• Featured Cherub of the Week
  • CDH Family Forums
  • Over 800,000 babies affected by CDH
  • Over 6000 CDH Families Served
  • April 19th is CDH Awareness Day
  • Over $1 MILLION Raised for CDH
  • World's Largest CDH Charity
  • CDH Scholarship
  • CDH Financial Assistance Grants
  • CDH Research Database
  • CDH Awareness & Research on Capitol Hill
  • CDH Research Grants
  • Alliance of Congenital Diaphragmatic Hernia Organizations
  • 92 cents of every dollar goes to the cause
  • Buildings and Towers Light for CDH Awareness
  • Serving CDH Families Since 1995
  • CDH HOPE Totebag Project
  • Over 1000 Stories of CDH Patients
  • Raising CDH Awareness on the NYSE
  • CDH Blog Talk Radio
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Congenital Diaphragmatic Hernia

Thank you all for helping us to accomplish many goals this year!  We look forward to gaining new ground for our cause in 2016!

  • Reached over 6000 families and medical care providers in our membership
  • Awarded over $40,000 in CDH Research Grants
  • Sent out over 120 CDH HOPE Totebags
  • 2016 ACDHO CDH Conference in Paris bought together 5 charities
  • Published CDH Research Survey findings with Toronto Sick Kids at American Academy of Pediatrics
  • Congressman George Holding visits our office
  • Met with leader of the NICHD at the National Institutes of Health to discuss funding for CDH
  • Joined the Friends of NICHD charity alliance to further funding for child diseases and defects
  • Unanimous passing of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month in the U.S. Senate
  • Introduction of of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month into the U.S. House of Representatives
  • Gathered 48 state proclamations, bringing us to all 50 states proclaiming April 19th
  • Met with Congressmen on Capitol Hill
  • Dear Nicholas Sparks book published
  • Met with Nicholas Sparks
  • CHERUBS first book signing event
  • NFL NY Giants player Perry Williams visited our office
  • Bought on 2 new members of the Executive Board of Directors
  • Added 2 new members to the Medical Advisory Board
  • Represented CDH families at the 2016 American Pediatric Surgical Association Conference
  • Represented CDH families at the 2016 American Pediatric Surgical Nurses Association Conference
  • Represented CDH families at the 2016 Global Rare Disease Conference
  • Started research projects with 3 CDH Research Centers
  • Charity of the 2016 American Mustang Car Show in Indianapolis
  • 2016 Combined Federal Campaign charity
  • Gave our first Live Facebook Videos
  • Gave over 25 speeches locally on CDH
  • Held the 2016 Masquerading Angels Ball
  • Participated in Leesburg Christmas Parade
  • Participated in Yucca Valley Christmas Parade
  • 1 new office intern
  • Held the 2016 Chris Leith Golf Tournament for CHERUBS
  • Golf Tournament in Atlanta launched new CDH foundation
  • Awareness Walk in Ontario, Canada
  • Reached over 28,000 Facebook Fans
  • Reached 75,000 posts on the CDH Forums
  • Awarded 9 Financial Assistance Grants to Families
  • Awarded 3 CDH Scholarships
  • Participated in National Children's Memorial Day
  • Participated in #GivingTuesday
  • 50/50 CDH Raffle for Research Contest
  • CHERUBS Vendor Event
  • April 19th - Congenital Diaphragmatic Hernia Action Day
  • Niagara Falls lit up for April 19th
  • Salt Lake Bees Baseball CDH Awareness Night
  • CDH Awareness Night with the Las Vegas 51's
  • Christmas with Kasey Golf Classic in Colorado
  • Jessy's Journey: 4th Annual CDH Walk/Bike/Run in Ohio
  • Lizzy's 10k Annual Walk for CHERUBS in Ontario, Canada
  • Teen Vocal Talent Showcase in Mississippi
  • Canada CDH Action Day Gathering
  • CHERUBS Pacific NW Families Strike Back Against CDH
  • CDH Awareness Night with the Potomac Nationals
  • CDH Action Day in Missouri
  • CDH Awareness Day and Get-Together in Ohio
  • Creative Canvas Fundraiser
  • One Hope Wine Fundraiser
  • Clark County Sale Fundraiser
  • Texas Roadhouse CDH Fundraiser
  • FedEx Ohio Fundraiser
  • CDH Action Day in Arizona
  • Stickin Up for CDH Fundraiser
  • My Premier Designs Fundraisr
  • Pampered Chef Fundraiser
  • Tastefully Simple Fundraiser
  • Metal Momma Fundraiser
  • Beach Glass Jewelry Fundraiser
  • Usborne Book Fundraiser
  • Keep Collective with Marisa Fundraiser
  • DollarDays Contest Winner
  • PECO Crown Lights in Philadelphia lit up for April 19th
  • Terminal Tower in Cleveland lit up for April 19th
  • Saint Louis Science Center's James S. McDonnell Planetarium lit up for April 19th
  • BC Place in British Columbia lit up for April 19th
  • Peace Bridge in Buffalo lit up for April 19th
  • Wells Fargo Duke Energy Center lit up for April 19th
  • Telus World of Science lit up for April 19th
  • Calcary Tower lit up for April 19th
  • CN Tower lit up for April 19th
  • WoodmenLife Tower lit up for April 19th
  • JL Tower in Anchorage lit up for April 19th
  • Brant Street Pier in Ontario lit up for April 19th
  • High Level Bridge in Edmonton lit up for April 19th
  • Eli's Run in Wilmington, North Carolina
  • Kassidy's Kause Fundraiser
  • Storybook Birthdays Annual Costume Party Fundraiser in Mississippi
  • Night of Dinner and Dancing Fundraiser in Pennsylvania
  • CHERUBS Annual Ohio Picnic
  • Nathaniel Cummings Fundraiser
  • Melaeuca Fundraiser
  • Brady Thomas Golf Tournament
  • Justyce for Kids Fundraiser
  • Paint Nite Fundraiser
  • Gateway Men's Choir Benefit
  • Houston Spirit Night Fundraiser
  • Dress Down Fundraisers
  • Potomac Naitonals Fundraiser
  • Dixie Direct Savings Guide Fundraiser in Utah
  • CHERUBS Utah Picnic
  • Bravelets Fundraiser
  • Making Stride for CDH Fundraiser
  • Virtual Candles & Snowflakes Fundraiser
  • Virtual CDH Ribbons Fundraiser
  • Fetin 4 a Cause Fundraiser
  • Won 2016 Top-Rated NonProfit Award from GreatNonprofits.com
  • Won 2016 GuideStar Gold charity award

Join us in 2017 as we visit Capitol Hill in March and hold the International CDH Conference in Salt Lake City, along with many other local events.   

Stay tuned to our site and Facebook page for upcoming details!

Happy New Year from everyone at CHERUBS!

Our urgent goal:

Eliminate Congenital Diaphragmatic Hernia in our lifetime

and support those already affected.




  Donate to a Fundraiser   Support Family Programs
  Start a Facebook Fundraiser   CDH Hope Totebag Project
  Start a Crowdrise Fundraiser   CDH Conferences and Family Events
  Start a Firstgiving Fundraiser   Financial Assistance Grants
  Hold A Fundraiser   CDH Scholarships

CDH Research Opportunities:

Your Donation Dollar:

Volunteering Opportunities:

  • CHERUBS Research Study
  • CDH Research Study Group
  • Mass General Genetic Study
  • University of Utah Genetic Study



  • $3 - 1 CDH Bracelet
  • $10 - 1 CDH Newsletter
  • $12 - 1 Info Packet
  • $50 - 1 CDH HOPE Totebag
  • $150 - 1 Hospital Kit
  • $250 - 1 Family Grant
  • $1000 - 1 Scholarship
  • $7000 - 1 CDH onference
  • $10,000 - 1 Research Grant
  • Fundraisers
  • Graphic Artists
  • Executive Board Members
  • Welcome Committee
  • Prayer Committee
  • Hospital Angels

Click here for more

2017 - News from CHERUBS

2017 International CDH Conference in Utah

Our annual International CDH Conference will take place on July 27 - 30, 2017 in Salt Lake City, Utah.


Featured Cherub - Morgan Nuthols

Our featured cherub for the week of February 19th is Morgan Nuthols.


Featured Cherub - Jim Beau Reinhardt

Our featured cherub for the week of February 12th is Jim Beau Reinhardtl.