• CHERUBS is now a division of Congenital Diaphragmatic Hernia International
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Congenital Diaphragmatic Hernia foundation CHERUBS was created to help families of babies born with Congenital Diaphragmatic Hernia by providing support services, promoting research and raising awareness in 1995. In 2017, the organization evolved into CDH International and CHERUBS became the family support division of a new, global entity.

Congenital Diaphragmatic Hernia (CDH) is a birth defect that occurs when a baby's diaphragm fails to fully form, allowing abdominal organs to enter the chest cavity and preventing lung growth. CDH occurs in 1 in every 2500 babies, which equals to 1600 babies born each year with CDH in the United States alone. The overall survival rate is 50%. The cause is unknown.

Founded in 1995 by 2 parents, CDH International is the world's oldest and largest non-profit organization for families affected by CDH, serving over 6300 members in 70 countries. By working closely with hospitals and other charities, CDH International has led the way for families for over two decades and fought for awareness, research funding and greatly needed services for all families, at all hospitals, around the world.

We are here to help families at the time of diagnoses, through birth, hospitalization and even after the death of their children. No family has to fight CDH alone. And we will keep fighting until CDH is eradicated.

Our urgent goal:

Eliminate Congenital Diaphragmatic Hernia in our lifetime

and support those already affected.

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WHAT CDH FAMILIES ARE SAYING:

"I can't imagine how we could have managed, or even survived the last 20 years without CHERUBS. I have made life long long friends, who in all honesty are in many ways more like family than my blood relations are. Our children, our CHERUBS families are so dear to us, they hold a special place in our hearts, always."- Heidi Forney

"CHERUBS has brought so many loving people into my life. They understand how I feel. They know what it's like to watch your child fight. They're more then just friends, they're family." - Brandy Hawkins

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"We have truly enjoyed being involved in Cherubs over the years. I have been able to attend two conferences where I met wonderful parents of other CDH kids and made lifelong friends. My favorite memories are of the CDH Awareness walks in DC. There is no other group that does so much to advance the cause of CDH kidsand their families."- Mary Abigail Reinhardt

"CHERUBS has been awesome to support us on our CDH journey! Even though we weren't members until long after our first CDH diagnosis, the support we've received since joining has been amazing. We have been able to connect with so many other families and share our successes and grief. We've also been able to offer support to so many other families. Without CHERUBS our CDH world, and the CDH world in general would be a lot darker!" - Josh Hensley

"The same day that we got the diagnosis that Vivienne had CDH I was was doing research online and discovered CHERUBS. A few weeks later we received the care package, with items donated by parents in honor/memory of their children. A lot of that stuff ended up being very useful, but even more than that, just feeling like part of a community of people who understand what you are going through was really great." - Allison Moore





 

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Click here to learn more about CDH

  • $3 - 1 CDH Bracelet
  • $10 - 1 CDH Newsletter
  • $12 - 1 Info Packet
  • $50 - 1 CDH HOPE Totebag
  • $150 - 1 Hospital Kit
  • $250 - 1 Family Grant
  • $1000 - 1 Scholarship
  • $7000 - 1 CDH Conference
  • $10,000 - 1 Research Grant
  • Fundraisers
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  • Welcome Committee
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Click here for more

 

2017 - News from CHERUBS

Featured Volunteer: Josh Hensley

Josh Hensley is the father of two CDH babies, both of whom grew their wings.  It is hard to put into words how important this person is to the charity. Back in October 2010, this individual sent CHERUBS an email interested in being a volunteer with CHERUBS. Having lost two children to CDH, this member wrote in this email that he felt immense responsibility to “wage war” on CDH. His wife and he wanted to set up a CDH awareness tree at the festival of trees for Primary Children’s Hospital that year and wanted CHERUBS to be a part of it. From there, the rest is history. Josh Hensley is currently the Research Director at CDHi and has held many volunteer positions at CHERUBS since late 2010. He has traveled the world raising awareness and continues to wage war against CDH and we know he will not quit until that war is won. He has been a voice of reason throughout the years, for we don’t get much Dad point of views on our volunteer team. He is a one of kind man, has a big heart and is out there in the trenches fighting to put an end to CDH. Josh and his wife Melanie are the proud parents of 4 girls. Today, we thank Josh for all he does for CDH International and CHERUBS, his passion in wanting to wage war on CDH and his desire to help all families that are affected by CDH.

Read more...

Featured Cherub: Phoebe Kleensang

Featured cherub of the week is 5 year old Phoebe Kleensang.  Phoebe is the daughter of Megan and Aaron Kleensang.  Cherub Phoebe is a fighter and such an inspiration to many!

This is Phoebe’s story, written by her mom Megan:

Read more...

New Product in Online Store: CDHi’s “Merry Christmas Around the World” Ornament

Spread CDH Awareness with holiday cheer with one of our official CDHi Christmas ornaments! These ceramic ornaments attach securely to the tree to ensure that they’re both cat and child-proof.

.: One-sided printing
.: Golden string included for hanging
.: White ceramic