CHERUBS DISCLAIMER

The following is an updated Disclaimer on our charity's site, services and intellectual property:

 

 

Medical Information and Advice:

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Any information posted on the CHERUBS website and social media are not intended to replace or override any doctors diagnoses and/or treatment plans.

CHERUBS does not diagnose, medically treat or care for any individual associated with Congenital Diaphragmatic Hernia.

Should you have ANY concerns regarding the health of yourself or your child please contact your doctor immediately.

 

Pictures and Content:

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All pictures and content posted by CHERUBS on the website, blogs and social media are copyrighted, intellectual property of CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support unless otherwise stated.

Copying, cropping, sharing (without using social media share functions) or infringing on CHERUBS' intellectual property in any way is a crime publishable by law.

Using, altering or editing our charity logos or graphics to create merchandise for reasons other than fundraising for our charity is infringing on CHERUBS' intellectual property in any way is a crime publishable by law.

The CDH Awareness Ribbon is not trademarked and may be used at will by anyone wishing to raise money or awareness.  However, all other graphics created by our charity are CHERUBS' intellectual property in any way is a crime publishable by law.

 

Submission of Content to CHERUBS:

All photos, blog posts, reviews ect. are considered property of CHERUBS once submitted to be used to help the cause.

CHERUBS holds the right to use submitted content in any way we see fit to help raise Congenital Diaphragmatic Hernia Awareness.

Trademarks:

"CHERUBS​​​​​​​​​​​, " "CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support ​​​​​​​​​​, "Save the Cherubs" and "CHERUBS​"(name and picture) are all trademarked entities of CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support

They may NOT be reprinted or used in anyway without CHERUBS''s approval.

Services and Materials:

Our services, products, projects and materials may not be copied, edited or reproduced without explicit permission of CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support..  This includes, but is not limited to; "Save the Cherubs" CDH Awareness photography project, CDH Awareness lobbying events on Capitol Hill, "Parades of Cherubs" of children wearing wings, CDH HOPE Totebags, CHERUBS CDH Conferences, CDH Baby Book, CDH Parent Reference Guide, CDH State Get-Togethers, our volunteer structure and materials, "Masquerading Angels Ball" masquerade ball for CDH, CDH Research Survey for parents, CDH Fundraising Kits, CDH Hospital Kits, CDH Awareness Kits, Silver Lining CDH Newsletter, CDH Family Forums and other known and well publicized charity projects, events, products and materials.

 

 

Other Organizations:

 

CHERUBS only publicly supports and refers those organizations who are members of the Alliance of Congenital Diaphragmatic Hernia Organizations.

CHERUBS does not have the time or resources to help other charities or to help others start new charities as those resources are need to continue the function of our own charity.

​Individual Posting:​​​​​​​​​​

Our social media accounts are set as PUBLIC.

Should you post on either page, you are doing so at your own risk.

CHERUBS is not held responsible for any negative outcome this action can cause.

CHERUBS holds to right to delete any comments (at any time) we believe are not appropriate.

 

 

Posting of Personal Fundraising Pages on CHERUBS Social Media:

CHERUBS  does not allow the posting/reposting of personal fundraising pages such as GoFundMe.org ect. or fundraising or promotion for other organizations or hospitals who not members of ACDHO.  All links will be deleted without notice.

 

Hours of Operation:

Emails are answered Monday-Saturday from 10a-10p EST.

Phone calls are answered and returned from 10a-5p EST.

CHERUBS is closed every Sunday.

(this includes all of our Social Media Accounts)

All Emails, phone calls and Social Media postings will resume the following Monday morning.

 

Events:

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All charity events are to be open to members only unless otherwise stated.  They are not to be used in an non-charity capacity such as to promote other events, individuals or organizations without the express permission of CHERUBS.  All laws and venue guidelines must be adhered to by attendees.  All charity rules stated must be adhered to by attendees.

 

 

 

Third Party Fundraising:

We encourage all supporters to raise awareness and funds so we can continue our mission.

We cannot provide materials or other resources to fundraise for hospitals or individuals.

We do not fundraise for individuals as that is illegal.

Please This email address is being protected from spambots. You need JavaScript enabled to view it. prior to planning a CHERUBS Fundraising Event.

Doctors & Hospitals:

CHERUBS does not sponsor or endorse any hospital or doctor.

CHERUBS Forums:

This program is based on advice and support only.

Please see the Forum Rules for participation there.

 

CHERUBS Facebook Groupss:

This program is based on advice and support only.

Please see the Group Rules for participation there.

 

News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

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2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...