20th Anniversary Balloon Release on February 12th

In celebration of our 20th Anniversary, we are holding a night balloon release on February 12, 2015.   



Each balloon will be lit and will hold the name of a cherub.   Donate just $5.00 to have your cherub's name on a balloon.  No limit to the number of balloons that you can purchase!  Every balloon purchased will be photographed and posted on social media so you will have a photo of your cherub's balloon(s).

Purchase balloons at http://www.cherubs-cdh.org/awareness/2013-07-29-20-06-27#!/20th-Anniversary-Balloon-Release-Balloon/p/46017258/category=0

The person who sells the most balloons will win the trophy for February!

 



All balloons purchased by noon February 12th will be included in the balloon release.  Balloons purchased afterwards will be part of the April 19th balloon release.

Purchased balloons as of 11:00 am EST February 12th:

 

 

Blue

Pink

Yellow

White

Total

Aaron Kane Boyd

25

0

7

5

36

Adam Jacob Salas

1

0

0

0

1

Alfie

1

0

0

0

1

Andrew Daniel Castle-Hudso

2

0

0

0

2

Asher Patz

1

0

0

0

1

Ava Marie Medina

0

1

0

0

1

Aven Lynne McLeod

0

1

0

0

1

Avery Ellen

0

1

0

0

1

Azlee Bifferato

0

1

0

0

1

Baby Owen

1

0

1

0

2

Bentley Holbrook

1

0

0

0

1

Brayden Michael Bammerlin 

1

0

0

0

1

Bryson Woodruff

1

0

0

0

1

Casey Carter

2

2

2

2

8

Chaia D'Lynn Boyett

0

13

0

1

14

Charley

0

1

0

0

1

Chloe

0

1

0

0

1

Christian Kime

1

0

0

0

1

Colin Small 

1

0

0

0

1

Cruz Santino Valdez

1

0

1

1

3

Daddy, Mommy, Reece & Grandma

0

4

0

0

4

Daisy

0

1

0

0

1

Easton 

1

0

0

0

1

Eilidh

0

1

0

0

1

Elijah Garcia

1

0

0

0

1

Emilio Manuel Ruiz

1

0

0

0

1

Emily Binns

2

3

3

2

 

Emily MacKenzie 

2

0

0

0

2

Emmi Daliana Garcia

0

10

0

0

10

Ethan Smith

1

0

0

0

1

Evan Jackson

1

0

0

0

1

Gavin Ream

4

0

0

0

4

Gloria Butler

0

1

0

0

1

Graham Gillis 

1

0

0

0

1

Haley Gulling

0

1

1

1

3

Hanna

0

1

0

0

1

Hannah Svoboda 

0

1

0

0

1

Happy 5th Birthday Anastacia, Love Charley XXX

0

1

0

0

1

Hazel Julaine Kleberg 

0

3

0

0

3

Heidi Penny

0

3

0

0

3

Jacob Rowen

1

0

0

0

1

Jacob Zimmerman

1

0

0

0

1

Jak

1

0

0

0

1

Javier Ramirez-Parks

0

0

0

0

0

Jayden Gilbert

2

0

0

0

2

Joaquin Jimenez

1

0

0

0

1

Joshua Kyle Phillips

2

0

0

0

2

Joy Bridget

1

1

1

0

3

Kaegan Noelle Dampier

0

1

1

0

2

Katelyn A. Send

0

1

0

0

1

Killian

2

0

0

0

2

Lahlynn Grace Bingaman

0

4

0

0

1

Leelu Shea Renollet 

3

3

3

1

10

Leelu Shea Renollet

0

4

0

0

4

Lexee

0

1

0

0

1

Lexee Poll

0

1

0

0

1

Liam Joseph Hawkins

7

2

4

1

14

Libby

0

1

0

0

1

Libby Burchel

0

1

0

0

1

Liz Plakholm

1

0

0

0

1

London Elizabeth

0

1

0

0

1

London Woodward

0

1

0

0

1

Lucas Curry

1

0

0

0

1

Lucas Dean Curry

1

0

0

0

1

Maddie

0

4

0

0

4

Matthew Scott Ingha

4

0

0

0

4

Micaela Kostmaye

5

0

0

0

5

Micaiah

1

0

0

0

1

Mikayla Marie Duscher

0

1

0

0

1

Milton Hammer

1

0

0

0

1

Nathan Daniel Scelfo

10

0

0

0

10

Noah M.

1

0

0

0

1

Nora Grace Lange

0

1

0

0

1

Orion Klee

1

0

0

0

1

Paislee Grace Mears

1

8

1

1

11

Paul Allen Clark

8

0

0

0

8

Preston

1

0

0

0

1

Reese Miley Daly

0

1

0

0

1

Reilly Wilson

2

0

3

2

7

Riley Bundy Soria

1

0

0

0

1

Sam

22

0

0

0

22

Shane Torrence

3

1

2

1

7

Taylor Nicole Wyckoff

0

1

0

0

1

VinaBelle Bifferato

0

1

0

0

1

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

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I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

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Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

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2017 - News from CHERUBS

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On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

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