2014 CDH Research Grant Contest

 

VOTING HAS BEGUN! Vote once a day, every day until December 30th for your favorite CDH organization to win research grant money!

http://woobox.com/ab54sc

23 CDH Research Centers from around the world in the running to win a Research Grant to the center with the most votes on December 31st.   

 
 
December 1st - 31st, 2014 CHERUBS is holding a voting contest to award a Congenital Diaphragmatic Hernia Research Grant via our Facebook page.   
 
We are still selling raffle tickets to raise money for this grant!  50% of raffle ticket sales go to CDH Research, 50% to the raffle winner.  Buy tickets on-line until December 30th!
 
50% of donations to our CDH Research Fund will also go towards this research grant!  Donate now!

1st Phase - Vote daily for your favorite CDH Research Center from December 1st to the 20th.

2nd Phase - Vote counts are reset on December 20th and the top 5 CDH Centers will battle it out until December 31st.

Who are you voting for?
 
  • Baylor College of Medicine CDH Genetic Lab (genetic research)
  • Boston Children's Hospital CDH Clinic (repair material research)
  • Cincinnati Children's Hospital and Medical Center (surgical repair)
  • DHREAMS Research Study (Congenital Diaphragmatic Hernia) Lab (genetic research)
  • Mass General CDH Genetic Research Study (genetic research)
  • OSF St. Francis Medical Center (CDH Clinic)
  • Shands at the University of Florida CDH Clinic (gentle ventilation research)
  • St. Louis Fetal Care Institute (fetal research)
  • Texas Children's Hospital (fetal research)
  • The Center for Fetal Diagnosis and Treatment at CHOP (fetal research)
  • UCSF Fetal Treatment Center (fetal research)
  • International CDH Study Group (long term CDH care)
  • Sydney Children’s Hospital (Australia)
  • Universitätsklinikum Mannheim gGmbH (Germany)
  • Université Paris Descartes (France)
  • Ospedali Pediatrico Bambino Gesu (Italy)
  • University Hospital Gasthuisberg (Belgium)
  • The Hospital for Sick Children (Canada)
  • National Center of Child Health and Development (Japan)
  • Sophia Children’s Hospital (Netherlands)
  • Liverpool University (United Kingdom)
  • University of Oxford (United Kingdom)
  • Scottish Congenital Diaphragmatic Hernia Clinical Network (Scotland)

 

News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...

 
Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Donation Amount Options
In honor or memory of who?

2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

Read more...

Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

Read more...

3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

Read more...