• CHERUBS is now a division of Congenital Diaphragmatic Hernia International
  • CDH Family Forums
Previous Next

 

Congenital Diaphragmatic Hernia foundation CHERUBS was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness in 1995. In 2017, the organization evolved into CDH International and CHERUBS became the family support division of a new, global entity.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby's diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. CDH occurs in 1 in every 2500 babies, which equals to 1600 babies born each year with CDH in the United States alone. The overall survival rate is 50%. The cause is unknown.

Founded in 1995 by 2 parents, CDH International is the world's oldest and largest non-profit organization for families affected by CDH, serving over 6300 members in 70 countries. By working closely with hospitals and other charities, CDH International has led the way for families for over two decades and fought for awareness, research funding and greatly needed services for all families, at all hospitals, around the world.

We are here to help families at the time of diagnoses, through birth, hospitalization and even after the death of their children. No family has to fight CDH alone. And we will keep fighting until CDH is eradicated.

Our urgent goal:

Eliminate Congenital Diaphragmatic Hernia in our lifetime

and support those already affected.

insert

 

WHAT CDH FAMILIES ARE SAYING:

"I can't imagine how we could have managed, or even survived the last 20 years without CHERUBS. I have made life long long friends, who in all honesty are in many ways more like family than my blood relations are. Our children, our CHERUBS families are so dear to us, they hold a special place in our hearts, always."- Heidi Forney

"CHERUBS has brought so many loving people into my life. They understand how I feel. They know what it's like to watch your child fight. They're more then just friends, they're family." - Brandy Hawkins

........................ ......................................................................... ..........................................................................

"We have truly enjoyed being involved in Cherubs over the years. I have been able to attend two conferences where I met wonderful parents of other CDH kids and made lifelong friends. My favorite memories are of the CDH Awareness walks in DC. There is no other group that does so much to advance the cause of CDH kidsand their families."- Mary Abigail Reinhardt

"CHERUBS has been awesome to support us on our CDH journey! Even though we weren't members until long after our first CDH diagnosis, the support we've received since joining has been amazing. We have been able to connect with so many other families and share our successes and grief. We've also been able to offer support to so many other families. Without CHERUBS our CDH world, and the CDH world in general would be a lot darker!" - Josh Hensley

"The same day that we got the diagnosis that Vivienne had CDH I was was doing research online and discovered CHERUBS. A few weeks later we received the care package, with items donated by parents in honor/memory of their children. A lot of that stuff ended up being very useful, but even more than that, just feeling like part of a community of people who understand what you are going through was really great." - Allison Moore





 

Donate to a Fundraiser Support Family Programs
Start a Facebook Fundraiser CDH Hope Totebag Project
Start a Crowdrise Fundraiser CDH Conferences and Family Events
Start a Firstgiving Fundraiser Financial Assistance Grants
Hold A Fundraiser CDH Scholarships

 

CDH Research:

Your Donation Dollar:

Volunteering Opportunities:

 

Click here to learn more about CDH

  • $3 - 1 CDH Bracelet
  • $10 - 1 CDH Newsletter
  • $12 - 1 Info Packet
  • $50 - 1 CDH HOPE Totebag
  • $150 - 1 Hospital Kit
  • $250 - 1 Family Grant
  • $1000 - 1 Scholarship
  • $7000 - 1 CDH Conference
  • $10,000 - 1 Research Grant
  • Fundraisers
  • Graphic Artists
  • Executive Board Members
  • Welcome Committee
  • Prayer Committee
  • Hospital Angels

Click here for more

 

2017 - News from CHERUBS

Featured Cherub: Sofia Marie Carman

Featured Cherub of the Week is Sofia Marie Carman, she is the daughter of Steve and Katie Carman. 

Read more...

CHERUBS Annual Blue Jays Get Together, April 27, 2019

Save the date!  The annual Blue Jays Get Together is scheduled for April 27, 2019. Canada International Representative, Amanda Plakholm, is in the process of organizing a CHERUBS Get Together for families at the Toronto Blue Jays game on Saturday, April 27, 2019. The game is at 3:07pm against the Oakland A's. This is the 5th annual Cherubs Blue Jays Game gathering, where CDH families and friends can come together to raise CDH Awareness. To reach Amanda please email This email address is being protected from spambots. You need JavaScript enabled to view it. .

Read more...

Featured Cherub: Steven Hilario Lagunas

Featured cherub of the week is Steven Hilario Lagunas. He is the son of Berenice and Steven Lagunas. He fought so hard for 6 months, a warrior in every sense of the word.  From Steven's GoFundMe page, "Steven was a beautiful boy with a personality that shines brighter than the sun. His smile and his long eyelashes stole everyone’s heart. He smiled regardless of what he was going through. He truly is the strongest little boy we knew. Although our time with him was cut short he will be incredibly missed and loved forever. The time spent with him will forever be cherished."

The following is shared by cherub Steven's mom:

Read more...