CDH Study Groups

The International Congenital Diaphragmatic Hernia Study Group is a joint research effort by over 50 hospitals. Hospitals summit their patient data to a central database, which is then compared to search for the best treatments of CDH.

You can visit the CDHSG at

CHERUBS is proud to work with the hospitals in the International CDH Study Group and to share our research database findings so that together we can help find the cause, prevention and best treatments for CDH. We had the priviledge to meet and talk with Pam Lally, the CDH Study Group Database Engineer at the APSA Conference in 2009 and again at CHERUBS Conference. We even had the opportunity to sit down with her and share our databases and findings. It was both enlightening to know that our database research reinforced both group's finding but also disappointing in that nothing jumped out at us that would further our work in certain areas. We are very excited to work on our new CDH Research Site and get more long-term data that will help further CDH research for all of us.

Thank you to Drs. Kevin and Pam Lally for all of their support of CHERUBS and for all their dedication to families affected by CDH.

The following hospitals see many cases of CDH a year and participate in research with the International CDH Study Group. They do not represent all hospital that work with CDH patients. This list should not be used to chose a particular hospital for your cherub.


Current CDH Research Studies

Identifying Genes Which Cause CDH

   Massachusetts General Hospital
   Drs. Patricia Donahoe & Lewis Holmes

Contact: Meaghan Russell
  (617) 726-0828
  This email address is being protected from spambots. You need JavaScript enabled to view it.

Identifying Genes Which Cause CDH

   Baylor College of Medicine
   Daryl Scott, M.D., Ph.D., Department of Molecular & Human Genetics

  One Baylor Plaza, MS BCM225, Houston, TX, 77030, USA
  (713) 203-7242
  This email address is being protected from spambots. You need JavaScript enabled to view it.

Genetic Molecular Basis of CDH

   Columbia University Medical Center
   Drs. Patricia Donahoe & Lewis Holmes

   1150 St. Nicholas Ave, New York, NY, 10032
  (212) 305-6987
  This email address is being protected from spambots. You need JavaScript enabled to view it.

Fryn's Syndrome

  University of California

Contact: Anne Slavotinek (415)
  (713) 203-7242

Identifying Genes Which Cause CDH

  Emergen Labs, Salt Lake City, UT

Contact: Mary Meade
  This email address is being protected from spambots. You need JavaScript enabled to view it.

Participating Hospitals

Hospital City State Country
Sydney Children’s Hospital Randwick NWS Australia
Royal Children’s Hospital Parkville Victoria Australia
University Hospital Gasthuisberg B-3000 Leuven   Belgium
Royal Alexandra Hospital Edmonton Alberta Canada
The Hospital for Sick Children Toronto Ontario Canada
Universitatsklinikum Manneheim gGmbH Mannheim   Germany
Freie Universitat Berlin Berlin   Germany
Salesi Children’s Hospital Ancona   Italy
Ospedali Pediatrico Bambino Gesu Rome   Italy
Ospedali Riuniti Bergamo Bergamo   Italy
National Center of Child Health and Development Tokyo   Japan
Central Hospital Aichi Prefectural Colony Kasugai Aichi Japan
Osaka Medical Center for Maternal and Child Health Izuki Osaka Japan
Osaka University Graduate School of Medicin Suita Osaka Japan
Royal Hospital for Sick Children Glasgow yorkhill Scotland
Astrid Lindgren Stockholm   Sweden
Sophia Children’s Hospital Rotterdam   Netherlands
Children’s Hospital of Alabama Birmingham AL United States
St. Joseph’s Hospital & Medical Center Phoenix AZ United States
Phoenix Children’s Hospital Phoenix AZ United States
Cedars Sinai Medical Center Los Angeles CA United States
Children’s Hospital of Los Angeles Los Angeles CA United States
Mattel Children’s Hospital at UCLA Los Angeles CA United States
San Diego Children’s Hospital San Diego CA United States
University of California San Diego San Diego CA United States
Children’s Hospital of Oakland Oakland CA United States
Loma Linda University Children’s Hospital Loma Linda CA United States
Lucile Salter Packard Children’s Hospital Pal Alto CA United States
Yale New Haven Children’s Hospital New Haven CT United States
Children’s National Medical Center Washington DC United States
Arnold Palmer Hospital for Women & Children Orland FL United States
Shands Children’s Hospital/University of Florida Gainesville FL United States
Emory University Atlanda GA United States
Medical College of Georgia* Augusta GA United States
University of Chicago Chicago IL United States
Children’s Hospital of Illinois Peoria IL United States
Lutheran General Hospital Park Ridge IL United States
Rockford Memorial Children’s Hospita Rockford IL United States
James Whitcomb Riley Children’s Hospital Indianapolis IN United States
Children’s Mercy Hospital Overland Park KS United States
University of Kentucky Medical Center Lexington KY United States
Kosair Children’s Hospital Louisville KY United States
Tulane University Hospital New Orleans LA United States
Children’s Hospital Boston Boston MA United States
Massachusetts General Hospital Boston MA United States
University of Michigan Medical Center Ann Arbor MI United States
Children’s Hospital of Michigan Detroit MI United States
DeVos Children’s Hospital Grand Rapids MI United States
St. Paul Campus Children’s Minneapolis Minneapolis MN United States
Children’s Hospital ofMinneapolis* Minneapolis MN United States
Mayo Clinic Rochester MN United States
Cardinal Glennon Children’s Hospital St. Louis MO United States
St. Louis Children’s Hospital St. Louis MO United States
University of Mississippi Medical Center Jackson MS United States
University of North Carolina Chapel Hill NC United States
Children’s Hospital at Carolinas Medical Center* Charlotte NC United States
Duke University Medical Center Durham NC United States
North Carolina Baptist Hospital Winston-Salem NC United States
University of Nebraska Medical Center Omaha NE United States
University of New Mexico Medical Center Albuquerque New Mexico United States
Strong Children’s Hospital Rochester NY United States
Children’s Hospital of Buffalo Buffalo NY United States
Children’s Hospital of Akron Akron OH United States
Cincinnati Children’s Hospital Medical Center Cincinnati OH United States
Cleveland Clinic Foundation – Children’s Hospital Cleveland OH United States
Columbus Children’s Hospital Columbus OH United States
Miami Valley Hospital Dayton OH United States
Miami Valley Hospital Cleveland OH United States
St. Francis Children’s Hospital Tulsa OK United States
Legacy Emanuel Children’s Hospital Portland OR United States
St. Christoper’s Children’s Hospital Philadelphia PA United States
Children’s Hospital of Philadelphia Philadelphia PA United States
Hershey Medical Center Hershey PA United States
University of Puerto Rico Medical Center San Juan Puerto Rico United States
Hasbro Children’s Hospital Providence RI United States
Medical University of South Carolina Charleston SC United States
T.C. Thompson Hospital Chattanooga TN United States
Vanderbilt Children’s Hospital Nashville TN United States
Santa Rosa Children’s Hospital San Antonio TX United States
Texas Children’s Hospital Houston TX United States
University of Texas Medical Branch at Galveston Galveston TX United States
Wilford Hall USAF Medical Center Lackland AFB TX United States
Children’s Hospital of Austin Austin TX United States
Cook Children’s Medical Center Fort Worth TX United States
Memorial Hermann Children’s Hospital* Houston TX United States
Primary Children’s Hospital Salt Lake City UT United States
University of Virginia Health System Charlottesville VA United States
Medical College of Virginia Richmond VA United States
Children’s Hospital of Wisconsin Milwaukee WI United States

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2017 - News from CHERUBS

2017 Year In Review

Thank you all for helping us to accomplish many goals this year!   Look at what we accomplished together in 2017:


National Children's Memorial Day 2017

Our main web site at has turned black for National Children's Memorial Day in memory of all the cherubs lost to Congenital Diaphragmatic Hernia.


2017 CDH Conference

Our 2017 International CHERUBS CDH Conference was a huge success.