salary donation and I'm still stalking Nicholas Sparks, ACDHO is doing great things, we just made the first CDH commercial and have 3 stations interested in airing it. I travel a lot for research but boy can we stretch a penny to a dollar. We are so close to more NIH research money for these kids, 4 bills up on Capitol Hill this year. We have many new CPAB members and a few more new BOD members. We added a fundraiser who will start soon. We have an amazing awareness team working so hard this month and every month. And so many great new volunteers. We have families chipping in to hold events.

We are doing amazing, incredible, game-changing things. We can't stop now. And if we stop, who will help these kids? We provide 95% of the world's services for CDH. Let that sink in. If we sink, so does 95% of the world's services and progress for CDH. We cannot let CDH win. That's not an option!

I dreaded writing this.... it's a tough pill to swallow.... I'm fairly prideful and this is my baby... but it takes a village. And as you know, CDH has nothing. So I'm fighting harder. Our volunteers are fighting harder. Our charity is fighting harder. Will you fight harder with us?

We have a telethon going on this Sunday on our Facebook page at http://www.facebook.com/cdhsupport

Please donate if you can.

Please call in and share your stories.

Please ask family and friends to donate.

Please help us to not only continue our work but to grow and do all the things families need us to do.

Sincerely,

Dawn M. Torrence Ireland
CHERUBS President & Founder

News from CHERUBS

2018 Light Ups for CDH Awareness Day

Buildings and Landmarks in the United States and Canada lit up blue, pink and yellow on April 19th for CDH Awareness Day.  The CN Tower will light up on April 28th in Toronto, Canada.

The following locations lit up for CDH Awareness Day in 2018:

Read more...

CDH International Telethon on April 19th

On CDH Awareness Day, April 19th, CDH International interviewed families, researchers, doctors and volunteers as they all shared stories, tears and trials as we raised awareness and money for Congenital Diaphragmatic Hernia via live video on Facebook.  We had guests live from around the globe, truly an international day of CDH Awarneess.  The goal was to reach $50,000 over 15 hours during a live Facebook telethon.  Donors were able to make a donation by calling in, donating on any of the member's Facebook telethon fundraisers or directly on the website.  As the telethon closed, CDH International surpassed the goal bringing in $51,388.  This number is on the rise, where the final total will be announced on April 30th.  Facebook fundraisers for the telethon are still ongoing and the charity waits for any checks arriving by mail.

Read more...

2018 Salt Lake City Bees Game for CHERUBS

On Saturday, April 21, 2018, at Smith's Ballpark in Salt Lake City, Utah, CHERUBS held a CDH Awareness Ballgame. This was the 5th annual CDH Awareness ball game for the charity.  The game has been a yearly celebration of CDH Awareness Month. CHERUBS members, family and friends got together for a great night of baseball, meeting other CDH families and raised a ton of CDH Awareness. Abby Rush, 15 year old CDH survivor, got to throw in the 1st pitch of the night and kick off the celebration for the charity.  Wearing her wings, Abby threw the 1st pitch like a pro and raised a ton of CDH Awareness.

Read more...

 
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2017 - News from CHERUBS

2018 Light Ups for CDH Awareness Day

Buildings and Landmarks in the United States and Canada lit up blue, pink and yellow on April 19th for CDH Awareness Day.  The CN Tower will light up on April 28th in Toronto, Canada.

The following locations lit up for CDH Awareness Day in 2018:

Read more...

CDH International Telethon on April 19th

On CDH Awareness Day, April 19th, CDH International interviewed families, researchers, doctors and volunteers as they all shared stories, tears and trials as we raised awareness and money for Congenital Diaphragmatic Hernia via live video on Facebook.  We had guests live from around the globe, truly an international day of CDH Awarneess.  The goal was to reach $50,000 over 15 hours during a live Facebook telethon.  Donors were able to make a donation by calling in, donating on any of the member's Facebook telethon fundraisers or directly on the website.  As the telethon closed, CDH International surpassed the goal bringing in $51,388.  This number is on the rise, where the final total will be announced on April 30th.  Facebook fundraisers for the telethon are still ongoing and the charity waits for any checks arriving by mail.

Read more...

2018 Salt Lake City Bees Game for CHERUBS

On Saturday, April 21, 2018, at Smith's Ballpark in Salt Lake City, Utah, CHERUBS held a CDH Awareness Ballgame. This was the 5th annual CDH Awareness ball game for the charity.  The game has been a yearly celebration of CDH Awareness Month. CHERUBS members, family and friends got together for a great night of baseball, meeting other CDH families and raised a ton of CDH Awareness. Abby Rush, 15 year old CDH survivor, got to throw in the 1st pitch of the night and kick off the celebration for the charity.  Wearing her wings, Abby threw the 1st pitch like a pro and raised a ton of CDH Awareness.

Read more...