CHERUBS Telethon on April 30th

Dear CHERUBS Members and Friends,


This is going to a long, very honest letter....

CHERUBS is in trouble. Our 22 year old charity will not be able to keep our doors open much longer. Maybe 2 months.

A lot of money goes out... even with an 8% overhead. Totebags, financial grants, research grants, information to families and hospitals, the web site programming, research programming, conferences, printing, shipping, etc. We average $10,000 in expenses each month.

Last year over half of our donations were allocated... meaning they came in and went straight out to research. Which is wonderful for much needed research. But it's hard to keep our doors open.

Only 2% of the families we help give back. That's the nature of CDH. It's financially devastating to families. Those with the means to really help tend to give to their hospitals or start their own projects, and again, that's great for the cause. But not so easy on the charity that helps the families directly. If our community doesn't fund our work... no one will. We receive no government or grant funding. $0. We are solely funded by donations and fundraisers and a whole lot of prayer and hope.

It takes $200,000 a year to fund all that we do. That's a drop in the bucket compared to other charities our size and we all know that other causes with the same occurrence rate receive billions. Right now, our main fund has $1500 in it. Yes, you read that correctly.

We've cut expenses, we've cut services, we've put Jason on part time and I now work an average of 70 hours a week right now (I am not hourly). And still, we are doing more now for CDH than ever. We have started as many new projects as we can that come without costs, the research database is live, we are working with 2 huge CDH research collaborations, we were published last year, I am giving TV interviews once a month, we are stalking President Trump for his salary donation and I'm still stalking Nicholas Sparks, ACDHO is doing great things, we just made the first CDH commercial and have 3 stations interested in airing it. I travel a lot for research but boy can we stretch a penny to a dollar. We are so close to more NIH research money for these kids, 4 bills up on Capitol Hill this year. We have many new CPAB members and a few more new BOD members. We added a fundraiser who will start soon. We have an amazing awareness team working so hard this month and every month. And so many great new volunteers. We have families chipping in to hold events.

We are doing amazing, incredible, game-changing things. We can't stop now. And if we stop, who will help these kids? We provide 95% of the world's services for CDH. Let that sink in. If we sink, so does 95% of the world's services and progress for CDH. We cannot let CDH win. That's not an option!

I dreaded writing this.... it's a tough pill to swallow.... I'm fairly prideful and this is my baby... but it takes a village. And as you know, CDH has nothing. So I'm fighting harder. Our volunteers are fighting harder. Our charity is fighting harder. Will you fight harder with us?

We have a telethon going on this Sunday on our Facebook page at http://www.facebook.com/cdhsupport

Please donate if you can.

Please call in and share your stories.

Please ask family and friends to donate.

Please help us to not only continue our work but to grow and do all the things families need us to do.

Sincerely,

Dawn M. Torrence Ireland
CHERUBS President & Founder

 
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2017 - News from CHERUBS

2017 CDH Conference

Our 2017 International CHERUBS CDH Conference was a huge success.

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University of Texas CDH Reunion

CDHi President, Dawn Ireland, visit the University of Texas

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Introducing Rachael Eller

We would like to welcome our new Office Manager and Research Database Administrator, Rachael Eller.

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