Executive Board Members

   In 2012, CHERUBS restructured our Board into 3 boards: Executive Board of Directors, Medical Advisory Board, and the Parent Advisory Board.

   The purpose of the Executive Board of Directors is to oversee all aspects of our charity, the business end of the charity, funding for our services and guidance for the future of our charity. We are honored to include the following on our Board:

Dawn Williamson
Ashley Barry
Mark Fulk
Katherine JoAnn Haney
Warren Sumner
Tracy Meats
M Shane Perry


Dawn Torrence Wiliamson
President & Founder

  Dawn is the mom of Shane Torrence (1/28/93-9/11/99). Shane was born with left-sided CDH, ASD, hypospadius, pulmonary sequestration, descended testes, and multiple other birth defects. Shane spent his first 10 months in the PICU at Duke University Medical Center and many more hospitalizations at the University of North Carolina at Chapel Hill. He had a trach for 3 years while he was on a ventilator for 2 years and oxygen for 2 and a half years. He also had a Mic-Key feeding tube, hearing aids, oral aversions, developmental delays and textile aversions. He suffered multiple complications including 6 CDH repairs, pulmonary hypertension, blindness for a year, hearing impairment, Cerebral Palsy, multiple blood infections and pneumonia and was lost to a very rare case of gastropleural fistula at age 6 and a half.

   She is married to Craig, and they have 2 boys; 17-yr-old twins Braden and Garret. Going back to school to learn more about how to help our charity, she has a 4.0 in college while taking such courses as Biology, Anatomy, Medical Terminology, Business, Web Development, Public Speaking and more. She also is very active in her local community, belonging to several business and civic organizations as well as her local church.

Curtis Van Horne
Treasurer

Profile Coming Soon

 

 

 

 

 

 

 

 

Mark Fulk
Secretary

Mark Folk is the owner of Hometown Insurance Brokers, Inc. and has been in the insurance industry for 14 years. He is a Raleigh, NC native and attended UNCG where he graduated Academic All-American.

His passion is soccer. He played for his college team when they were Division 2 National Champion finalists. Mark went on to play soccer professionally with the Greensboro Dynamos where he was a 2-time Nation Champion.

Mark lives in Raleigh with his wife Rachel and their 3 children, Asher, Bodie, and Nola faithfully guarded by their 8-pound maltipoo, Max. 

 

 

 

Katherine JoAnn Haney

Board Member

Katherine JoAnn Haney has worked in governmental affairs for more than two decades; notably with the Austrian Consulate, NC Bar Association, and the NC Department of Administration. She has worked in numerous elections and is well-versed in party politics and platforms. She has managed every aspect of a campaign including strategy, media, correspondence, designing marketing materials, direct mail, polling, calendar, fundraising, coordinating volunteers, phone banks, neighborhood walks, event planning, messaging, budgeting and grassroots outreach.

Haney currently works on Governor McCrory’s Initiative to Reduce Underage Drinking via the NC ABC Commission as the Coalitions Director responsible for federal, state, and local community outreach.

She has started numerous small businesses and presently does consulting work in interior design, copy editing, and politics.

Haney is a native of Golden, Colorado, and is a graduate of the University of Colorado at Boulder. She lives in Raleigh.

Warren Sumner
Board Member

Profile Coming Soon

 

 

 

 

 

 

Tracy Meats
Parent/CPAB Liaison 

Tracy is the mom of Ian Wesley, born April 3, 2004, at 36 weeks old. He was born with an undiagnosed left-sided CDH. He spent 53 days in the 

NICU at Primary Children's Medical Center in Salt Lake City, Utah. Ian was on ECMO for 7 days and had his CDH repair on day 5. On day 48, he had left and right inguinal hernia surgeries, along with an undescended left testicle surgery. He was on a ventilator for 29 days, of which 23 days was an oscillating vent. He endured many complications including pulmonary hypertension, NG tube feeds, developmental delays, minor oral aversions, hypoplastic left lung, chylothorax, pneumothorax, anemia, acid reflux, and oxygen dependency. Ian used oxygen for 546 days. He currently has abnormal systemic venous drainage above the heart with numerous collateral vessels and an echogenic mass on the heart, all due to ECMO. Ian loves school and his video games!

Tracy is the Wyoming State Representative and Volunteer Coordinator for CHERUBS. She is married to her loving husband, Chris, and they have 3 other sons besides Ian; Cole, Shane and Toby. She is an Avon Representative and her full-time job is a stay-at-home mom. Tracy has a BS in Accounting and has worked as an auditor and tax consultant. She enjoys volunteering to help CDH families, reading, playing and listening to music, anything crafty, and fishing.

M Shane Perry
Charity Attorney

Profile Coming Soon

 

 

 

 

 

 

George Harb
Board Member

Profile Coming Soon

 

 

 

 

 

 

 

Ashley Barry
Vice President Emeritus

  Ashley Barry, Treasurer, has been a member of CHERUBS since her daughter Jessica, a CDH survivor, was born in 2005. In addition to serving on the executive board for CHERUBS, she is also active in several committees including the NC event, grant writing, and fundraising committees. Professionally, Ashley works as a scientist researching novel cancer therapeutics. She received both her undergraduate and masters degrees from UNC- Chapel Hill, where she was also a member of the Varsity Fencing team.

Ashley lives in Morrisville, NC with her loving husband Chris, two daughters Jessica and Leah, two cats, and a dog. She enjoys reading, traveling, crafting, cooking and being active.

News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...

 
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2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...