Meet Our Volunteers

 


Meet Our Volunteers & Staff


Meet the amazing men and women who help families affected by Congenital Diaphragmatic Hernia through CHERUBS.


Kristin Aigner

Bio coming soon!

 

Ashley Barry

Ashley Barry, Vice-President, has been a member of CHERUBS since her daughter Jessica, a CDH survivor, was born in 2005. In addition to serving on the executive board for CHERUBS, she is also active in several committees including the NC event, grant writing, and fundraising committees. Professionally, Ashley works as a scientist. She received both her undergraduate and masters degrees from UNC- Chapel Hill, where she was also a member of the Varsity Fencing team.

Ashley lives in Morrisville, NC with her loving husband Chris, two daughters Jessica and Leah, two cats, and 2 dogs. She enjoys reading, traveling, crafting, cooking and being active.

Lisa Baxter

Hi! My name is Lisa Baxter. I live in Burke, VA with my husband Jeff, and our CDH survivor, Lindsey. We were diagnosed at 20 weeks with one heart defect, then another at 24 weeks, and finally CDH at 27 weeks. At the time, we were living in South Carolina. We were referred to Columbia, Charleston and then heard about the team at Cincinnati Children's Hospital. Jeff and I relocated to Cincinnati for almost 4 months to give Lindsey the best chance possible after being told she had less than a 50% chance of survival. Lindsey was born in February 2014 and was in the NICU for 2 ½ months. Lindsey is an amazing baby and is my hero! We also have a 4 legged child, Elsa, who loves her sister very much. I work part time as an independent consultant assisting organizations on their future site selections for upcoming meetings/events.

I was unfamiliar with CHERUBS until another family with a CDH baby at the Ronald McDonald House told me about it. With all the chaos, I never had a chance to reach out until we brought Lindsey home from the hospital. I am excited to volunteer now and help other families know they are not alone.

 

Amber Bradley

My name is Amber Bradley. I live in Gastonia, NC and work as a Paramedic for my county. I have one child, Alice. She was born April 23, 2013. I found out at my 20 wk anatomy scan that something was wrong. They sent me to a specialist in Charlotte, NC, where she was diagnosed with LCDH. They gave her a 50/50 chance of survival. I spent the next 20 weeks scared of what would happen. I gave birth to her at Carolinas Medical Center, which is also Levine Children’s Hospital. She had her repair surgery at 3 days old, which was laparoscopic. The hole was rather small, so they were able to just stitch the hole shut without patch. She did not need ECMO. She was able to come home at 13 days old. She is not on any medications, and has no other problems. She is my miracle.

 

Lynne Brogden

Bio coming soon!

 

Hope Clyde

Bio coming soon!

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Nicolle Colvin

 Nicolle is the mom of Kasey Colvin 11.16.08-12.19.08. Kasey was born with undiagnosed left sided diaphragmatic hernia. Kasey fought for 33 days, he had severe chylothorax and his lymphatic system wasn’t functioning properly, so he grew his wings on December 19th.

She is married to her husband Kevin, they are also the proud parents of Brooklyn and Blake. Nicolle enjoys working out and going to Bronco and Rockies games with her family.


Jessica Cummings

 Jessica Cummings is a mom to two beautiful boys, Dominick ,3, and Nathaniel , a CDH angel that grew his wings at 24 days old. Jessica is a Hospital Angel for Pittsburgh, PA. Jessica has been married to her husband, Chris since 2005 and they live north of Pittsburgh, PA. Jessica is a lab technician/ lab manager in a prostate cancer lab at the University of Pittsburgh and Chris is an electrician for a steel mill, Allegheny Ludlum.


Amanda Dean

 Bio coming soon!

Jill Gibson

 Jill Gibson is the Co-Representative for CHERUBS in Nevada and mom to survivor, Benjamin Gibson. Benjamin was diagnosed with his diaphragmatic hernia when Jill was 29 weeks pregnant. Benjamin made it full term and was born on Friday May 13, 2013 at Sunrise Hospital in Las Vegas, NV. He underwent his repair at 7 days, spent 15 days on a ventilator and was able to come home breathing and eating on his own after 28 days.

Since coming home, Benjamin has been hospitalized 3 times for RSV, severe reflux and an emergency double intestinal blockage from built up scar tissue. Today, he is a healthy and happy 2 year old who is talking up a storm and as active as mom could have ever hoped for.

Jill is 40 and a full-time single mom, Benjamin is her only child. She works full-time as the Group Training and Development Manager for Enterprise Rent-A-Car, Nevada. When she is not working, she enjoys spending time with Ben, attending church, going to Disneyland, painting and raising awareness for CDH. This past year she helped organize Nevada’s April 19th Day of Congenital Diaphragmatic Hernia Awareness by partnering with the Las Vegas 51s baseball team and Design and Wine painting studio.

Jill looks forward to the connections she will continue to make through CHERUBS by helping to bring families together, supporting others when needed, and raising awareness for CDH and CHERUBS.

 

Alicia Gilbert

Alicia Gilbert is the mother of CDH angel Jayden Scott Gilbert. Jayden was diagnosed with CDH in the Fall of 2009 at 17 weeks gestation. Alicia fought through a long list of complications and delivered Jayden a month early after which he spent 7 days on ECMO. After coming off ECMO, he had complications due to Pulmonary Hypertension & kidney failure and grew his wings at 23 days old on March 14, 2010.

Despite her grief and ongoing health issues due to Marfan syndrome, Alicia felt she needed to "pay it forward" for all Cherubs did for her & her family, and she stepped up to become a Hospital Angel in 2012, supporting CDH families in several Oregon hospitals. During health episodes her mother, a state co-rep, is a backup Hospital Angel in her down times. She also helped with the planning of the 2012 & 2013 Portland "Parade of Cherubs" events in Portland.

Alicia graduated high school in 2005 and worked in retail until medical issues took her out of the workforce.

Heather Hagist

Bio coming soon!

Rikke Hammer

Rikke Hammer, 36 years old, married to Mark Hammer living in Denmark, Europe. Just had a son with CDH, survivor, thank God (bad one with almost no diaphragm, liver, intestines, spleen and stomach involved)

I was google-ing around and couldn’t find any NGO involving CDH in Scandinavia but was lucky enough to find you and an English one. It so happens that I’m a former vice president in a large NGO for people with Ehlers-Danlos Syndrome (rare genetic disorder). And I couldn’t help to think, that this maybe a match made in heaven. There is no similarities between EDS and CDH and yet there is that same big issue about being a rare condition. EDS happens in 1 in 10.000-20.000 and is genetic dominant. I have EDS myself. The problems you face in the healthcare system as well as in the social system, are the same. And being a “rare” one, it is often that the care staff I see, have never seen a case like mine before. You quickly become your own doctor, nurse, and consultant and expert on your own condition, oversizing professional care staff in knowledge. You very much need a network to consult, ask questions, to assist you and to support you in your medical and in your everyday life.

I know about the Danish healthcare system, I have a degree in medicine (I’m not a doctor though) and I have a large NGO network and a lot of good people to back me up. And here I am – now volunteering for CHERUBS – and proud.

Laura Henderson

My name is Laura Henderson. I have been married for three years to Ryan. On July 1, 2013 we welcomed our daughter Lucie into the world. I am a part time stay at home mom and I work part time as a 2nd Angel for St. Louis, Missouri. I also plan on doing other volunteer work for CHERUBS, and I am a huge supporter of Cardinal Glennon Children’s Medical Center. grade classroom aide. I make rag quilts in my free time. I am a Hospital

At our 19 week ultrasound we were told that Lucie had fluid around our lungs, but they were not sure why. We were monitored frequently, but our doctor couldn’t explain the fluid and referred us to Fetal Care Institute at Cardinal Glennon Children’s Medical Center. At our 24 week ultrasound we were told that Lucie most probably had CDH. We went back at 25 weeks 1 day for an MRI to confirm.

Lucie was born at Cardinal Glennon because they feared she would not survive transport from the high risk hospital down the road. When she was born she actually let out two little cries before being whisked away to her OR room to be intubated. The first night she was almost put on ECMO, but stayed strong and hasn’t changed the attitude since. Lucie had her repair surgery at 10 days old and was extubated approximately a week later. After 29 days in the NICU, she went home on no respiratory or feeding support. She has been thriving ever since.


Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.

Evie Nanette was born 06/14/2007 with a left-sided CDH at University of Utah hospital and transported to Primary Children's Medical Center. The initial outlook was promising, but Evie's oxygen levels started failing. Unfortunately Evie was not a candidate for ECMO because of a small brain hemmorhage. We said goodbye to Evie, our first child, a short 14 hours after she was born on 06/15/2007.

Allyson Belle was born 02/27/2009 at 33 weeks with a left-sided CDH at University of Utah hospital and transported to Primary Children's Medical Center. Allyson did very well and had her diaphragm repaired 3 days after birth. While still in the NICU, she had to have a second repair. We finally got to take her home after 3 1/2 months. She was on a feeding tube and oxygen almost the entire time. In February 2010 Ally was back in the hospital for another repair. During surgery she had a pulmonary hypertensive crisis and spent a month in the PICU. In June 2010 Ally was discovered unconscious and not breathing in her crib. Her heart had stopped at some point and she suffered severe brain damage. She was taken off life support three days later, 06/11/2010.

Josh is our Co-Volunteer Coordinator and a member of the CPAB.  He is  is also the CHERUBS Utah Representative as well as serving on several other committees. Josh works in Law Enforcement and he and his wife Melanie have one other child, Gracie, and reside in Saratoga Springs, Utah.


Melanie Hensley

Bio coming soon!


Karla Holt

Karla is the mom of Braden Holt, born March 13, 2008. Shortly after birth he was diagnosed with a right side congenital diaphragmatic hernia. He was transported via helicopter to the Children's Hospital of Philadelphia. Braden's condition remained stable and he was able to have his diaphragm repair surgery the day after his birth. He recovered quickly and was able to come home on his 12th day of life! To date, Braden has had two other minor procedures. At 13 months he required surgery for an undescended testicle (orchiopexy) and had ear tubes placed in both ears in July 2010. Thanks to a year of in home feeding therapy Braden is now eating us out of house and home! He is a happy and energetic four-year-old who spends his days practicing his ninja moves (karate) and terrorizing his big sister, Brooke (age 8).

Karla lives with her family in Bucks County, Pennsylvania (Fountainville) and is the CHERUBS state representative for Pennsylvania, New Jersey, and Delaware. She teaches high school Spanish in the Abington School District and has studied in Seville, Spain. She also has a Master's degree in ESL. She loves running, swimming, and being outdoors with her family.

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Tara Hennebury

Tara is the mom of Caleb Francis, a four-year-old survivor born January 27th 2009, St. John’s, NL Canada at 39 weeks old. He was born with a diagnosed left-sided congenital diaphragmatic hernia. He spent 53 days in the NICU at the Janeway Children’s Health & Rehabilitation Centre in St. John’s, Newfoundland, Canada. Caleb was on the oscillator ventilator for 2 days and had his CDH repair at 3 days old. Caleb also had an undescended left testicle surgery at a year old and then had major bowel obstruction surgery at 1 ½ years old. Caleb is now 4 years old and is a very happy energetic boy that loves life to its fullest. Caleb loves animals, learning new things, playing video games on the Xbox Kinect.

Tara is a Canadian Representative for CHERUBS. She is recently married to her wonderful husband, Frank. Tara is a navy wife and a stay-at-home mom to Caleb. Tara has a BA in Human Kinetics from St. Francis Xavier University and an Advanced Diploma in Public Relations. She enjoys volunteering with CHERUBS, spending time with her family and friends, camping, listening to music, playing games, designing ornaments and glasses, etc.

KlinkerStacey Klinker

Bio coming soon!

Elizabeth Lopez

Elizabeth (“Lizz”) was born the youngest of 3 on December 28, 1972 in Burlington, NC. It was immediately obvious that there was something not “right,” since she was dark blue, stomach was flat (there is a first and last time for everything) and no sound was being produced from all the crying. Lizz was rushed to Chapel Hill, NC to what was then UNC’s Memorial Hospital where x-rays were taken, revealing what doctors had feared. The hole in her diaphragm, near the spine had allowed nearly all of her intestines to push up into the thoracic cavity, pushing the lungs to the sides and the heart toward the right. Four hours after being born, under the care of a talented young surgeon (now retired) who had luckily paid attention in his Pediatric Surgery rotation as a resident, surgery was done to repair the hole in her diaphragm and put all vital organs in their proper places, followed by a 6-week stay in the hospital. Luckily, there were no other complications and Lizz has lived a full and somewhat productive life.

Lizz is the very proud mom of 3 daughters, all born perfectly healthy. As an adult survivor who has never known anyone else with CDH until finding CHERUBS, she looks forward to bringing hope to parents of survivors and to grieving parents alike. Lizz is currently pursuing a Bachelor’s Degree in Nursing and has a “bucket list” mission to be photographed with as many other CDH survivors as possible! Her interests include making others laugh…and long walks on the beach, of course!


Marie Marchesseault

Marie Marchesseault is the mother of Anna, who was diagnosed with right-sided CDH in-utero after an ultrasound was done and more tests were performed, just to make sure everything was okay. After the diagnosis, Marie and her husband Bob were given the option to terminate the pregnancy by the hospital, but they chose not to, due to their personal faith. Anna was born by a scheduled c-section on November 29, 2001 and had a successful diaphragm repair at 5 days. She went on ECMO for 4 weeks and was in the NICU for a total of two months until she was discharged. Anna was an unusually happy baby in the NICU due to the family support and wonderful care of the MGH staff. Although she did not have any other major complications, she was in and out of the hospital about once per year for about 6 years for respiratory related issues. She was back in the hospital two times in 2012 but is generally an overall healthy child.

Marie’s husband Bob, their son, Benjamin, born in 1998, and their vizsla, Sammi, have been an integral part of managing Anna’s care and well-being. Marie has a BSEE from Duke University and they are members of First Baptist Church in Reading, MA. Because of the amazing support of her employer, she was able to take maternity leave when Anna was born and worked part-time for many years. She currently works full-time in the telecommunications industry and is the CHERUBS co-State Representative of MA.

 

deAnn Strother McGilberry

My name is deAnn, 2 of my 3 children were born with CDH. Claude lived 10 days and was diagnosied before birth at 20 weeks. Celie is 6 now and was born undiagnoised. ( Even with high risk ultra sound at 7 months ) She spent a month in NICU, surgery at 3 days. What a fighter , other than her scar you would never no she had such a ruff start. I also have a 10 yr old son Chambers. I have been married to my husband, Darren for 12 yrs. We are actively participating in CDH studies, we never want our children to go through what we have.

Having been on both sides of CDH I hope I can be there for other parents who are going through what we did.

Todd Mears

Bio coming soon!

Tracy Meats

Tracy is the mom of Ian Wesley, born April 3, 2004, at 36 weeks old. He was born with an undiagnosed left-sided CDH. He spent 53 days in the NICU at Primary Children's Medical Center in Salt Lake City, Utah. Ian was on ECMO for 7 days and had his CDH repair on day 5. On day 48, he had left and right inguinal hernia surgeries, along with an undescended left testicle surgery. He was on a ventilator for 29 days, of which 23 days was an oscillating vent. He endured many complications including pulmonary hypertension, NG tube feeds, developmental delays, minor oral aversions, hypoplastic left lung, chylothorax, pneumothorax, anemia, acid reflux, and oxygen dependency. Ian used oxygen for 546 days. He currently has abnormal systemic venous drainage above the heart with numerous collateral vessels and an echogenic mass on the heart, all due to ECMO. Ian loves school and his video games!

Tracy is the Wyoming State Representative and Volunteer Coordinator for CHERUBS. She is married to her loving husband, Chris, and they have 3 other sons besides Ian; Cole, Shane and Toby. She is an Avon Representative and her full-time job is a stay-at-home mom. Tracy has a BS in Accounting and has worked as an auditor and tax consultant. She enjoys volunteering to help CDH families, reading, playing and listening to music, anything crafty, and fishing.

Teresa Meherg

Teresa Meherg, of Fayette, Alabama, is the paternal grandmother of Hunter Easton Mcdonald, born April 13, 2012 with left-sided hernia. After successful surgery Hunter progressed toward recovery until late October when he developed a pocket around his hernia site and developed Pneumonia.

On October 30, Hunter earned his wings and is now zooming through the heavens with his Cherub friends.

Teresa is also grandmother (Nana) to Spencer age 12, Sara Beth age 6, and Sydney age 4, who all enjoy the long-standing motto at her house: "I can at Nana's".


Tracy Meyer

Tracy Meyer is the proud mother of Lillian Sophia, born on June 7, 2011 at North Shore Long Island Jewish Hospital (Stephen & Alexandra Cohen's Children's Medical Center). Tracy found out that Lily was diagnosed with left-sided CDH during her 36-week sonogram. With the love and support that was given to the Meyer family, Lily proved the world that she is a fighter and there is hope. After a successful surgery 3 days after she was born (which was performed laparoscopically), Lily was in the hospital for almost 2 weeks and came home on Father's Day. Known as the “miracle angel,” Lily still amazes everyone to this day how strong of a fighter she is.

Tracy resides on Long Island, New York with her husband, Christopher. She has been a CHERUBS volunteer for New York since June 2012. Tracy has a BS in Accounting and AS in Computer Science and has been working in the accounting field since 2003 working in audit and tax. Whether it’s at the eastern end of Long Island at the wineries or having a get together at home, Tracy loves spending time with friends and family.

Shelly Moore

Shelly is mother to 3 adult children & 3 grandchildren, the youngest being her Cherub angel grandson Jayden Gilbert who lost his battle to CDH & kidney failure due to pulmonary hypertension complications at 23 days old on March 14, 2010. She is currently serving as as a CHERUBS Co-Representative for Oregon as well as sharing CHERUBS Hospital Angel duties with her daughter Alicia Gilbert, mother to Jayden. Shelly & Alicia came to CHERUBS just before Jayden was born, and even through the loss of their angel have been an active part of contests and awareness campaigns over the past two years for CHERUBS and have extended support to fellow CDH families all over the globe. She was also co-organizer for the “Portland Parade of Cherubs” on April 19, 2012.

Shelly has a background in computers and has worked primarily as a Windows technical support specialist in the home user market for over 10 years with additional years in customer service after leaving several years employment in the health care industry. She also served as a past president of the former Oregon Chapter of the National Marfan Foundation (NMF) for 7 years & currently supports the NMF as a telephone contact. She & her husband have been married for almost 19 years and they are avid Oregon Ducks & Portland Trailblazers fans.

Karen Myers

Hello, my name is Karen Myers, and I am the mother to Kaleigh Marie who was born on 30 July 2002. She was born at Wilford Hall Medical Center, in San Antonio TX, after learning at 20 weeks gestation she would be born with a left sided Congenital Diaphragmatic Hernia. She spent 10 days on ECMO and had her CDH repair on her 15th day of life. Unfortunately she passed away when she was 17 days old. I am also the mother to another angel, William Logan, who was stillborn on 26 May 2005, at 27 weeks gestation, due to non-immune hydrops fetalis. After much testing and genetics couseling it was deemed that there was no connection between the CDH and Hydrops.

I have 3 other beautiful children. Alec, who is 20 and off at college. Aubrey, who is 9 and going into the 4th grade and Jackson, who will be 4 and starting Pre-K soon. I also have a wonderful husband, Will, who is active duty Army and I am a stay at home mom. We currently reside in Crestview Florida but move when the Military says so. I have been a member of CHERUBS since finding out about Kaleighs CDH and wouldn't be the somewhat sane person I am today with out all of the volunteers love and support over the years as well as all the wonderful parents I have met along the way who journey through this horrible defect together.

Elizabeth Payne

Bio coming soon!

Amanda Plakholm

Bio coming soon!

Darlene Silverman

Darlene has been a member of CHERUBS since 1999 and has served as a Board Member, Secretary and on several committees.  She is currently on our Research Committee.

She has an A.A. Degree from Montgomery College in Maryland. She has worked as a Legal Assistant/Secretary since 1974 at numerous law firms whose primary practice was litigation and medical malpractice defense. She has raised 5 children and has 8 grandchildren (first grandchild born in 1998 with LCDH).

Donna Stolz

I am Donna Stolz and I am the state representative for South Dakota. I have been married 11 adventuresome years to my love, Brett, and we reside in Sioux Falls, SD. We have our amazing precious son Brody (our CDHer) who was born in August of 2008 and our sweet daughter Zoey who was born in November of 2011. With our son, Brody, we were informed at the end of first trimester that something was ‘not right.’ By the middle of the second trimester we knew that he was a left sided CDH baby. We delivered in Minneapolis Children’s Hospital as he needed ECMO and stayed in Minneapolis for half of his NICU stay before being transferred to the Sanford NICU in Sioux Falls, SD for the remainder of his stay, in all, about 3 months. My family is my love and my life!


tatianaJacqui Taylor-Jackson

Bio coming soon!

Lisa Thibeau

Lisa is mom to Adam Alexander. Adam was born 8/14/2002 with undiagnosed Right sided CDH. He was born in Hammond, Louisiana and transferred by Life-Flight 4 hours later to Ochsner Hospital. He was stable enough for his repair on day 3 and was on ECMO on day 4. He spent 10 days on ECMO, 23 days on a respirator, and 44 days on Oxygen. He had a fundoplication and a g-tube placed (removed at 13 months), and 2 inguinal hernia repairs before coming home on October 17, 2002. Today he is almost 10 years old, he has interstitial lung disease and asthma. His last surgery was January 2010 to repair a patent ductus arterosis. He loves lego, computers, play station and swimming, he is entering the 5th grade this year!

Lisa is also the State Representative for CHERUBS in Louisiana. She is married to Dana Thibeau, they also have two amazing daughters Skylar (14) and Katelyn (6), is a stay at home mom, and all of the children are home schooled. She is active in her local home school group, and Bible Drills.

Julie Tunnell

Julie is the Ohio state representative for CHERUBS and lives in Columbus, Ohio. She is the mother of a 19 year old twin, Jessica, who was born with right sided CDH. After a double c-section for twins, Jessica was placed on ECMO within 24 hours and spent 2 weeks on the life-giving machine. At the Nationwide Children’s Hospital in Columbus Ohio, the surgeon performed a risky surgery, while Jessica was still connected to ECMO, her hernia was repaired with a gortex patch and miraculously the liver moved down from her right chest cavity. Following this surgery, she was in PICU and NICU for a 2 month stay until she was released to come home on oxygen and NasoGastric (NG) feeds. Jessica has endured many complications due to her CDH, such as asthma, pulmonary hypertension, scoliosis, gastro esophageal reflux (GERD) and a Nissan fundoplication surgery to name a few. She also had to have a craniotomy (brain surgery) to remove a fluid pocket on her brain, which was likely caused by ECMO. She is just starting her new life in college this Fall and I am so proud of all that she has been able to accomplish in spite of her start with less than a 50% chance of survival.

Julie is also mother of Jessica’s twin brother, Jordan, who is in college in Colorado and an older daughter, Kristine, who is living and working in Littleton, Colorado with her new husband Casey. She is married to Kurt Tunnell who is an attorney and lobbyist in Columbus, Ohio. Julie was an elementary enrichment teacher for 8 years and then served as a supervisor for gifted education in Dublin, Ohio for 4 years. She loves to collect antiques, quilts, and research her family genealogy. Other recreational interests include tennis, walking, running, and bird watching. She hopes to travel more now that all her children are grown and in college and encourage mothers and families of CDH babies and children.

 

uhlDanielle Uhl

Bio coming soon!

 

Gemma Van Rillaer

My name is Gemma Van Rillaer and i'd like to introduce myself. I am married to Renaat and together we have Jaak and Eilidh. Eilidh was diagnosed with LCDH at 8 months and 25 days on the 4th July 2010. She had surgery the following day and had a gortex patch fitted in her diaphragm. She's now in her foundation year of nursery school and although she has some issues she's always smiling.

We moved to Dubai in 2013 and enjoying it very much. I hope to raise awareness of CDH in the UAE and of the wonderful work Cherubs does.

 

Felecia Woodruff

Felecia is the mom of Bryson Woodruff, born July 30th, 2012 at The Children’s Hospital of Philadelphia. He was diagnosed with left congenital diaphragmatic hernia and a lung lesion on his right lung during his 20-week anatomy scan and was referred to CHOP. Bryson was born at 39 week via emergency c-section and was put on ECMO after a few hours. He was on ECMO for 21 days and had his CDH repair surgery at 32 days old with a patch. He came home after 90 days in the NICU with only an NG tube and a few medicines.  He is a very happy and loving brother to his big sister, Hayden.

She lives with her husband and 2 children in Delaware County, Pennsylvania and is a CHERUBS state representative for Pennsylvania. She is an office manager for a lawn care company and a front desk coordinator for a hair salon.

 

 

Nicki Young

Nicki Young is the mother of Anderson, born on September 21, 2012 at 39 weeks. 8 days prior, they found out that Anderson had left sided CDH, which was not detected on their 18 week ultrasound. Anderson spent 28 days in the NICU at Banner Desert Hospital, in Mesa, AZ. During the first couple hours of life, Anderson was on “stand by” with another hospital in the valley, to life flight him to be put on ECMO. However, Anderson was a true fighter and they were able to stabilize him. He was able to stay at Banner Desert, where he is considered a miracle and not the “typical” CDH patient. At 3 1/2 days old he had his diaphragm repair surgery and at 9 days, was taken off all breathing tubes, oxygen and nitric. Nicki’s family is familiar with CDH, as her oldest brother passed away from CDH in Utah, back in the early 70’s, after living only 8 hrs. Anderson shares his middle name of Kimball, with his Uncle who passed away of CDH. This was planned BEFORE they found out Anderson had CDH.

Nicki is a Hospital Angel in Arizona. She is married to her husband, Kevin, and together they have a blended family of 10 children they are raising (4 biological and 6 step children). Nicki was born and raised in a large family of 11 children (9 living) in a northern suburb, outside of Chicago. She attended several colleges in Utah, as well as served a volunteer 18 month service mission in Utah for her church. She relocated to Arizona, to marry her husband and has lived there since 2005. Nicki does her best to reach out to others who are affected by CDH. She is active in her church service and raising 10 children.

ysasiSara Ysasi

Bio coming soon!

 

 
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2017 - News from CHERUBS

Finish up the CDH Survey - Get a FREE Hat!

The CDH Research Survey went live on April 1st but in order to take full advantage of all research opportunities, we need ALL families to fill out the complete CDH Research Survey.  

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Have you registered for the 2017 CDH Conference in July in SLC?

Make sure to register to attend the largest annual CDH event and the first conference in the midwest in several years!

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Carshow Carnival on June 24th in Lewiston, Idaho

Join us on June 24th at Locomotive Park for a fun car show put on by Girl Scout Troop 2601

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