2016 Year In Review

Thank you all for helping us to accomplish many goals this year!  We look forward to gaining new ground for our cause in 2016!

  • Reached over 6000 families and medical care providers in our membership
  • Awarded over $40,000 in CDH Research Grants
  • Sent out over 120 CDH HOPE Totebags
  • 2016 ACDHO CDH Conference in Paris bought together 5 charities
  • Published CDH Research Survey findings with Toronto Sick Kids at American Academy of Pediatrics
  • Congressman George Holding visits our office
  • Met with leader of the NICHD at the National Institutes of Health to discuss funding for CDH
  • Joined the Friends of NICHD charity alliance to further funding for child diseases and defects
  • Unanimous passing of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month in the U.S. Senate
  • Introduction of of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month into the U.S. House of Representatives
  • Gathered 48 state proclamations, bringing us to all 50 states proclaiming April 19th
  • Met with Congressmen on Capitol Hill
  • Dear Nicholas Sparks book published
  • Met with Nicholas Sparks
  • CHERUBS first book signing event
  • NFL NY Giants player Perry Williams visited our office
  • Bought on 2 new members of the Executive Board of Directors
  • Added 2 new members to the Medical Advisory Board
  • Represented CDH families at the 2016 American Pediatric Surgical Association Conference
  • Represented CDH families at the 2016 American Pediatric Surgical Nurses Association Conference
  • Represented CDH families at the 2016 Global Rare Disease Conference
  • Started research projects with 3 CDH Research Centers
  • Charity of the 2016 American Mustang Car Show in Indianapolis
  • 2016 Combined Federal Campaign charity
  • Gave our first Live Facebook Videos
  • Gave over 25 speeches locally on CDH
  • Held the 2016 Masquerading Angels Ball
  • Participated in Leesburg Christmas Parade
  • Participated in Yucca Valley Christmas Parade
  • 1 new office intern
  • Held the 2016 Chris Leith Golf Tournament for CHERUBS
  • Golf Tournament in Atlanta launched new CDH foundation
  • Awareness Walk in Ontario, Canada
  • Reached over 28,000 Facebook Fans
  • Reached 75,000 posts on the CDH Forums
  • Awarded 9 Financial Assistance Grants to Families
  • Awarded 3 CDH Scholarships
  • Participated in National Children's Memorial Day
  • Participated in #GivingTuesday
  • 50/50 CDH Raffle for Research Contest
  • CHERUBS Vendor Event
  • April 19th - Congenital Diaphragmatic Hernia Action Day
  • Niagara Falls lit up for April 19th
  • Salt Lake Bees Baseball CDH Awareness Night
  • CDH Awareness Night with the Las Vegas 51's
  • Christmas with Kasey Golf Classic in Colorado
  • Jessy's Journey: 4th Annual CDH Walk/Bike/Run in Ohio
  • Lizzy's 10k Annual Walk for CHERUBS in Ontario, Canada
  • Teen Vocal Talent Showcase in Mississippi
  • Canada CDH Action Day Gathering
  • CHERUBS Pacific NW Families Strike Back Against CDH
  • CDH Awareness Night with the Potomac Nationals
  • CDH Action Day in Missouri
  • CDH Awareness Day and Get-Together in Ohio
  • Creative Canvas Fundraiser
  • One Hope Wine Fundraiser
  • Clark County Sale Fundraiser
  • Texas Roadhouse CDH Fundraiser
  • FedEx Ohio Fundraiser
  • CDH Action Day in Arizona
  • Stickin Up for CDH Fundraiser
  • My Premier Designs Fundraisr
  • Pampered Chef Fundraiser
  • Tastefully Simple Fundraiser
  • Metal Momma Fundraiser
  • Beach Glass Jewelry Fundraiser
  • Usborne Book Fundraiser
  • Keep Collective with Marisa Fundraiser
  • DollarDays Contest Winner
  • PECO Crown Lights in Philadelphia lit up for April 19th
  • Terminal Tower in Cleveland lit up for April 19th
  • Saint Louis Science Center's James S. McDonnell Planetarium lit up for April 19th
  • BC Place in British Columbia lit up for April 19th
  • Peace Bridge in Buffalo lit up for April 19th
  • Wells Fargo Duke Energy Center lit up for April 19th
  • Telus World of Science lit up for April 19th
  • Calcary Tower lit up for April 19th
  • CN Tower lit up for April 19th
  • WoodmenLife Tower lit up for April 19th
  • JL Tower in Anchorage lit up for April 19th
  • Brant Street Pier in Ontario lit up for April 19th
  • High Level Bridge in Edmonton lit up for April 19th
  • Eli's Run in Wilmington, North Carolina
  • Kassidy's Kause Fundraiser
  • Storybook Birthdays Annual Costume Party Fundraiser in Mississippi
  • Night of Dinner and Dancing Fundraiser in Pennsylvania
  • CHERUBS Annual Ohio Picnic
  • Nathaniel Cummings Fundraiser
  • Melaeuca Fundraiser
  • Brady Thomas Golf Tournament
  • Justyce for Kids Fundraiser
  • Paint Nite Fundraiser
  • Gateway Men's Choir Benefit
  • Houston Spirit Night Fundraiser
  • Dress Down Fundraisers
  • Potomac Naitonals Fundraiser
  • Dixie Direct Savings Guide Fundraiser in Utah
  • CHERUBS Utah Picnic
  • Bravelets Fundraiser
  • Making Stride for CDH Fundraiser
  • Virtual Candles & Snowflakes Fundraiser
  • Virtual CDH Ribbons Fundraiser
  • Fetin 4 a Cause Fundraiser
  • Won 2016 Top-Rated NonProfit Award from GreatNonprofits.com
  • Won 2016 GuideStar Gold charity award


Join us in 2017 as we visit Capitol Hill in March and hold the International CDH Conference in Salt Lake City, along with many other local events.   

Stay tuned to our site and Facebook page for upcoming details!

Happy New Year from everyone at CHERUBS!
http://www.cherubs.org/

News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...