• President Trump Chooses A Charity
  • CDH Family Forums
  • Over 800,000 babies affected by CDH
  • Over 6000 CDH Families Served
  • April 19th is CDH Awareness Day
  • Over $1 MILLION Raised for CDH
  • World's Largest CDH Charity
  • CDH Scholarship
  • CDH Financial Assistance Grants
  • CDH Research Database
  • CDH Awareness & Research on Capitol Hill
  • CDH Research Grants
  • Alliance of Congenital Diaphragmatic Hernia Organizations
  • 92 cents of every dollar goes to the cause
  • Buildings and Towers Light for CDH Awareness
  • Serving CDH Families Since 1995
  • CDH HOPE Totebag Project
  • Over 1000 Stories of CDH Patients
  • Raising CDH Awareness on the NYSE
  • CDH Blog Talk Radio
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Since CHERUBS started helping CDH families in 1995, we have done everything in our power to raise awareness, increase support, and facilitate research in America and across the globe. We have set records, met and exceeded our benchmarks, and continue to raise the bar for ourselves and our communities.

To see where CHERUBS began and where it is today, we have compiled a year-by-year list of our reach and impact in the CDH world:

1995

 

  • CHERUBS, the first CDH Charity in the United States, was created
  • CHERUBS is granted an EIN and 501 (c) III Non-Profit Status
  • The first CDH Newsletter was published, Spring 1995 Newsletter
  • First CDH Parent Reference Guide created
  • Summer 1995 Newsletter
  • Fall/Winter 1995 Newsletter

 

 

1996

 

  • First newspaper article about CHERUBS is printed
  • First Charity to attend the American Pediatric Surgical Association Meetings CHERUBS
  • First charity CDH Research Study created
  • Medical Advisory Board established
  • Our first computer was donated by GSK
  • Joined the National Organization for Rare Disorders, Inc (NORD)
  • Joined the Alliance of Genetic Support Groups
  • Inspirational quotes added to newsletters
  • Grieving Parents column created
  • Spring 1996 Newsletter
  • Summer 1996 Newsletter

 

 

1997

 

 

 

1998

 

  • Our first Secretary, volunteer Judi Toth, mom of Christopher Toth
  • CHERUBS Volunteer Coordinator position is created
  • Congenital Diaphragmatic Hernia Research Survey Results are published
  • International & State Representatives are created
  • Cooking with Cherubs is published
  • CHERUBS 1999 Calendars are published
  • CHERUBS first bake sale
  • CHERUBS first raffle held
  • CHERUBS first on-line chats
  • CHERUBS membership grows to over 100 CDH families
  • Our first donated copy machine to print our own newsletters
  • Fall 1998 Newsletter

 

 

1999

  • First CHERUBS Logo
  • First CDH Get-Together in Washington DC
  • 375 members in 11 countries
  • 4 newsletters
  • Advisor to 20/20 Episode on Fetal CDH Surgery
  • First CDH Information Packets created
  • CHERUBS is contacted by ABC's 20/20 staff for input on a story of a cherub
  • CHERUBS members participate in Noah's Flood ECMO Fundraiser for National Children's Hospital in Washington, DC
  • Our first Grieving Parents Get-Together is held outside of Washington, DC
  • Congenital Diaphragmatic Hernia Research Survey Results are published
  • Listservs move to Onelist.com, which becomes Yahoogroups
  • A forum for CDH medical professionals is created
  • New seperate listservs were created for grieving parents and parents of survivors
  • Advisory Committee is created
  • Conference Committee is created
  • Kids Book Committee is created
  • Fundraising Committee is created
  • Research Committee is created
  • Welcoming Committees are created
  • Card Committees are created
  • Grant Committee is Created
  • Welcoming Committees are created
  • Totebag Committee is created
  • Library Committee is created
  • Offer parents free web site graphics
  • 2000 Calendars are published
  • First Lock-In Fundraiser
  • First t-shirts and sweatshirts are created
  • First Christmas Fairy fundraiser
  • Newsletter Tribute fundraiser is started
  • Over 500 members
  • Spring 1999 Newsletter

 

2000

  • First International CDH Conference
  • First CDH Fundraising Auctions on Ebay
  • First on-line CDH Awareness Items store via Cafepress
  • On-Line CDH Research Library created
  • CDH Research Survey Results
  • First CDH T-Shirts sold
  • First Ohio member picnic is held in Columbus, OH
  • First message boards were created
  • Cooking with Cherubs Volume II is published
  • First Celebrity Auction is held
  • Listservs were created for our various Committees
  • 750 members in 20 countries
  • Spring 2000 Newsletter
  • Summer 2000 Newsletter
  • Winter 2000 Newsletter

 

2001

  • Get-Togethers in North Carolina, Ohio and New England
  • First Australian Get-Together
  • First Grieving Parents Get-Together
  • Hospital Ambassador positions created (name later changed to Hospital Angels)
  • CHERUBS contributes to Family Circle magazine article on CDH
  • CHERUBS petition for Certification of Ultrasound Technicians is started
  • First member Candlelighting Ceremony is held
  • CHERUBS CDH Video Committee is formed
  • CHERUBS Australia creates it's own national web sit
  • CHERUBS reaches 750 members in 27 countries
  • Spring 2001 Newsletter
  • Summer 2001 Newsletter
  • Fall 2001 Newsletter
  • Winter 2001 Newsletter

 

2002

  • CHERUBS moves into it's first office
  • CHERUBS is contacted by Lifetime Televisions "Strong Medicine" for a CDH story line
  • First United Kingdom National Member Get-together is held
  • Australia National Member Get-together is held
  • CHERUBS 2nd Celebrity Ebay Auction is held
  • Get-Togethers in Ohio, Texas and Alabama
  • 1150 members in 35 countries
  • Ebay Auction Fundraiser
  • Avon and Pampered Chef Fundraisers
  • Fall 2002 Newsletter
  • Spring 2002 Newsletter

 

2003

  • Member Ebay Auction fundraiser is held
  • Australia National Member Get-together is held
  • United Kingdom National Member Get-together is held
  • Ohio member picnic is held in Columbus, OH

 

2004

  • Participated in the first International CDH Study Group Conference
  • Listservs were created for each state and country where we have members
  • CHERUBS cafepress store is launched
  • CHERUBS UK is granted Non-Profit Status
  • Australia National Member Get-together is held
  • Ohio member picnic is held in Columbus, OH
  • CHERUBS 2005 Calendars are published
  • CHERUBS Adopt A Cherub Link Program was started
  • 1400 families
  • Spring/Summer Newsletter
  • Winter 2004 Newsletter

 

2005

  • CHERUBS submits research data for inclusion in the International CDH Study Group Congress in Germany
  • Ohio member picnic is held in Columbus, OH
  • Australia National Member Get-together is held
  • Over 1500 CDH families
  • Spring/Summer 2005 Newsletter

 

2006

  • "Stories of Cherubs" is published
  • CHERUBS new web site is started
  • Ohio member picnic is held in Columbus, OH
  • Australia National Member Get-together is held

 

2007

  • Founding member of the Alliance of Congenital Diaphragmatic Hernia Organizations
  • Congenital Diaphragmatic Hernia Awareness Ribbon Created
  • CHERUBS Australia files for Non-Profit Status
  • CHERUBS Board of Directors welcomes 3 new members
  • Angels for CHERUBS is started
  • CHERUBS New Member Coordinator position is created
  • New web site goes live
  • CHERUBS offers parents personal photo albums on-line
  • CHERUBS offers parents personal web blogs
  • CHERUBS offers dads their own forum
  • CHERUBS offers grandparents their own forum
  • Angel Ball Committee is formed
  • Ohio member picnic is held in Columbus, OH
  • Michigan get-together is held in Flint, MI
  • CHERUBS Posting Contest Started
  • ATV Rally Planned
  • CDH / NICU Baby Book Committee formed
  • Trick-or-Treat for CHERUBS Fundraiser started
  • CHERUBS joins GoodSearch.com
  • First Congenital Diaphragmatic Hernia Information Packet Party held
  • Congenital Diaphragmatic Hernia Awareness Jewelry designing begins
  • CDH Awareness Logo created
  • CHERUBS Blog created
  • CHERUBS Live Space created
  • CDH Car Wash
  • CHERUBS Truffle Sale is held
  • CHERUBS is listed with Wikipedia
  • Children's Holiday Card Drawing Contest
  • First CDH Donation Jars
  • Christmas Fundraising Posters for Stores
  • Valentine's Day Fundraising Posters for Stores
  • Over 2000 CDH families
  • CHERUB Web Site averages 300,000 hits per month
  • CDH awareness ribbon car magnets created
  • Stories of Cherubs Vol. II was published, featuring almost 100 more stories of CDH patients
  • Cooking With Cherubs Vol. III was published and included recipes from around the world
  • Created over 100 Personalized CDH Awareness Ribbons for member
  • Published photographs of over 500 cherubs in our 2009 CHERUBS Calendar
  • Led the fight against the Congenital Diaphragmatic Hernia Awareness Trademark
  • Sold 100's of CDH awareness items on Cafepress and added dozens more products
  • We started a skateboard design fundraiser on Zazzle
  • Our first CDH Awareness Bracelets were sold
  • We added a new Facebook account and reached 100's of people, educating them and raising CDH awareness
  • We used our Myspace account to raise more CDH awareness
  • We launched our CDH Research Site and are working on getting the database up
  • National Children's Memorial Day
  • Our blanket committee was started
  • We did a Television Interview for our local events and explained what CDH is
  • We were featured or quoted or referred to in over a dozen newspaper articles
  • Worked CDH Study Group on our database
  • Over CDH forums had over 30,000 posts last year
  • We provided over 50 CDH families with blogs to journal about their cherubs
  • We created CDH Awareness templates for Myspace and Blogspot - reaching 1000's of people!
  • Jeremiah's Car Show
  • New England Zoo Trip
  • Gabe's Bowl-A-Thon
  • Gabe's Truffle Sale
  • 2007 Newsletter

 

2008

  • CHERUBS name changed to CHERUBS - The Association of Congenital Diaphragmatic Hernia Research, Awareness and Support
  • CHERUBS becomes Incorporated
  • CDH Conference in Raleigh, NC
  • First CDH Golf Tournament
  • First CDH Angel Ball
  • First CDH Awareness YouTube Channel Created
  • Ohio Member Picnic
  • First CDH Celebrity Spokesperson
  • Michigan Member Get-Together
  • North Carolina Member Get-Together
  • Grieving Parents Get-Together
  • ATV Rally
  • Angel Baskets created
  • 2008 Newsletter

 

2009

  • International CDH Conference in San Antonio
  • CDH Kids Song written
  • Pennsylvania Camping Trip
  • Ohio Member Picnic
  • Lilly Beck Jewelry Fundraiser
  • Participated in Chase Community Giving Contest
  • Personalized CDH Awareness Ribbon program started
  • Change for CHERUBS Fundraiser
  • Christmas with Kasey Fundraiser
  • First CDH Fundraisers on Firstgiving.com
  • Adopt a Hospital Program started
  • CDH Baby Book written
  • CDH HOPE Totebag project created
  • CDH Superhero items created
  • CDH Research Fund created
  • CDH Family Support Fund created
  • CDH Scholarship Fund created
  • CDH Financial Assistance Fund created
  • CDH Awareness Fund created
  • Jak’s Pub Crawl
  • Texas Bake Sale
  • "I Own Congenital Diaphragmatic Hernia Awareness" Video created
  • First CDH Awareness apps created
  • Kohl’s Department Store volunteer day at CHERUBS
  • CDH Awareness Blog Ring
  • Churches for Cherubs Day of Prayer
  • Spring 2009 Newsletter
  • Winter 2009 Newsletter

 

2010

  • April 19, 2010 CHERUBS defeats the trademark on "Congenital Diaphragmatic Hernia Awareness
  • New Social Media CDH Awareness campaign begun
  • First Save the Cherubs Photo Shoot
  • Congenital Diaphragmatic Hernia Baby Books go to print
  • Over 3200 members
  • Valentine's Day Fundraiser
  • Save the Cherubs Campaign started
  • "I'll Never Let You Go" song and CDH Awareness Video Released
  • Work begun on the CDH Research Bill, with immediate support of 2 Senators.  2 more would pledge their support in the next few months.
  • CHERUBS walks in the Great Human Race
  • New CDH Awareness Shop Opened
  • 831 Photography Fundraiser in memory of Drew Lewallen
  • Save the Cherubs & Sroka family on ABC News
  • CDH Awareness Road Rally in SC
  • Addison's Lemonade Stand Fundraiser
  • Special Needs Conference in Ohio
  • CHERUBS in Triangle March for Babies
  • Annual Pennsylvania Member Picnic
  • Green Family in Triangle March for Babies in Maryland
  • "Congenital Diaphragmatic Hernia Awareness Daily" slogan created.
  • 2010 International CDH Conference held in Orlando, FL
  • CHERUBS represents the CDH Community at the American Pediatric Surgical Association Conference
  • CHERUBS represents the CDH Community at the American Pediatric Surgical Nurses Association Conference
  • First "Parade of Cherubs"
  • Avon Fundraiser
  • Scentsy Fundraiser
  • Myers Family in Triangle March for Babies in Texas
  • Tupperware Fundraiser
  • Miche Bag Fundraiser
  • New CDH Fundraiser site created for families wanting to hold events in honor / memory of their cherubs
  • NC CHERUBS Zoo Trip took place at the Greensboro, Zoo
  • Save the Cherubs & Aaron Younce in the news
  • CHERUBS support CDH charities Real Hope for CDH & the Olivia Raine Foundation in Chase Giving contest
  • Work on new CDH Research Database begun
  • The World's First CDH Awareness Billboard
  • Oz Kidd-Ward CDH Scholarship Fund created
  • Larrison family CDH Hope Totebag item drive in memory of Hanna Rae Rose Larrison
  • Navy sailors at Norfolk put together 100 handprint kits for CDH Hope Totebags in memory of Hanna Rae Rose Larrison
  • CHERUBS members take "Vote for Cherubs" photos
  • CHERUBS wins $30,000 in the national APX Gives Back charity competition, coming in 2nd place and gathering 1000's of votes.
  • Soap Star Patsy Pease appeals for votes for CHERUBS
  • Newspaper Interviews
  • 10 annual CHERUBS Ohio Member Picnic
  • More Save the Cherubs photo shoots
  • CHERUBS made public Non-Profit retroactive to 2007
  • Our APX check award ceremony press conference raised more CDH Awareness
  • APX Contest Within Contest
  • 31 Party Fundraiser for Oz Kidd-Ward Scholarship Fund
  • Work on new CDH Forums begun
  • First full-time charity employee
  • Multiple newspaper interviews on APX contest
  • CDH Research Committee works over time on research article
  • CHERUBS & CDH represented in Fetal Hope March in NC in memory of Zoe Fisher
  • 2010 Masquerading Angels Ball
  • Trick-or-Treat for CHERUBS
  • TV interviews for Angel Ball raise awareness
  • Multiple newspaper interviews for Angel Ball
  • Radio Awareness on 96Rock
  • Roller Derby Fundraisesr for Oz-Kidd Ward Scholarship Fund
  • Blowing Rock Fundraiser for Oz-Kidd Ward Scholarship Fund
  • Vote for CDH Video created featuring videos submitted by members
  • Baby Shower in honor of Aaron Younce
  • Fosythe Hospital Walk to Remember
  • Tastefully Simple Fundraiser
  • Hot Air Balloon Ride Raffle Fundraiser
  • CHERUBS raises CDH Awareness to over half a million people Raleigh Christmas Parade
  • 2nd Annual Christmas With Kasey Fundraiser
  • CHERUBS Holiday Shopping Ebay Fundraiser
  • CHERUBS in Televised Parade Video on 2 TV Stations
  • Angel Ball Committee Chuck E. Cheese Family Get-Together
  • Enamel CDH Awareness Ribbons created
  • Over 200 personalized CDH Awareness Ribbons created
  • CHERUBS represented by Floyd family in Mississippi Christmas parade
  • CHERUBS work with 9 other charities in Pepsi Refresh
  • Over 35 celebrities Tweet for CHERUBS in Pepsi Refresh
  • CHERUBS Press Release picked up on over 4000 news outlets
  • 2011 CDH Cherubs Calendar
  • 2011 Save the Cherubs Calendar
  • 2010 National Children's Memorial Day Tribute
  • Breaths for Brielle Cha Cha for CHOP Zumbathon
  • Over 250 CDH Hope Totebags mailed out over the year
  • Over 75 Save the Cherubs CDH Awareness poster photographs created
  • Board of Directors adds 2 new members
  • CHERUBS reaches 3500 members
  • 2010 Newsletter

 

2011

  • First International Day of CDH Awareness held on April 19th
  • First CDH Awareness Parade of Cherubs held in Raleigh
  • International CDH Conference in Orlando
  • Win $32,000 in Vivent Gives Back Contest
  • Charlie Sheen helps raise CDH Awareness
  • Ohio Member Picnic
  • Holiday Card Exchange
  • Raleigh Christmas Parade Float
  • CDH Cruise Raffle
  • 2012 CDH Awareness Calendar
  • Silent Auction
  • Christmas with Kasey Fundraiser
  • Silpada Fundraiser
  • Trick-or-Treat for CHERUBS
  • 2011 Holiday Vendor Show
  • Masquerading Angels Ball
  • Charlie Stanfield-Maher Ball
  • CDH Horse Racing Night
  • Braiden’s Bowl-a-Thon
  • North Carolina Get-Together
  • Atlantic City Marathon
  • Today’s American Mrs 2011 Pageant
  • Dozens of new CDH awareness videos

 

2012

  • New Executive Board of Directors
  • New Parent Advisory Board
  • New Medical Advisory Board
  • Senate Bill S.3396 Introduced
  • Parade of Cherubs on April 19th in Washington DC to Capitol Hill
  • Members met with the offices of over 25 Senators
  • April 19th CDH
  • Parades of Cherubs on April 19th in Chicago, Seattle, Portland, Denver, St. Louis, Peoria
  • UK Light up The Night on April 19th
  • First ever Virtual CDH Awareness Parade on April 19th
  • 2012 CDH Conference in San Francisco
  • New CHERUBS Web Site
  • New Facebook Forums Application created
  • $10,000 CDH Research Grant awarded to CHOP on December 30th (by votes)
  • Another $10,000 CDH Research Grant awarded to DHREAMS on December 30th
  • First ever Facebook Grant Contest held by a CDH charity
  • Over 300 care packages sent to families through our CDH HOPE Totebag project
  • CDH families represented at the American Pediatric Surgical Association conference
  • Our 2012 National Children's Memorial Day tribute honored the memories over 1000 cherubs
  • Texas Get-Together
  • Ohio Picnic
  • UK Get-Together in Scotland
  • Chicago CDH Carnival
  • Pennsylvania / NJ / Delaware Picnic
  • Denver Picnic
  • Indiana Get-Together
  • Washington Zoo Trip
  • Oregon members met with Senators
  • Oregon members represent CDH families at the opening of Randall Children's Hospital
  • Over 900 raffle tickets sold for the 50/50 CDH Research Raffle raising $9000 for Research
  • Over 10,000 Facebook Fans reached
  • Over 10,000 signatures reached on CDH Research Bill petition
  • Over 18,000 people reached in one post on Facebook
  • 2012 Silver Lining Newsletter Published
  • 2012 CDH Awareness Video
  • Day of 2012 CDH Awareness Video
  • Participated in televised Raleigh Christmas Parade
  • CHERUBS members in Claremont, NC Christmas Parade
  • CHERUBS members in Snoqualmie Days Parade
  • It's a Knock-Out UK Fundraiser
  • Masquerading Angels Ball
  • UK Formal Ball
  • CDH Awareness Calendar featuring over 1300 CDH patients
  • Save the Cherubs CDH Awareness Calendar
  • First CDH Awareness Calendar in the United Kingdom
  • Won Shane Co. charity contest
  • Won the JuJuBelle Facebook contest
  • Our CDH Awareness Ribbon included in St. Louis Cardinals Game to raise money for St. Louis hospital
  • Washington Mud Run Fundraiser
  • Enter Stage Left Fundraiser
  • UK Fishing Competition Fundraiser
  • Rockin' for Aidan Fundraiser
  • CHERUBS joins Google+
  • CHERUBS joins Chirpify
  • CHERUBS joins Pinterest
  • CHERUBS joins Instagram
  • CDH Fundraising Kits created
  • Cooking With Cherubs cookbook project begun
  • Participated in the San Francisco Marathon
  • Participated in the Boston Marathon
  • Participated in the Baltimore Marathon
  • Participated in the Great Human Race in Durham, NC
  • Participated in the Iron Girl all women's half Marathon in the Mid-Atlantic
  • Participated in the Baltimore, MD Metric Marathon
  • Participated in the High Cloud Snapple Half Marathon in Washington, DC
  • Save The Cherubs in the Silicon Valley
  • New Holiday Facebook Covers project started
  • Dozens of free CDH Awareness graphics made
  • New yellow CDH Awareness Bracelets created
  • 47 members of the Angel Club
  • Over 100 new Save the Cherubs posters created
  • Membership reaches over 4200 families in 54 states
  • CHERUBS moves to new office
  • 5 television interviews
  • Over 2 dozen newspaper articles
  • 1 magazine article
  • Moved to new office
  • CHERUBS 2012 Newsletter

 

2013

  • New Logo
  • New Parent Advisory Board
  • New Medical Advisory Board Members
  • Worked with other CDH organizations and research groups to re-establish the Alliance of Congenital Diaphragmatic Hernia Organizations
  • Senate Resolution S. Res. 85 Introduced and passed unanimously to make April Congenital Diaphragmatic Hernia Awareness month
  • House Resolution H. Res. 133 introduced
  • Joined the Combined Federal Campaign
  • Parade of Cherubs on April 19th in Washington DC to Capitol Hill
  • Members met with the offices of over 25 Senators
  • April 19th CDH Parades of Cherubs in New York City, Dallas, Chicago, Philadelphia, Phoenix, Seattle, Portland, Denver, St. Louis, Peoria, Salt Lake City
  • UK Plane Jump Fundraiser
  • CDH Baseball Night at the Las Vegas 51's
  • Virtual CDH Awareness Parade on April 19th
  • 31 Governors proclaimed April 19th a Day of CDH Awareness
  • 12 Mayors proclaimed April 19th a Day of CDH Awareness
  • CN Tower in Toronoto lit for April 19th
  • Miami Tower lit for April 19th (thanks to the Olivia Faith Foundation)
  • Dublin City Hall lit for April 19th
  • New CDH Mascot "Hope"
  • 2013 CDH Conference in Boston
  • Mass General CDH Genetic Lab Tour
  • New CHERUBS Web Site
  • $10,000 CDH Research Grant contest held in December
  • $10,000 CDH Research Grant awarded to Shands for Kids
  • $10,000 CDH Research Grant awarded to Texas Children's Hospital Fetal Research Center
  • $5000 CDH Research Grant awarded to Mass General CDH Genetic Research Center
  • Additional CDH Research Grants awarded to DHREAMS, Shands, Legacy Emanuel, Lurie Children's and Seattle Children's Hospitals
  • A total of over $50,000 in grants from Congenital Diaphragmatic Hernia Research granted by CHERUBS in 2013
  • Over 250 care packages sent to families through our CDH HOPE Totebag project
  • 2013 CDH Magazine
  • 10 new videos made
  • 2 College Scholarships awarded at $1000 each
  • Financial Assistance to a dozen families
  • CDH families represented at the American Pediatric Surgical Association conference in San Marco, Florida
  • Participated in a meeting of DHREAMS participating research centers
  • Participated in Meet the Experts at the Fetal Research Center at CHOP
  • CDH families represented and speech given at Euro CDH Conference in Holland
  • Our 2012 National Children's Memorial Day tribute honored over 1000 cherubs
  • Texas Get-Together
  • California Get-Together
  • Ohio Picnic
  • UK Get-Together
  • Pennsylvania / NJ / Delaware Picnic
  • Denver Picnic
  • Indiana Get-Together
  • Utah Get-Together
  • Nevada Get-Together
  • Over 600 raffle tickets sold for the 50/50 CDH Research Raffle
  • Over 25,000 Facebook Fans reached
  • Average social media reach of 100,000 people weekly
  • Participated in televised Raleigh Christmas Parade
  • 5th Masquerading Angels Ball
  • UK Formal Charley's Masquerade Ball
  • CDH Awareness Calendar featuring over 1600 CDH patients
  • Save the Cherubs CDH Awareness Calendar
  • Won the Emericon contest on Facebook
  • Groupon Totebag Fundraiser
  • One a WEGO Health Award
  • Participated in marathons in NYC, Baltimore, Blue Ridge of Virginia, Atlantic City, Pittsburg
  • Runs held in Canada, Ohio and North Carolina
  • Participated in a Color Me Rad Run
  • New Holiday Facebook Covers project started
  • Dozens of free CDH Awareness graphics made
  • Over 100 new Save the Cherubs posters created
  • Membership reaches over 4700 families in 60 countries
  • National Children's Memorial Day memorial to over 1200 lost cherubs
  • Monthly medical expert speakers on the forums
  • Became an official #GivingTuesday charity
  • Given a Gold Seal by guidestar.com
  • Given a 5-star rating on greatnonprofits.com
  • Participated in Couture for a Cause fashion show
  • 4 television interviews
  • 1 short film
  • First CDH word clouds created
  • Over 2 dozen newspaper articles
  • 100's of newspaper reprints of our press releases
  • Justcoz.org reach of over 50,000
  • Created first CDH Trolley Tokens
  • First charity to plan a Euro CDH Conference
  • First CDH Window display
  • T-fund T-shirt fundraiser
  • "A Fighter's Lullaby" song fundraiser
  • CDH Jewelry Fundraiser
  • Indiana Car Show
  • Wine and Design Fundraiser
  • Members hold dozens of fundraisers in honor and in memory of cherubs
  • CHERUBS 2013 Newsletter

 

2014

  • Rang the Closing Bell on the NYSE
  • Won Presidential Point of Light Award
  • Held first International CDH Conference in Europe
  • 2014 CDH Conference in Washington DC
  • Won 3rd place in national Dare Me For Charity contest
  • Participated in Dare Me For Charity events in; Las Vegas, Tempe, New York, Columbus, New Orleans, Denver, St. Louis, Detroit, Edina (Minnesota), Boston, Pittsburgh and Jacksonville.
  • CDH Awareness Month Resolution passed in United States Senate
  • CDH Awareness Month Resolution introduced in United States House of Representatives
  • Met with Congressmen on Capitol Hill
  • CHERUBS Dinner on Capitol Hill
  • 46 states proclaim April 19th for CDH Awareness
  • 72 mayors proclaim April 19th for CDH Awareness
  • Appeared on "Good Morning America"
  • Appeared on "Today Show""
  • Supported cherub Rudy Abreu on "So You Think You Can Dance"
  • Phillies vs Mets CDH Awareness Game
  • CN Tower in Toronto lit on April 19th for CDH Awareness
  • Mercedes Benz Super Dome lit on April 19th for CDH Awareness
  • Dublin City Hall lit on April 19th for CDH Awareness
  • Wells Fargo Duke Energy Center in Charlotte lit on April 19th for CDH Awareness
  • Miami Tower lit on April 19th for CDH Awareness
  • PECO Building in Philadelphia lit on April 19th for CDH Awareness
  • Cleveland Terminal Tower lit on April 19th for CDH Awareness
  • One Liberty Place Building in Philadelphia lit on April 19th for CDH Awareness
  • RSA Battle House Tower in Mobile lit on April 19th for CDH Awareness
  • Tampa Sun Trust Building lit on April 19th for CDH Awareness
  • City Place of West Palm Beach lit on April 19th for CDH Awareness
  • CDH Awareness Walk and Easter Egg Hunt in St Louis
  • Shands @ UF CDH Awareness Parade in Gainesville
  • 2014 CDH Awareness Event in Portland
  • CDH Awareness Ziplining Fundraiser in the UK
  • Baby B.L.U. 5K Race
  • CDH Awareness Day Event in Mesa, AZ
  • Applebee's CDH Awareness Night in Fresno, CA
  • CDH Awareness at Midcoast Pizza & More in Maine
  • Spin For CDH Awareness in Wilmington, NC
  • Parade of Cherubs in Portland
  • 4 CBS Outdoor Billboards light for CDH Awareness
  • CDH Awareness at the Philadelphia Zoo
  • Carnegie Science Center Lighting in Pittsburg
  • Hike the Hill for Congenital Diaphragmatic Awareness in Ohio
  • CDH Awareness Egg Roll in Ohio
  • Vance Thompson Vision Lighting in South Dakota
  • 10 Billboards - South Dakota
  • Salt Lake Bees Baseball CDH Awareness Night
  • CDH Awareness Night with the Las Vegas 51's
  • 2014 Day of CDH Awareness Texas Picnic
  • Member homes light up pink, blue and yellow
  • Membership reached 5000
  • Join the Combined Federal Campaign
  • April Showers for CDH Babies campaign
  • Peter Harris Clothes charity of the year
  • 2014 CDH Newsletter
  • 2015 CDH Awareness Calendar
  • CDH Radio Show
  • Member picnic in Indiana
  • Member picnic in Louisiana
  • Christmas cookie exchange and lunch in Nevada
  • Member picnic in Colorado
  • Fall Festivities in Oregon
  • Member brunch in Arizona
  • Mustang Club of Indianapolis Car Show benefiting CHERUBS
  • Member picnic in North Carolina
  • Member picnic in Ohio
  • Awareness walk in Ohio
  • 3 Shirt Fundraisers
  • 50/50 CDH Raffle for Research Contest
  • CDH Research Grant Contest
  • Created over 100 new graphics
  • 2014 CDH Awareness Holiday Cards
  • Created 5 more CDH Awareness Videos
  • Participated in Couture for a Cause
  • Participated in National Children's Memorial Day, honoring over 1900 lost cherubs
  • Participated in #GivingTuesday
  • Created CDH Funeral Assistance Fund
  • Awarded 1 CDH Scholarship
  • Awarded 12 Financial Assistance Grants to families
  • 4 Hospitals Presented with CDH Kits
  • Over 200 CDH HOPE Totebags sent to new and expectant CDH Families
  • Over 200 CDH Information Packets sent to CDH Families
  • Successfully petitioned correction of CDH info from "The Doctors" show
  • Installed new Board of Directors
  • Installed new members of the Parent Advisory Board
  • Office assistant hired
  • Over 100 CDH Angel Club members
  • Created CDH Support Groups on Facebook
  • CDH Ice Bucket Challenges
  • Reached over 22,000 Facebook Fans
  • Reached over 14,000 Twitter Followers
  • 2014 Silver Lining Newsletter

 

2015

  • 20th Anniversary
  • Reached our goal to raise $1,000,000 for CDH (over 20 years)
  • Welcomed 521 new families and medical care providers into our membership
  • Sent out over 130 CDH HOPE Totebags
  • 2015 CDH Conference Cruise
  • Presented CDH Research Survey findings at the 2016 CDH Workshop in Toronto
  • Presented Research on Transitioning to Adulthood with CDH at the 2016 CDH Workshop
  • Unanimous passing of S. Res 115 in the U.S. Senate
  • Introduction of H. Res 224 into the U.S. House of Representatives
  • Gathered 48 state proclamations, bringing us to all 50 states proclaiming April 19th
  • Met with Congressmen on Capitol Hill
  • CHERUBS Dinner on Capitol Hill  
  • Dear Nicholas Sparks Blog for CDH Awareness started
  • Met with Nicholas Sparks
  • Bought on 3 new members of the Executive Board of Directors
  • Installed 3 new members of the Parent Advisory Board
  • Added 2 new members to the Medical Advisory Board
  • Participated in 2015 Raleigh Christmas Parade
  • Gave over one dozen speeches locally on CDH
  • Held the 2015 Masquerading Angels Ball in Raleigh
  • 1 new office intern
  • $20 for 20 Fundraiser/Awareness Quilt Started
  • Monthly Contests Started
  • Fight Song Video with cherubs singing
  • 2015 Fedex Inspirational Winner
  • Procured the domain cherubs.org
  • Held the 2015 Chris Leith Golf Tournament for CHERUBS
  • Awarded 2 CDH Research Grants (on Dec 31st)
  • Held the 2015 CDH Research Contest
  • Awareness Walk in Ontario, Canada
  • Created State Facebook pages
  • Reached over 25,000 Facebook Fans
  • Awarded 18 Financial Assistance Grants to Families
  • Awarded 1 CDH Scholarshiop
  • Participated in Couture for a Cause
  • Participated in National Children's Memorial Day
  • Participated in #GivingTuesday
  • 50/50 CDH Raffle for Research Contest
  • Niagara Falls lit up for April 19th
  • PECO Crown Lights in Philadelphia lit up for April 19th
  • Terminal Tower in Cleveland lit up for April 19th
  • The Leonard P. Zakim Bunker Hill Memorial Bridge in Boston lit up for April 19th
  • Saint Louis Science Center's James S. McDonnell Planetarium lit up for April 19th
  • The Retirement Systems of Alabama lit up for April 19th
  • The Cummings Center in Beverly, MA lit up for April 19th
  • SunTrust Ziggurat in Tampa lit up for April 19th
  • Miami Towers lit up for April 19th
  • Eastside Cannery Hotel & Casino in Las Vegas lit up for April 19th
  • Omni Hotel in Dallas lit up for April 19th
  • Mayor Mike Savage's office in Nova Scotia lit up for April 19th
  • Salt Lake Bees Baseball CDH Awareness Night
  • CDH Awareness Night with the Las Vegas 51's
  • CDH Awareness Night with the City River Rascals
  • California Awareness Picnic
  • Colorado CDH Action Day Get Together
  • Pennsylvania Awareness Get Together
  • Oregon CDH Action Day Get Together
  • Texas Awareness Picnic
  • CDH Awareness Egg in Ohio
  • Arizona Awareness Day Get Together
  • Missouri Egg Hunt and Potluck for CDH Action Day
  • Louisiana Awareness Picnic and Balloon Release
  • Awareness walk/run in Ohio
  • Member picnic in Ohio
  • Member picnic in Arizona
  • 2016 CDH Awareness Calendar
  • Membership reached over 5600 members
  • CDH Awareness Bee's Baseball Game in Salt Lake City, Utah
  • Las Vegas 51's CDH Awareness Baseball Game
  • Reached 226,387 supporters in Thunderclap campaign
  • Genghis Grill Fundraiser in St. Henderson, Nevada
  • Eli's Run in Wilmington, North Carolina
  • Celebrate Sela: Race in Columbia, Mississippi
  • CHERUBS Ohio Easter Egg Hunt in Columbus, Ohio
  • CHERUBS St. Louis Get Together in St. Louis, Missouri
  • CHERUBS California Picnic in Clovis, California
  • Philadelphia, PA Get Together
  • CHERUBS Pacific NW CDH Action Day Event in Beaverton, Oregon
  • CHERUBS Arizona Picnic in Tempe
  • April 19th - Congenital Diaphragmatic Hernia Action Day
  • CHERUBS Louisiana Get Together in Thibodaux
  • Mustang Club of Indianapolis Car Show benefiting CHERUB
  • CHERUBS Colorado Get Together in Aurora
  • Texas Family Picnic for CDH Action Day in North Richland Hills
  • April 20th - T.G.I. Friday's Benefit Night for CHERUBS - Brea, California

 

2016

  • Reached over 6000 families and medical care providers in our membership
  • Awarded over $40,000 in CDH Research Grants
  • Sent out over 120 CDH HOPE Totebags
  • 2016 ACDHO CDH Conference in Paris bought together 5 charities
  • Published CDH Research Survey findings with Toronto Sick Kids at American Academy of Pediatrics
  • Congressman George Holding visits our office
  • Met with leader of the NICHD at the National Institutes of Health to discuss funding for CDH
  • Joined the Friends of NICHD charity alliance to further funding for child diseases and defects
  • Unanimous passing of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month in the U.S. Senate
  • Introduction of of resolution proclaiming April, 2016 Congenital Diaphragmatic Hernia Awareness Month into the U.S. House of Representatives
  • Gathered 48 state proclamations, bringing us to all 50 states proclaiming April 19th
  • Met with Congressmen on Capitol Hill
  • Dear Nicholas Sparks book published
  • Met with Nicholas Sparks
  • CHERUBS first book signing event
  • NFL NY Giants player Perry Williams visited our office
  • Bought on 2 new members of the Executive Board of Directors
  • Added 2 new members to the Medical Advisory Board
  • Represented CDH families at the 2016 American Pediatric Surgical Association Conference
  • Represented CDH families at the 2016 American Pediatric Surgical Nurses Association Conference
  • Represented CDH families at the 2016 Global Rare Disease Conference
  • Started research projects with 3 CDH Research Centers
  • Charity of the 2016 American Mustang Car Show in Indianapolis
  • 2016 Combined Federal Campaign charity
  • Gave our first Live Facebook Videos
  • Gave over 25 speeches locally on CDH
  • Held the 2016 Masquerading Angels Ball
  • Participated in Leesburg Christmas Parade
  • Participated in Yucca Valley Christmas Parade
  • 1 new office intern
  • Held the 2016 Chris Leith Golf Tournament for CHERUBS
  • Golf Tournament in Atlanta launched new CDH foundation
  • Awareness Walk in Ontario, Canada
  • Reached over 28,000 Facebook Fans
  • Reached 75,000 posts on the CDH Forums
  • Awarded 9 Financial Assistance Grants to Families
  • Awarded 3 CDH Scholarships
  • Participated in National Children's Memorial Day
  • Participated in #GivingTuesday
  • 50/50 CDH Raffle for Research Contest
  • CHERUBS Vendor Event
  • April 19th - Congenital Diaphragmatic Hernia Action Day
  • Niagara Falls lit up for April 19th
  • Salt Lake Bees Baseball CDH Awareness Night
  • CDH Awareness Night with the Las Vegas 51's
  • Christmas with Kasey Golf Classic in Colorado
  • Jessy's Journey: 4th Annual CDH Walk/Bike/Run in Ohio
  • Lizzy's 10k Annual Walk for CHERUBS in Ontario, Canada
  • Teen Vocal Talent Showcase in Mississippi
  • Canada CDH Action Day Gathering
  • CHERUBS Pacific NW Families Strike Back Against CDH
  • CDH Awareness Night with the Potomac Nationals
  • CDH Action Day in Missouri
  • CDH Awareness Day and Get-Together in Ohio
  • Creative Canvas Fundraiser
  • One Hope Wine Fundraiser
  • Clark County Sale Fundraiser
  • Texas Roadhouse CDH Fundraiser
  • FedEx Ohio Fundraiser
  • CDH Action Day in Arizona
  • Stickin Up for CDH Fundraiser
  • My Premier Designs Fundraisr
  • Pampered Chef Fundraiser
  • Tastefully Simple Fundraiser
  • Metal Momma Fundraiser
  • Beach Glass Jewelry Fundraiser
  • Usborne Book Fundraiser
  • Keep Collective with Marisa Fundraiser
  • DollarDays Contest Winner
  • PECO Crown Lights in Philadelphia lit up for April 19th
  • Terminal Tower in Cleveland lit up for April 19th
  • Saint Louis Science Center's James S. McDonnell Planetarium lit up for April 19th
  • BC Place in British Columbia lit up for April 19th
  • Peace Bridge in Buffalo lit up for April 19th
  • Wells Fargo Duke Energy Center lit up for April 19th
  • Telus World of Science lit up for April 19th
  • Calcary Tower lit up for April 19th
  • CN Tower lit up for April 19th
  • WoodmenLife Tower lit up for April 19th
  • JL Tower in Anchorage lit up for April 19th
  • Brant Street Pier in Ontario lit up for April 19th
  • High Level Bridge in Edmonton lit up for April 19th
  • Eli's Run in Wilmington, North Carolina
  • Kassidy's Kause Fundraiser
  • Storybook Birthdays Annual Costume Party Fundraiser in Mississippi
  • Night of Dinner and Dancing Fundraiser in Pennsylvania
  • CHERUBS Annual Ohio Picnic
  • Nathaniel Cummings Fundraiser
  • Melaeuca Fundraiser
  • Brady Thomas Golf Tournament
  • Justyce for Kids Fundraiser
  • Paint Nite Fundraiser
  • Gateway Men's Choir Benefit
  • Houston Spirit Night Fundraiser
  • Dress Down Fundraisers
  • Potomac Naitonals Fundraiser
  • Dixie Direct Savings Guide Fundraiser in Utah
  • CHERUBS Utah Picnic
  • Bravelets Fundraiser
  • Making Stride for CDH Fundraiser
  • Virtual Candles & Snowflakes Fundraiser
  • Virtual CDH Ribbons Fundraiser
  • Fetin 4 a Cause Fundraiser
  • Won 2016 Top-Rated NonProfit Award from GreatNonprofits.com
  • Won 2016 GuideStar Gold charity award

Join the CDH Angel Club



Join the Angel Club and make a monthly or annual donation in honor or in memory of your cherub.

Your membership into the CDH Angel Club brings you discounts on awareness merchandise and event tickets, your cherub's name listed on our web site, annual rewards and much more.  We appreciate every donor and club member and work hard to show that appreciation throughout the year.  Without you, CHERUBS cannot help CDH families.

Donation Amount Options
In honor or memory of who?

BREAKING NEWS:

CALL TO ACTION: Several charity services have been put on hold due to lack of funding. Donate now to help reinstate important support for families affected by CDH

.

Join us on Capitol Hill to help raise awareness and research funding on March 28 - 29, 2017.

.

2017 CDH Conference set for Salt Lake City, Nevada on July 27 - 30th.

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CHERUBS presents CDH Research to the American Pediatric Association.  This is the 3rd piece of research that our charity has presented to the medical community so far.







Our urgent goal:

Eliminate Congenital Diaphragmatic Hernia in our lifetime

and support those already affected.

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WHAT CDH FAMILIES ARE SAYING:

"I can't imagine how we could have managed, or even survived the last 20 years without CHERUBS. I have made life long long friends, who in all honesty are in many ways more like family than my blood relations are. Our children, our CHERUBS families are so dear to us, they hold a special place in our hearts, always."- Heidi Forney

"CHERUBS has brought so many loving people into my life. They understand how I feel. They know what it's like to watch your child fight. They're more then just friends, they're family." - Brandy Hawkins

........................ ......................................................................... ..........................................................................

"We have truly enjoyed being involved in Cherubs over the years. I have been able to attend two conferences where I met wonderful parents of other CDH kids and made lifelong friends. My favorite memories are of the CDH Awareness walks in DC. There is no other group that does so much to advance the cause of CDH kidsand their families."- Mary Abigail Reinhardt

"CHERUBS has been awesome to support us on our CDH journey! Even though we weren't members until long after our first CDH diagnosis, the support we've received since joining has been amazing. We have been able to connect with so many other families and share our successes and grief. We've also been able to offer support to so many other families. Without CHERUBS our CDH world, and the CDH world in general would be a lot darker!" - Josh Hensley

"The same day that we got the diagnosis that Vivienne had CDH I was was doing research online and discovered CHERUBS. A few weeks later we received the care package, with items donated by parents in honor/memory of their children. A lot of that stuff ended up being very useful, but even more than that, just feeling like part of a community of people who understand what you are going through was really great." - Allison Moore





 

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Click here to learn more about CDH

  • $3 - 1 CDH Bracelet
  • $10 - 1 CDH Newsletter
  • $12 - 1 Info Packet
  • $50 - 1 CDH HOPE Totebag
  • $150 - 1 Hospital Kit
  • $250 - 1 Family Grant
  • $1000 - 1 Scholarship
  • $7000 - 1 CDH Conference
  • $10,000 - 1 Research Grant
  • Fundraisers
  • Graphic Artists
  • Executive Board Members
  • Welcome Committee
  • Prayer Committee
  • Hospital Angels

Click here for more

 

2017 - News from CHERUBS

2017 CDH Conference

Our 2017 International CHERUBS CDH Conference was a huge success.

Read more...

University of Texas CDH Reunion

CDHi President, Dawn Ireland, visit the University of Texas

Read more...

Introducing Rachael Eller

We would like to welcome our new Office Manager and Research Database Administrator, Rachael Eller.

Read more...