• CHERUBS is now a division of Congenital Diaphragmatic Hernia International
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Congenital Diaphragmatic Hernia foundation CHERUBS was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness in 1995. In 2017, the organization evolved into CDH International and CHERUBS became the family support division of a new, global entity.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby's diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. CDH occurs in 1 in every 2500 babies, which equals to 1600 babies born each year with CDH in the United States alone. The overall survival rate is 50%. The cause is unknown.

Founded in 1995 by 2 parents, CDH International is the world's oldest and largest non-profit organization for families affected by CDH, serving over 6300 members in 70 countries. By working closely with hospitals and other charities, CDH International has led the way for families for over two decades and fought for awareness, research funding and greatly needed services for all families, at all hospitals, around the world.

We are here to help families at the time of diagnoses, through birth, hospitalization and even after the death of their children. No family has to fight CDH alone. And we will keep fighting until CDH is eradicated.

Our urgent goal:

Eliminate Congenital Diaphragmatic Hernia in our lifetime

and support those already affected.




"I can't imagine how we could have managed, or even survived the last 20 years without CHERUBS. I have made life long long friends, who in all honesty are in many ways more like family than my blood relations are. Our children, our CHERUBS families are so dear to us, they hold a special place in our hearts, always."- Heidi Forney

"CHERUBS has brought so many loving people into my life. They understand how I feel. They know what it's like to watch your child fight. They're more then just friends, they're family." - Brandy Hawkins

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"We have truly enjoyed being involved in Cherubs over the years. I have been able to attend two conferences where I met wonderful parents of other CDH kids and made lifelong friends. My favorite memories are of the CDH Awareness walks in DC. There is no other group that does so much to advance the cause of CDH kidsand their families."- Mary Abigail Reinhardt

"CHERUBS has been awesome to support us on our CDH journey! Even though we weren't members until long after our first CDH diagnosis, the support we've received since joining has been amazing. We have been able to connect with so many other families and share our successes and grief. We've also been able to offer support to so many other families. Without CHERUBS our CDH world, and the CDH world in general would be a lot darker!" - Josh Hensley

"The same day that we got the diagnosis that Vivienne had CDH I was was doing research online and discovered CHERUBS. A few weeks later we received the care package, with items donated by parents in honor/memory of their children. A lot of that stuff ended up being very useful, but even more than that, just feeling like part of a community of people who understand what you are going through was really great." - Allison Moore


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Click here to learn more about CDH

  • $3 - 1 CDH Bracelet
  • $10 - 1 CDH Newsletter
  • $12 - 1 Info Packet
  • $50 - 1 CDH HOPE Totebag
  • $150 - 1 Hospital Kit
  • $250 - 1 Family Grant
  • $1000 - 1 Scholarship
  • $7000 - 1 CDH Conference
  • $10,000 - 1 Research Grant
  • Fundraisers
  • Graphic Artists
  • Executive Board Members
  • Welcome Committee
  • Prayer Committee
  • Hospital Angels

Click here for more


2017 - News from CHERUBS

2018 CDH International T-Shirt Design Contest Winner

The winner of the 2018 CDHi T-Shirt Design Contest is Tiffany Gordan!  Tiffany Gordan’s "CDH Lung Design" was voted the best design by CDH families.  Tiffany is the mom to CDH survivor, Holden.

Spread your love and support for CDH awareness wherever you go with this “CDH Lungs Design,” created by Tiffany. 


Featured Cherub: Jayden Gilbert

Featured Cherub of the week is cherub Jayden Gilbert.  Jayden is the son of Alicia Gilbert, our Oregon Hospital Angel for CHERUBS.  Jayden lived for 23 days here on earth and is forever in our hearts.  Both Alicia and her mom, Shelly Moore, have done so much to raise awareness for CDH and help other families affected by CDH. 

Written by Shelly Moore, our Oregon State Representative for CHERUBS and Jayden’s Grandma: “Every CDH family has their own personal CDH Awareness Day....the day they are told their child with be born with Congenital Diaphragmatic Hernia and will have to battle for their life. 


Featured Volunteer: Lisa Baxter

Hi!  My name is Lisa Baxter.  I live in Burke, VA with my husband Jeff, and our CDH survivor Lindsey.  We were diagnosed at 20 weeks with one heart defect, then another at 24 weeks, and finally CDH at 27 weeks.  At the time, we were living in South Carolina. We were referred to Columbia, Charleston and then heard about the team at Cincinnati Children’s Hospital.  Jeff and I relocated to Cincinnati for almost 4 months to give Lindsey the best chance possible after being told she had less than a 50% chance of survival.  Lindsey was born in February 2014 and was in the NICU for 2 ½ months.  Lindsey is an amazing baby and is my hero!  We also have a 4 legged child, Elsa, who loves her sister very much.  I work part time as an independent consultant assisting organizations on their future site selections for upcoming meetings/events.