• CHERUBS is now a division of Congenital Diaphragmatic Hernia International
  • CDH Family Forums
Previous Next

 

Congenital Diaphragmatic Hernia foundation CHERUBS was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness in 1995. In 2017, the organization evolved into CDH International and CHERUBS became the family support division of a new, global entity.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby's diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. CDH occurs in 1 in every 2500 babies, which equals to 1600 babies born each year with CDH in the United States alone. The overall survival rate is 50%. The cause is unknown.

Founded in 1995 by 2 parents, CDH International is the world's oldest and largest non-profit organization for families affected by CDH, serving over 6300 members in 70 countries. By working closely with hospitals and other charities, CDH International has led the way for families for over two decades and fought for awareness, research funding and greatly needed services for all families, at all hospitals, around the world.

We are here to help families at the time of diagnoses, through birth, hospitalization and even after the death of their children. No family has to fight CDH alone. And we will keep fighting until CDH is eradicated.

Our urgent goal:

Eliminate Congenital Diaphragmatic Hernia in our lifetime

and support those already affected.

insert

 

WHAT CDH FAMILIES ARE SAYING:

"I can't imagine how we could have managed, or even survived the last 20 years without CHERUBS. I have made life long long friends, who in all honesty are in many ways more like family than my blood relations are. Our children, our CHERUBS families are so dear to us, they hold a special place in our hearts, always."- Heidi Forney

"CHERUBS has brought so many loving people into my life. They understand how I feel. They know what it's like to watch your child fight. They're more then just friends, they're family." - Brandy Hawkins

........................ ......................................................................... ..........................................................................

"We have truly enjoyed being involved in Cherubs over the years. I have been able to attend two conferences where I met wonderful parents of other CDH kids and made lifelong friends. My favorite memories are of the CDH Awareness walks in DC. There is no other group that does so much to advance the cause of CDH kidsand their families."- Mary Abigail Reinhardt

"CHERUBS has been awesome to support us on our CDH journey! Even though we weren't members until long after our first CDH diagnosis, the support we've received since joining has been amazing. We have been able to connect with so many other families and share our successes and grief. We've also been able to offer support to so many other families. Without CHERUBS our CDH world, and the CDH world in general would be a lot darker!" - Josh Hensley

"The same day that we got the diagnosis that Vivienne had CDH I was was doing research online and discovered CHERUBS. A few weeks later we received the care package, with items donated by parents in honor/memory of their children. A lot of that stuff ended up being very useful, but even more than that, just feeling like part of a community of people who understand what you are going through was really great." - Allison Moore





 

Donate to a Fundraiser Support Family Programs
Start a Facebook Fundraiser CDH Hope Totebag Project
Start a Crowdrise Fundraiser CDH Conferences and Family Events
Start a Firstgiving Fundraiser Financial Assistance Grants
Hold A Fundraiser CDH Scholarships

 

CDH Research:

Your Donation Dollar:

Volunteering Opportunities:

 

Click here to learn more about CDH

  • $3 - 1 CDH Bracelet
  • $10 - 1 CDH Newsletter
  • $12 - 1 Info Packet
  • $50 - 1 CDH HOPE Totebag
  • $150 - 1 Hospital Kit
  • $250 - 1 Family Grant
  • $1000 - 1 Scholarship
  • $7000 - 1 CDH Conference
  • $10,000 - 1 Research Grant
  • Fundraisers
  • Graphic Artists
  • Executive Board Members
  • Welcome Committee
  • Prayer Committee
  • Hospital Angels

Click here for more

 

2017 - News from CHERUBS

Featured Cherub: David Siler

Featured Cherub of the week is cherub David Siler.  David is the son of Hope and Dalan and is the big brother to 3 siblings. David lived for 5 days here on earth and is forever in our hearts.  Both Hope and Dalan have done so much to raise awareness for CDH and this week we are doing something different for awareness.  In remembrance of David’s 6th birthday and angel anniversary this month (9/9 to 9/14), his mom Hope put together a video of his life and to raise CDH Awareness. 

Read more...

Featured Volunteer: Amanda Plakholm

Featured volunteer of the week is Amanda Plakholm. Amanda Plakholm is a CDH International Parent Advisory Board Member, CHERUBS Canada International Representative, Awareness Committee Member and Fundraising Committee Leader.

Read more...

Featured Doctor: Dr. Adrian John Curnow, MD

We want to thank Dr. Adrian John Curnow, MD with Saint Alphonsus Regional Medical Center in Boise, ID, for bringing Hope Around the World to our members.

Heidi Forney, mom to cherub Sean, wanted to thank Dr. Curnow, "Thank you Dr. Curnow, we know that without your compassion, wisdom, knowledge, and hands guided by God our son would not be here.  Going on 22 years on the 22nd of January 2019, and you have been with him every step along the way.  Bless you."

Read more...