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BREAKING NEWS!!
 
2016 CHERUBS CDH Scholarship Winners

2016 CDH Scholarship Winners
 
This year, CHERUBS announced that it would give away one $1,000 Constance Springs Memorial CDH Scholarship. In addition to that scholarship, we were blessed with a donation from the Fore Hadley Golf Tournament. The parents of Hadley Bush, Ryan and Katie, wanted to award two $2,500 Hadley Kate Bush Memorial Scholarships.

“The Fore Hadley Golf Classic was founded in Hadley's memory,” says the Tournament website, “not just to honor her life, but to better support families affected by CDH and to help find a cure for this extremely serious but relatively unknown birth defect." Ryan and Katie are determined to make a difference in the CDH community and have given back very generously this year from their first annual golf tournament in Atlanta, GA. They want to make an impact in the lives of other families that CDH has or will touch. "Hadley passed away in the arms of her loving parents due to complications involving her underdeveloped lungs as a result of having been previously diagnosed with CDH. She lived six love-filled days. While her fight against CDH here on earth is over, her battle against it is just beginning.”
 
We had amazing applicants this year and the CHERUBS Scholarship Committee is proud to announce the 2016 Hadley Kate Bush Memorial Scholarship winners:
 
Natalie Holland and Emily Hayes!!
 
Both Natalie and Emily have won $2,500 scholarships to help with their college education.

Natalie Holland
 
Natalie Holland is mom to cherub angel Evie. Natalie is currently earning her first college degree in Nursing. She started her college degree in Theater, but when her and her boyfriend learned they were having a baby diagnosed with CDH, her life took a different path. Genevieve "Evie" Lucille Henderson was born December 8, 2014. Evie passed away in her parents’ arms Christmas morning. From here, Natalie chose to "build Evie's legacy with love and beauty." Not even a month after Evie had passed away, Natalie changed her major to nursing. Natalie's goal is to become a nurse in the NICU and work as part of an ECMO team.
 
Natalie's Professor of Theater describes her as having "a unique set of skills which allows her to accomplish whatever she sets out to do. She is hardworking, dedicated and extremely diligent in whatever she is working on both in class and in life." We would have agree with her Professor that she will no doubt "be an exceptional nurse and a true champion for children and their families." Natalie is also a member of Phi Theta Kappa (Scholastic Honor Society) and Sigma Kappa Delta (English Honor Society). Through Natalie's essays and letters of recommendations we were extremely moved by this young lady and wish her the best.

 

2016 CDH Scholarship Winners
 
Our second Hadley Kate Bush Memorial Scholarship winner is CDH Survivor, Emily Hayes.  
 
Emily is an amazing student and we very impressed by her grade point average, activities, and honors. Emily's intended major is Plastic Engineering. To name only a few of her High School Academic Accomplishments: Honor Society, Honor Roll,  STEMFest  participant and winner, All-Ohio Scholar Athlete, SkillsUSA winner, Architecture & Engineering awards, member of her school's golf team, theatre stage crew hand, percussionist in the school band, piano player, volunteer, and actively involved in 4-H.
 
In her essay, she said some people call her lucky, others call her a miracle and she said either way, she is happy to be alive. We too are happy she is here and are we are so fortunate to have gained insight into this wonderful young lady that has the future awaiting her. Emily's Architectural and Engineering Design Instructor said Emily has excelled in her high school career, "accepts responsibility for her education, has a determination to work, is always optimistic, shows initiative, respectful, honest, fair, confident, and trustworthy." She has signed on to play for the college golf team and we know Emily will excel in college and continue to reach her goals and follow her dreams. Congratulations, Emily!
 
The CHERUBS Scholarship Committee is also pleased to announce our 2016 Constance Springs Memorial CDH Scholarship winner.
 
This scholarship comes from a fund established in the memory of Constance “Connie” Springs, the grandmother of cherub Casey Carter. Both Connie and Casey’s mother, Lisa, have done so much for CHERUBS over the years by being Texas representatives, traveling across the country for CDH events, and organizing parades and other local events. Connie supported CHERUBS both with her time and her means to help families who are in the middle of their struggle with CDH. In lieu of flowers, the family asked for donations for the Constance Springs Memorial CDH Scholarship. This scholarship would have made Connie proud because she was always an avid supporter of education.

2016 CDH Scholarship Winners
And the winner of the Constance Springs Memorial CDH Scholarship is, Luke Ellis!!
 
Luke has won a $1,000 grant to help with his college education.
 
Luke Ellis is a CDH survivor and a great overall student. His intended major is Music Education and hopes to someday be a music teacher. He does have a backup plan of political science. Luke has earned honors in school and out of school. He has earned the rank of Eagle Scout in Boy Scouts and various music awards, including being a big part of his high school drum line.

Luke's school counselor described him "as one of those people you don't forget. He is sincere, honest, and loyal." From Luke's application we see that he steps up to each challenge and always does his best.  We also hope to see Luke teaching music and as a "fierce politician."  We really enjoyed getting to know Luke through his essays and we know he will do great things.
 
CONGRATULATIONS Natalie, Emily and Luke!! From all of us at CHERUBS, follow your dreams and reach for the stars!

Our urgent goal:

Eliminate Congenital Diaphragmatic Hernia in our lifetime

and support those already affected.

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WHAT CDH FAMILIES ARE SAYING:

"I can't imagine how we could have managed, or even survived the last 20 years without CHERUBS. I have made life long long friends, who in all honesty are in many ways more like family than my blood relations are. Our children, our CHERUBS families are so dear to us, they hold a special place in our hearts, always."- Heidi Forney

"CHERUBS has brought so many loving people into my life. They understand how I feel. They know what it's like to watch your child fight. They're more then just friends, they're family." - Brandy Hawkins

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"We have truly enjoyed being involved in Cherubs over the years. I have been able to attend two conferences where I met wonderful parents of other CDH kids and made lifelong friends. My favorite memories are of the CDH Awareness walks in DC. There is no other group that does so much to advance the cause of CDH kidsand their families."- Mary Abigail Reinhardt

"CHERUBS has been awesome to support us on our CDH journey! Even though we weren't members until long after our first CDH diagnosis, the support we've received since joining has been amazing. We have been able to connect with so many other families and share our successes and grief. We've also been able to offer support to so many other families. Without CHERUBS our CDH world, and the CDH world in general would be a lot darker!" - Josh Hensley

"The same day that we got the diagnosis that Vivienne had CDH I was was doing research online and discovered CHERUBS. A few weeks later we received the care package, with items donated by parents in honor/memory of their children. A lot of that stuff ended up being very useful, but even more than that, just feeling like part of a community of people who understand what you are going through was really great." - Allison Moore





 

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2017 - News from CHERUBS

CDH Picnic in Peoria, IL, held on 9.16.18

On Sunday, September 16th, CDH International Medical Advisory Board Member, Kristin Aigner, held a CDH family picnic for families in Peoria, IL.  Food and drinks were provided as they celebrated our miracles, whether they are here with us, or watching over us from heaven. 

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Featured Cherub: Taylor Jarecki Steffensmeier

Featured cherub of the week is Taylor Jarecki Steffensmeier.  This young woman continues to beat the odds one breath at a time and continues to bring hope to so many CDH families.  She continues to raise CDH Awareness and is an inspiration to so many of our members.  Here is Taylor’s story in her own words: 

I was born with undiagnosed LCDH in 1991 in a small rural hospital. The doctors noticed something was wrong with me right from the start as I entered the world blue. It was too foggy to be life flighted to the nearest NICU which was two hours away so I was taken by ground. Not even 24 hours old my parents had to make the decision to put me on ECMO. At 5 days old I had my first hernia repair surgery while I was still on ECMO. My hole was about quarter size, which doesn’t sound big in an adult but I was a five pound baby with that size of hole. They used a mesh patch. I was able to come off ECMO shortly after my repair.  One month later I broke out of the NICU and got to go home! 

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3rd Annual Get Your Shine On Golf Tournament Fundraiser

The 3rd Annual “Get Your Shine On” Golf Tournament was held at The Pointe Golf and Event Center in Elk Point, SD on September 8, 2018.  The tournament is held in honor of Rae Ann Davis, daughter of Sydney and Garrett Davis of Burbank, SD.  Rae Ann lost her fight to CDH shortly after she was born due to a large lack of development of her diaphragm along with limited lung development. 

Get Your Shine On was created to honor her memory and serve as a time for fellowship, support and a chance to raise funds to aid in the research of CDH and to support families that have been affected.  This event has continued to grow over the years and has raised over $34,500 in total, including the $14,500 plus from this year alone. Last year a silent auction was added to the event, which is conducted live at the golf event and posted onto Facebook for those unable to attend.  They had 64 golfers take in the day out on the course and numerous supporters who enjoyed the day from the clubhouse patio. 

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