Congenital
Diaphragmatic Hernia Congressional Bills
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| Congential Diaphragmatic Hernia Research Bill | Congenital Diaphragmatic Hernia Awareness Bill |
| The Bill | CDH | CHERUBS | Contact Senate | Contact House | DONATE | We Beat The CDH Awareness Trademark! | Sign Petitions |
| Congential Diaphragmatic Hernia Research Bill In support of research funds for the severe birth defect, Congenital Diaphragmatic Hernia. Sponsor - Sen. Jefferson Sessions CDH affects 1600 babies in the United States every year, with a 50% mortality rate. It occurs when the diaphragm fails to fully form, allowing the organs into the chest cavity and preventing lung growth. The cause of Congenital Diaphragmatic Hernia is not known. There is very little research on CDH, even though it is as common as Cystic Fibrosis and Spina Bifida. More research funds are desperately needed and we are appealing to the United States government to help these babies. Please ask your Congressmen to support Senate Bill S.3396 Click here to track the progress of the Bill. | Congenital Diaphragmatic Hernia Awareness Bill In support of preventing trademarks on any phrase that inhibits awareness of any cause. The first and only trademark on awareness of a cause in the United States is "Congenital Diaphragmatic Hernia Awareness" and was filed in 2007 by Breath of Hope, Inc and harmed CDH patients and their families by limiting CDH awareness and in turn, hampering CDH research. This precedent setting trademark opened doors for trademarks such as "Autism Awareness", "Breast Cancer Awareness" and all causes, impeding awareness efforts and research funds that can help millions. UPDATE: We Beat The CDH Awareness Trademark! After 2 years, the trademark on "Congenital Diaphragmatic Hernia Awareness has been finally been removed! Our sincerest appreciation to our pro bono legal team at Parker Poe Adams & Bernstein, LLP! |
UPDATE on the CDH Research Bill: On July 18, 2012 Senator Jefferson Sessions (R-AL) formally introduced the Congenital Diaphragmatic Hernia Research Bill, co-sponsored by Senator Benjamin Cardin (D-MD). Please ask your Congressmen to support Senate Bill S.3396 Click here to track the progress of the Bill.
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Be a part of history and help babies affected by Congenital Diaphragmatic Hernia by supporting both of these bills. Click on the links below to learn what easy things you can do to help. |
| Congential Diaphragmatic Hernia Research Bill | Congenital Diaphragmatic Hernia Awareness Bill |
| The Bill | CDH | CHERUBS | Contact Senate | Contact House | DONATE | We Beat The CDH Awareness Trademark! | Sign Petitions |
| Contact | Facebook | CDH Research | CDH Support |