CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
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CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
CHERUBS Financial Information
Our non-profit's operational costs for 2009 were just 18%!

We know that donations are hard to make and as such, you should well
research every charity that you donate to. Some must knows about
CHERUBS as you contemplate which charity to support with your hard
earned money:
- All donations made to CHERUBS, both cash and in-kind are tax-deductible.
- Donations made by December 31st are tax-deductible for that year's tax return.
- In-kind donations, including those made to our CDH HOPE Totebag project, are tax-deductible.
- Donations can be made in honor or in memory of someone.
Donations made in lieu of flowers at memorial services are also deeply
appreciated.
- Donations are listed in our newsletter and families
receive donation acknowledgements when someone sends a gift in honor or
in memory of their cherub.
- Donations are used to directly assist families affected by
CDH through 5 different funds (listed below). Donations made to
specific funds can be made by clicking on the fund name below:
- CDH Family Support Fund
– this fund covers all support services, including our web sites,
newsletters, conferences, New Member Packets, get-togethers and other
general operating costs. CHERUBS does a lot for CDH families and the
CDH community and we incur quite a few costs during so. Just 1
newsletter mailing is now over $3000 for printing and posting with so
many members. Our conferences are also expensive. Our monthly expenses
are several hundred dollars for ink, postage, web site hosting fees,
etc. It takes a lot to fund an organization with almost 3000 members.
Remember, no one at CHERUBS gets paid and we have no office so every
penny directly helps CDH families. And all of our services are FREE so
we do charge membership fees.
- CDH Research Fund
– to pay for the $1000 a year cost of research database hosting,
programmer and to raise money for research organizations such as the
International CDH Study Group. The CDH Study Group is a collective
group of over 30 hospitals around the world specializing in CDH
research. We chose to support groups like this one because we know that
every cent will go directly to research on Congenital Diaphragmatic
Hernia and research will be brooder and more advanced when
collaborating with dozens of hospitals and researchers together.
- CDH Family Assistance Fund
– A majority of this fund will go to help families with travel expenses
such as airline tickets and gas. It will not go to lodging because
CHERUBS highly recommends the free lodging available at Ronald McDonald
Houses. Families will submit confidential applications to assistance
and a committee will consider each request. Our goal is to make sure
that all CDH families can afford to get to their cherub’s medical
center and have a place to stay so that they can concentrate on their
children instead of travel worries. We hope to assist a family through
this fund by Fall, 2010. The remaining small percentage of this fund
will go to the CDH HOPE Totebag Project, a new program that helps new and expectant families by supplying them with items needed during their cherub's hospital stay.
- CDH Awareness Fund
– this fund helps to raise awareness of Congenital Diaphragmatic Hernia
through balloon releases, giving away free CDH ribbon buttons and
brochures and other items. It will also cover advertising costs,
billboards, video production and much more.
- CDH Scholarship Fund
– for CDH survivors and siblings. Families can raise money to give
scholarships in honor / memory of their cherubs. We hope to award our
first scholarship in 2010.
- Donations can be made on-line on our
web site through PayPal.com, a secure site that we've used for over 10
years for donations. http://www.cdhsupport.org/donate/index.php PayPal accepts all major credit cards from around the world.
- Donations can be made by mail through check or money order
(U.S. currency only please) made out to CHERUBS, 3650 Rogers Rd #290,
Wake Forest, NC 27587
- CHERUBS never charges families for our services,
materials or totebags. Our membership is free and always has been.
Against the advice of accountants, auditors and other non-profit
leaders, we have resisted mandatory subscription fees or charging for
entrance into our forums or events. We have asked for members to make
annual donations if they can afford to do so but it is never required.
We want every CDH family who needs help to be able to freely access it.
- CHERUBS currently does not receive any grant funding. Our charity subsists solely from donations and fundraisers.
- CHERUBS has very little overhead with no office, donated
phone lines and internet and no utility bills. But monthly expenses
still add up quickly with 3000 members to serve.
- Only 2% of our members donate annually, with less than .5%
volunteering. We depend on public donations greatly to keep our
services and charity running.
- Donations make possible our annual CDH Conference, our
newsletter, our web sites, our CDH HOPE Totebags, awareness materials,
postage fees, awareness events and our 5 Funds. We do a whole lot of
good on less than $30,000 a year in donations!
- Your donation will never go to pay anyone's salary.
CHERUBS is run solely by volunteers and always has been. Our President
has logged over 25,000 hours of volunteer work at CHERUBS in the past
15 years and our other volunteers have donated 1,000's of hours as well
to help families affected by CDH.
- We do not pay lawyers, accountants, marketing executives
or other 3rd parties and try to find sponsors and volunteers for in
house needs such as web design, programming, graphic art, etc. We are
blessed to have many amazing volunteers and pro bono professionals who
want to help CDH families.
- CHERUBS has been audited and publicly files financial reports every year on our web site as well as with GuideStar.com - so you can rest assured where your donation money goes.
- CHERUBS posts our 990 tax returns and our financial
reports - to show how much money in donations that we receive - and
where your donations are spent. In detail. Very few charities do this,
as by law it's only required to show people our tax returns (and only
if they ask). CHERUBS has an open book policy when it comes to our
financial info and our missions. We believe in high ethics and honesty
and making sure that our members, and the public, know what we stand
for.
- CHERUBS never "filters" donations. We do not serve as a
bank system for donors to channel money to other institutions and use
those donations as a marketing ploy for our charity. We encourage
members to donate directly to hospitals and other charities themselves
- since they are also non-profits. Credit should be given to those who
worked hard to fundraise and raise awareness - the families. That said
- if you'd like to donate directly
to specific CDH center, we highly encourage you to do so and ask that
you do not donate to them indirectly through us.
That just makes more paperwork for both charities and takes the
appreciation from the true donor - you! We would be happy to help you
locate a contact person to accept your donation.
- CHERUBS never "banks" donations. Our donations are used
immediately to serve the CDH community, instead of sitting in an
account doing no one any good except collecting a little bit of
interest. By law, charities cannot "save" large amounts of funds as the
entire mission of any charity is to serve others.
- CHERUBS has never used a cent of donation money for any
lobbying, trademarks, lawyers fees, or other government or legal
issues. We make sure that every penny donated to our charity directly
helps CDH families, not politics or special interests.
- CHERUBS is a grassroots charity run by a large array of
those affected by Congenital Diaphragmatic Hernia. Our Board of
Directors includes CDH parents, grandparents, survivors, nurses,
doctors and the world's top CDH researchers. No other charity in the
world has such a respected, educated or experienced group of leaders
who care so much about the CDH community.
- CHERUBS has been a non-profit for 15 years. We are not a
fly-by-night organization. We are the world's first and largest charity
for Congenital Diaphragmatic Hernia with over 3000 members in 38
countries and all 50 states. We are a trend-setter in the services that
help families affected by CDH, leading the way for other groups and
newer charities who have followed in our footsteps. We will continue to
lead until Congenital Diaphragmatic Hernia is no more. We are devoted
to finding the cause, prevention and best treatments for CDH.
- CHERUBS is a founding member of the Alliance of Congenital
Diaphragmatic Hernia Organizations, dedicated to work together with
integrity on one mission - helping CDH families.
<>At CHERUBS, we know there are a lot of
charities out there who are equally as worthy of your time and
donation. We appreciate your consideration and your support of those
affected by Congenital Diaphragmatic Hernia and hope that you will
choose CHERUBS as the recipient of your kindness so that we can
continue to help CDH families around the world.>
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